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Anybody with vulvodynia??meds

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  • #1

    Anybody with vulvodynia??meds

    I just got a prescription for what My dr thinks could be vulvodynia..he prescibed me Desipramine a tryciclic drug thats suppose to reduce my pain..I cant take elavil which seems to be the drugs of choice. But I react badly to elavil it makes me really agitated...
    Anyone taking this desipramine and Is it Helping?
    help I would like some feedback....
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  • #2
    I've been seeing specialists in the vulvar clinic at U of M and the meds they gave me were

    neurontin, hydroxine, elavil. all of these also treat IC. I have found no relief/help from them and my VV is horrible right now!
    Best of luck to you. My VV is worse than my IC!
    Diagnosis: IC '09, vulvodynia '10, fructose intolerance '06, GERD '06, fibromyalgia '09, IBS '10 and TMJ '09, PCOS '11, genital herpes '12

    Current Meds: Butrans patch, welbutrin, lamictol, geodon, xanax, aldactone, linzess, topimax, trazadone and diflucan as needed.

    Meds tried before: Elmiron, elavil, antibiotics, welbutrin, cymbalta, prozac, nerve blocks, instills, nyastatin, flexerol, percocet, naproxen (which was what I was given for pain for years).

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    • #3
      I take Effexor XR right now both for my Vulvodynia and mild depression. It works okay for the Vulvodynia I have good days and bad days. I have taken both Elavil and Cymbalta in the past. Elavil seemed to help the best, but I could not take the fact that I was becoming a whale from it.

      I take vaginal valium at night for my pelvic floor and that has been benefiting me.
      DX: IC, V, VV, PFD, Generalized Anxiety Disorder, PN (just chronic inflammation of the nerve, not an entrapment), Depression

      Current Treatments: Effexor XR, Gabapentin, Oral Valium, Methadone, Lidocaine, ice/heat packs, sometimes vaginal valium suppositories, Vicodin

      My Pelvic Pain Blog

      FB Fanpage for My Pelvic Pain Blog

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      • #4
        does anyone vulvodynia act up when its time to have your period? I will be symptom free other than pain, until it is time for my period to start (I don't have one because I have an IUD) but at that time it gets itchy and inflammed and hurts. Is there any way to stop this? Is this common?
        Diagnosis: IC '09, vulvodynia '10, fructose intolerance '06, GERD '06, fibromyalgia '09, IBS '10 and TMJ '09, PCOS '11, genital herpes '12

        Current Meds: Butrans patch, welbutrin, lamictol, geodon, xanax, aldactone, linzess, topimax, trazadone and diflucan as needed.

        Meds tried before: Elmiron, elavil, antibiotics, welbutrin, cymbalta, prozac, nerve blocks, instills, nyastatin, flexerol, percocet, naproxen (which was what I was given for pain for years).

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        • #5
          I take Lyrica and use a steroid cream. I started Lyrica a week ago and it doesn't seem to have much of an effect yet. The steroid cream helps for about 30 minutes and then it loses it effect. I was also doing PT, but am now on a break from it because it would flare up my symptoms too much. We are hopefully that Lyrica will calm my nerves down a bit before we start PT again.
          Many people with vulvodynia also have tight muscles. Have you gotten that evaluated?

          Ginaaa, I have symptoms daily, but they seem to get worse while on my period. I think I am more sensitive on my period and the pad touching everything is just excruciating! I have switched to using Seventh Generation pads, which my PT told me has been helpful to many of her patients. However, it seems to make no difference to me. I am thinking of trying GladRags next. Perhaps the type of feminine care product you are using increases your irritation?
          Current treatment:
          Elmiron 100mg 3x a day
          Hydroxyzine 75mg
          Lyrica 100mg 3x a day
          Pelvic Floor Physical Therapy started 12/10
          Ativan 1-2mg as needed


          Bloging my thoughts at www.thispatientperspective.blogspot.com

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          • #6
            I got to PT for my vulvodynia and IC and PFD. I will be just fine down there when it is not time to be on my period but I can always tell when it is time. I have to wear a panty liner daily anyways so I dont think it is that irritating down there. I have taken so many meds for my vulvodynia. Right now its the time for my to have my period but I dont actually bleed because I have an IUD. I'm having a HORRIBLE flare I'm so raw and it hurts so bad. I have used creams, changed laundry detergent, use cold packs, lidocain cream, meds like elavil, atarax, neurotin.. & they dont help.
            Diagnosis: IC '09, vulvodynia '10, fructose intolerance '06, GERD '06, fibromyalgia '09, IBS '10 and TMJ '09, PCOS '11, genital herpes '12

            Current Meds: Butrans patch, welbutrin, lamictol, geodon, xanax, aldactone, linzess, topimax, trazadone and diflucan as needed.

            Meds tried before: Elmiron, elavil, antibiotics, welbutrin, cymbalta, prozac, nerve blocks, instills, nyastatin, flexerol, percocet, naproxen (which was what I was given for pain for years).

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            • #7
              I really wish I could offer better suggestions for the pain you get when your period starts. I have pain no matter what (worse on my period) and I don't know what to do about it either =( I think hydroxyzine helpsa bit with painful itch, but the relief is very shortlived.
              Current treatment:
              Elmiron 100mg 3x a day
              Hydroxyzine 75mg
              Lyrica 100mg 3x a day
              Pelvic Floor Physical Therapy started 12/10
              Ativan 1-2mg as needed


              Bloging my thoughts at www.thispatientperspective.blogspot.com

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              • #8
                Before menopause I would have severe vaginal itching around my period. Menopause was a blessing for me.

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                • #9
                  well that is not anytime soon for me... I need to find something to relieve it...
                  Diagnosis: IC '09, vulvodynia '10, fructose intolerance '06, GERD '06, fibromyalgia '09, IBS '10 and TMJ '09, PCOS '11, genital herpes '12

                  Current Meds: Butrans patch, welbutrin, lamictol, geodon, xanax, aldactone, linzess, topimax, trazadone and diflucan as needed.

                  Meds tried before: Elmiron, elavil, antibiotics, welbutrin, cymbalta, prozac, nerve blocks, instills, nyastatin, flexerol, percocet, naproxen (which was what I was given for pain for years).

                  Comment

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