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Stop new proposed act in taking away copmouded meds!

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  • Stop new proposed act in taking away copmouded meds!

    Hi, I had this sent to me by the National Vulvodynia Association and want to urge everyone to read this. I am so scared! I am so dependant on my 5% lidocaine for Vulvodynia and so scared this will be taken away! I don't know what I would do if it weren't for my compounding pharmacy making this for me! Please check this out!
    Facebook- Ann Stockmeyer Rachinger

  • #2
    I just sent them my story and letter. I hope they listen. In my opinion this is just one more way to have BIG pharma take control of our lives.

    Lyme disease diagnosed 11/05
    vulvar vestibulitis diagnosed 2/06 -worst case she has ever seen..very bad.
    IC diagnosed with hydro/cysto- may 17, 2006

    Over growth of lactobicilli found 8/07 treating with doxy.

    Was able to get my first internal exam evaluation for PFD....wohoo 1/18/07:woohoo:

    8/22/07- was able to get my first speculum exam, with pap

    Strep D found in bladder with United medical labs May 2006
    2 strains of strep in stool culture 9/06
    high Strep ASO titre found 10/06


    Capsasin cream-once a day for 20min,
    BUt wont lie it does burn

    About to start valium supositories for PFD

    Trigger point injections- oct 07

    Current meds:
    Neurontin- 100mg at night supposed to work up to 300mg if i can tolerate it
    Zanaflex 2mg
    IC and low oxalate diet, no sugar diet
    Xanax for appointments to help relax me since they cause so much pain

    Started PT 3/07, PT has really helped me in ways I never knew that it would

    Meds ive tried
    Soma- can barely tolerate half a pill
    Atropine cream- didnt seem to work, although i found out I was applying the creams wrong
    Estradiol cream
    Urelle- caused worse bladder spasm and retention

    Various antibiotics for lyme which caused yeast and made the IC and VV worse

    waiting for the next chronic illness to pop up

    "Did you know?
    Every 15 seconds,
    a person is
    diagnosed with
    interstitial cystitis."
    Source: J. Dimitrakov, MD


    • #3
      I sent them the letter, and I hope it will help! This is outrageous.



      • #4
        Thanks a lot everyone. It means so much! I am actually getting some of my family to fill this form letter out also. I am beside myself about this! I really depend on that 5% strength of lidocaine. I talked to a very helpful pharmacist today that told me they are proposing this bill to start in the fall. Please keep up the letters going in. I cannot believe they can do this to all the people out there who are suffering and need compounded meds! ~Ann
        Facebook- Ann Stockmeyer Rachinger