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What do you all recommend as a safe lube to use? I can't use Astroglide and am afraid to try others. I have heard good things about Femglide; has anyone else tried it? Has anyone tried plain olive oil? This was recommended by a friend but I haven't tried it.
I had a problem with KY jelly in the past but then I got the KY liquid, not the warming stuff just the regular KY liquid and that has worked great for me, no problems from the lub and it def helps with pain, I won't have sex w/o it now
Christine
I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
I have tried every oral medication as well as rescue instills and DMSO.
I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)
Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
Also proud mom to the best Bullmastiff on earth, Claus
I don't have vulv., but I'm allergic to everything + my IC in general gets irritated. I use water based lub. ANY brand, of unscented unadulterated waterbased... which is sometimes hard to find. I can't use any of the oils or I get irritated (allergies) and then flare.
My doc also said Crisco but I haven't used for sex. I got "Slippery Stuff" in a sex shop it is water based glicerin free lube and it was recommeded by some girls at a IC support meeting. You can also order it online but you'll have to pay shipping.
Laser cervical surgery after abnormal pap (moderate dysplasia) in 3/2004
UTIs since mid 2004
Recurrent yeast infections since mid 2005
IC dx 3/2006
V V dx 12/2006
Other conditions: IBS, allergies, dry eyes.
Current IC medications:
Elavil (since 12/06) 10 mg;
Cysta Q (since 5/07)
Rephresh acid jel every 3 days
D-mannose, fish oil, Calcium Citrate, Multivitamins & garlic pills (sometimes)
Probiotics Femdophilus or other brands
Gy-Na-Tren for yeast infections (started using it as needed since 2010)
Other Rx:Omeprazole 20mg; benadryl as needed, Restasis
Past Meds and why I stopped them:
Elmiron: March to September 2006: headaches Lyrica:2 weeks in 2006: headaches
Cystoprotek: from Jan to April 2007: nausea Femcon Fe (2/07 to 10/07):caused spotting/bleeding
BCP:Loestrin (since Ocotber 2007) to stop spotting for 2 months. V V worse. Stopped the pill in Nov 07.
"Obstacles don't have to stop you. If you run into a wall, don't turn around and give up. Figure out how to climb it, go through it, or work around it"
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