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  • Lotions????

    So for christmas I received lotion and body creams. Do you think using lotions with fragrance make things worse. I watch everything I put on my body, meaning soaps, detergents, shampoos, etc... Just wondering when you get in the shower if this can irriate tissues? I want to use them, but I little nervous. So tell me what you think or use? And what is your favorite cream or oil to help with tissue burning and irriated area? Thanks for any suggustions.
    Have had symptoms of IC/PDF for the last 23 years.
    Diagnosed for the last 12 years.
    Meds currently taking are:
    Meds I have tried to many to remember. Lol

  • #2
    I don't have any problems with lotions or soaps on my body.
    For intimate area, though I use either the Very Private wash from the ICN shop or Summers Eve Sensitive wash.

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

    New favorite quote: "God gives us only what we can handle. Apparently God thinks I'm a bad-ass" ~Author Unknown
    Source - Pinterest

    Current treatments:
    -IC diet
    -Elavil 50mg at night
    -Continuous use birth control pills (4-5 periods/year)
    -Heparin/Marcaine/Sodium Bicarb home instills at night 3-4x per week, more often if needed
    -Pyridium if needed,
    -Pain medicine at bedtime daily, as needed during the day several times per week
    -Antibiotic when doing an instillation to prevent UTI
    -Colace & SmartFiber to treat chronic constipation from meds, Fleet enema as needed
    -Dye Free Benadryl 50 mg at bedtime
    -"Your Pace Yoga: Relieving Pelvic Pain" dvd, walking, treadmill at gym
    -Managing stress= VERY important!
    -Fur therapy: Hugging the cat!


    • #3
      Ditto ditto.........I love the Desert Harvest Gele for the tender girl parts. Soothes almost instantly!
      Julie Beyer, MA, RDN
      IC Dietitian, Patient Advocate, Speaker, & Author

      Did you know that up to 94% of interstitial cystitis patients find some symptom relief when they change their diet, and that dietary modification is recommended as a first line treatment for IC? Check out the IC Food List to get started!

      Do you need a little more help understanding the IC Diet? Schedule a phone or video coaching session through the ICN Store today.

      You can also learn more while supporting the ICN message boards by clicking on these book covers and buying the Confident Choices books from the ICN Store:

      ........ ........

      Other IC Diet Resources:

      IC Diet Webinar
      IC Diet Website
      For Health Professionals: Continuing Education About Interstitial Cystitis and Diet
      Free IC Diet Booklet: What Can I Eat?
      Confident Choices IC Diet Blog
      IC Diet Newsletter

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