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  • Had vestibulectomy

    I just wanted to share my story of my vestibulectomy surgery. I read a very good post by Amy before I had mine done. I had a different experience so I thought it might be good to have two different perspectives for those considering this surgery to read. I have to caution that I had extensive incisions as far as depth and length as my "damaged" tissue area was large. Many women have a more conservative surgery with excellent results. Also, my doctor diagnosed me with vulvadynia, not VV, but he has had success with this surgery for both conditions. Some doctors will not do this surgery for patients with vulvadynia only.I also had little discomfort with intercourse but would be in horrible pain by about 4 hours later. Every case is different as can be seen in the difference in Amy's and my experiences.
    I had my surgery on March 6, 2007. I did not have any pain when I woke up in recovery as my doctor does local blocks to help with the first 24-36 hours of pain. I also kept an ice pack on the area for the first 2 days to help the swelling and bruising. I was very swollen but that is normal. I also had moderate bleeding for about three days and then it slowed down. Another very normal occurance as the area has a lot of blood flow. I took two vicodin for the ride home and was fine. I also had been given zofran while asleep in surgery and I didn't have any nausea or vomiting.
    After about a day and half the blocks wore off and I started having a lot of pain. I took an extra strength vicodin every three hours. I used the ice pack also until 48 hours were up. I then started doing a sitz bath every 3-4 hours (the hospital forgot to give me mine so I got one from a local medical supply store). The vicodin didn't really start helping until about the 4th day. At the end of the week I was still having to take the vicodin every 3 hours. My doctor took me off work for another week.
    I was not having any pain walking or standing after the second week but sitting was still uncomfortable. Putting a small pillow in the chair helped a lot with sitting comfortably. My first week back to work I did 8 hour shifts instead of my normal 12 hours. This worked well as I was down to one vicoding every 6-8 hours. By the end of 4 weeks I was only having a little discomfort in the very tip of the side incisions. By six weeks I was having no pain at all. On exam my vulvadynia score was zero compared to the normal 20+'s I had over the last year.
    I think that my doctor's skill and experience at this surgery have a big role in my success. I would not want an inexperienced doctor doing this type of surgery, for sure. I am grateful for his very gentle encouragement to have this done. I was not expecting total relief of pain so am very amazed at my results. I would definitly do this again.

  • #2
    I'm glad you are doing well.

    Donna
    Stay safe


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    • #3
      Im so glad you had success with the surgery..
      Hugs
      Ronda

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      • #4
        I am so glad to know that you found my vestibulectomy thread and read it befoe you had yours. I am glad to know that it helped you. It sounds like you had a much rougher recovery than I did. But it also sounds like they may have removed more tissue from you or that your incisions were larger and deeper than mine, that may have caused the difference in the level of pain you had post operatively.

        I am so glad to hear that the surgery helped you. It sounds like you have an excellent Dr. I hope that you continue to improve.

        Thank you for writing about your experiances. I agree that the more stories we have here about it, the better. After all, we are all so different. It helps alot to see a variety of experiances and outcomes so that people wont base their expectations solely on one experiance.

        Thanks again for letting us know! I hope you feel better and better!

        Hugs,
        Amy

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        • #5
          Thanks for sharing your story! It doesn't sound like an easy procedure to go thru or recover from, but I'm happy you are getting good results and hope that you continue to feel better and better. Best wishes

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          • #6
            Thanks for posting this. I am in the beginning of trying to figure out what might work for me but I definitely would not rule out surgery. I would far rather have the weeks of intense pain you had and then a good recovery than what I have.

            I have read that a good surgeons make all the difference in the world. I hope that you can post his/her name somewhere so that those of use who consider this in the future will be able to find it.

            Thanks!

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            • #7
              ICBop, you are not far from me. My Dr. is about an hour and a half north of you. (Maybe an hour depending on what side of Nashville you are in.) I had a wonderful surgeon who is also very knowledgeable about IC. (He is a gyn but he treats my IC for the most part.) If you ever need it, pm me and I will give you his name and number.

              Hugs,
              Amy

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              • #8
                Thanks! I will do that. First I have to go read up up how one does that! I'd gladly drive 1.5 hours for a caring doctor.

                I am flying to NYC in June to se Dr. Glazer and a Dr. Ledger who is a GYN who specializes in inflammation.

                Right now I can actually SEE the inflammation. Warning--this may be too much info for some, but it has moved north out of only the vestibular area and now forms a ring around the innermost sides of the labia all the way from top to bottom.

                To me, it always seems to me that inflammation you can see should have some sort of a known cause or at least some sort of effective treatment. SOMETHING must cause IC, VV, etc.

                Of course, the same is true for other types of pain. Until I got these lovely diseases (well to me it seems like ONE disease, but anyway...), I would have thought we were far ahead in research of various pain disorders than we actually are.

                These lists are so wonderful

                Thanks.



                Originally posted by ihurttoo View Post
                ICBop, you are not far from me. My Dr. is about an hour and a half north of you. (Maybe an hour depending on what side of Nashville you are in.) I had a wonderful surgeon who is also very knowledgeable about IC. (He is a gyn but he treats my IC for the most part.) If you ever need it, pm me and I will give you his name and number.

                Hugs,
                Amy

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                • #9
                  Hi everyone,

                  Thanks everyone for your replies. I do want to mention again that everyone is different and my recovery is just one story. Some women will have recover easily and some may have even a rougher time than me. I could not find a lot of detailed info on the web about this surgery. I am hoping that more stories posted here can help other women get a realistic picture before their surgery.

                  My doctor is listed in the find a doctor section of this site. He is also listed at www.pelvicpain.org. Anyone that does want more info may PM me.

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