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Not Sure What The Hell This Is

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  • Not Sure What The Hell This Is

    I don't know if this is Vulvodynia or what... My last pelvic exam was excruciating. I was there to schedule my surgery for a Laparoscopy for what I was told was Endometriosis (later in the exam, he drew the conclusion that I may have IC, not Endo). My dr. went to perform the exam and, before he could even insert a speculum, the pain was unbearable. The pressure on my vaginal walls was way too much to handle (NOTE: I've had pelvic exams before and they weren't a big deal). I was the same way at my last exam only three months before. Besides that unbearable pain, I've been having really sharp pains where the perineum is... It's horrible and it's really starting to affect my life. What the hell is this?
    **I could have my long list of current medications and diagnoses and the other medications that I've tried, but I'm going to focus on something more: words that inspire and motivate me to keep my head up and keep fighting.**

    "A bird doesn't sing because it has an answer, it sings because it has a song."
    "The honorary duty of a human being is to love."
    "The main thing in one's own private world is to try to laugh as much as you cry."
    "If you find it in your heart to care for somebody else, you will have succeeded. "
    "If you don't like something, change it. If you can't change it, change your attitude. Don't complain. "
    "The most called-upon prerequisite of a friend is an accessible ear. "

    These are all the wise words of my hero: Maya Angelou

  • #2
    Back right around the time before and just after diagnosis, I had all sorts of odd sensations in just those areas. I know that I had pains in my perineum, sometimes felt like "sharp/stabbing" type pains, and they'd cross over to the vaginal area as well, it was horrible - and of course would always seem to happen when I was at work - ugh.

    For me I believe now it was bladder-related, because the longer I was on my medications, those sorts of things were the first to go away. I'd also have a feeling like I'd been kicked in the crotch - and that's exactly how I explained it to my doctor, and then it started to feel like, ok the only way to explain this is - I thought it felt like how a man would feel with an erection that wouldn't go away. It was a full-pressure sort of feeling, that was incredibly uncomfortable and painful all at the same time in my vulvar/vaginal area. My doc thought it was "engorgement" and asked me to keep an eye on it to see if things were in fact swelling at all...but before we could really start delving into it, it started to go away, and in fact did... So, that's what makes me think it was bladder-related...

    I would give my doc a call and see what they think about it and any ideas etc. I do know that when I was home a cold pack on the perineum REALLY helped me out, it soothed things quite a bit!!!!
    How do you eat an elephant? One bite at a time...

    Harry arrived 2/23/09!

    *IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

    IC Diet Cheat Sheet:

    IC dx'd Nov 2004
    Lymphocytic Colitis dx'd July 2005
    Possible IBS
    Current IC Meds
    Vistaril 25mg in the evening
    Previous IC Meds taken:
    Cystoprotek - 2 caps 2x's a day
    Elmiron, 100mg 3x's a day
    Ditropan, 5 mg 3x's a day
    Wellbutrin 150mg 2x's a day for Anxiety/IBS
    Pepcid 40mg a day for GERD
    Zytrec for Nasal Allergies
    Align Probiotic daily for IBS