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Not familiar with VV, could I possibly have it?

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  • #1

    Not familiar with VV, could I possibly have it?

    I have never really even heard the term before, but with my knowledge of medical terminology, I can at least figure out that it involves pain "down there." Can anyone give me some insight?

    Sorry if this is too much information, btw, as it is very personal. One of the problems that I've had is that lately my pelvic exams have been very uncomfortable, not that they ever are "comfortable," but have been worse than they used to be. As far as sex goes, clitoral stimulation can hurt INCREDIBLY, direct touch will send me through the roof with pain. I have always thought that perhaps my urethra was being touched and that that was what was causing the pain, but I don't really think so. Indirect touching of it doesn't really hurt, but I can absolutely not tolerate it being touched directly. Also, when I have an orgasm, I get pain that I can only really describe as being in the SKIN around my vaginal opening, not very specific, and too low to be considered pelvic pain. I've never really mentioned it to my GYN but am thinking that maybe I should...

    Any feedback would be greatly appreciated, I haven't been here very long but everyone here is so knowlegable and insightful!
    32 years old

    former Med/Surg RN

    endometriosis x 13 years (with attempted/ failed complete removal in June 2008), IC diagnosed with cysto/hydrodistention April 2007, second cysto/hydro in June 2008
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    • #2
      I'm sorry you are having those symptoms. Please see your gynecologist and talk about them if not able to get help with your currecnt one, see a vulvar speacialist. Do you have IC as well?
      Do you have discharge? you may have an infection and that needs to be ruled out first (even though you can have both Vulvodynia and and infection)
      There are treatments not many but they help. See your doctor asap.
      Please kep us posted.
      Hugs
      Laser cervical surgery after abnormal pap (moderate dysplasia) in 3/2004
      UTIs since mid 2004
      Recurrent yeast infections since mid 2005
      IC dx 3/2006
      V V dx 12/2006
      Other conditions: IBS, allergies, dry eyes.

      Current IC medications:
      Elavil (since 12/06) 10 mg;
      Cysta Q (since 5/07)
      Rephresh acid jel every 3 days
      D-mannose, fish oil, Calcium Citrate, Multivitamins & garlic pills (sometimes)
      Probiotics Femdophilus or other brands
      Gy-Na-Tren for yeast infections (started using it as needed since 2010)
      Other Rx:Omeprazole 20mg; benadryl as needed, Restasis

      Past Meds and why I stopped them:
      Elmiron: March to September 2006: headaches
      Lyrica:2 weeks in 2006: headaches
      Cystoprotek: from Jan to April 2007: nausea
      Femcon Fe (2/07 to 10/07):caused spotting/bleeding
      BCP:Loestrin (since Ocotber 2007) to stop spotting for 2 months. V V worse. Stopped the pill in Nov 07.

      "Obstacles don't have to stop you. If you run into a wall, don't turn around and give up. Figure out how to climb it, go through it, or work around it"

        Comment

        • #3
          I do have IC, and have had several tests for infection over the last several months due to the pain (before the IC diagnosis). All were negative. No discharge, either. That's why I was wondering if this was a possibility.

          Thank you for your reply.
          32 years old

          former Med/Surg RN

          endometriosis x 13 years (with attempted/ failed complete removal in June 2008), IC diagnosed with cysto/hydrodistention April 2007, second cysto/hydro in June 2008

            Comment

            • #4
              It looks like it may be a result of nerve damage or something that happens to nerves when you have chornic pain in your case I see you also have endometriosis. Your pelvic floor muscles may be tense too and you have to check that out.
              Laser cervical surgery after abnormal pap (moderate dysplasia) in 3/2004
              UTIs since mid 2004
              Recurrent yeast infections since mid 2005
              IC dx 3/2006
              V V dx 12/2006
              Other conditions: IBS, allergies, dry eyes.

              Current IC medications:
              Elavil (since 12/06) 10 mg;
              Cysta Q (since 5/07)
              Rephresh acid jel every 3 days
              D-mannose, fish oil, Calcium Citrate, Multivitamins & garlic pills (sometimes)
              Probiotics Femdophilus or other brands
              Gy-Na-Tren for yeast infections (started using it as needed since 2010)
              Other Rx:Omeprazole 20mg; benadryl as needed, Restasis

              Past Meds and why I stopped them:
              Elmiron: March to September 2006: headaches
              Lyrica:2 weeks in 2006: headaches
              Cystoprotek: from Jan to April 2007: nausea
              Femcon Fe (2/07 to 10/07):caused spotting/bleeding
              BCP:Loestrin (since Ocotber 2007) to stop spotting for 2 months. V V worse. Stopped the pill in Nov 07.

              "Obstacles don't have to stop you. If you run into a wall, don't turn around and give up. Figure out how to climb it, go through it, or work around it"

                Comment

                • #5
                  Have you tried the lidocaine(sp?) gel? I have not used it, but heard lots of things about it?

                  Kristi
                  Diagnosed with IC - March 2007
                  Diagnosed with vulvodynia - June 2007
                  -Lots of prayer
                  -Taking Elmiron and Hydroxzine (stoppped because of pregnancy)
                  -Taking Prelief as needed (stopped because of pregnancy)
                  -IC diet

                    Comment

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