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suffering from vaginal and/or vulval burning?

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  • suffering from vaginal and/or vulval burning?

    vulvar pain foundation
    http://www.vulvarpainfoundation.org/

    oxalate in foods chart (low, medium, high)
    http://www.seekwellness.com/incontin...alate-diet.htm

    national vulvodynia association:
    http://www.nva.org/

    Vulval pain society
    http://vulvalpainsociety.org/

    and this is copied from Dr. Glazer's Vulvodynia website ( I think he wrote the vulvodynia suvivor's guide?)
    http://www.vulvodynia.com/
    7.13 Low-oxalate diet_

    A low-oxalate cookbook is available from the Vulvar Pain
    Foundation (address in "Resources"), and there are websites (also in
    "Resources") that list the oxalate content of many foods.
    Last edited by ICNDonna; 03-16-2011, 02:30 AM. Reason: Removed copyrighted material.

  • #2
    thank you! I was on the one site and when I seen all the symptoms my jaw dropped!!!
    Diagnosis: IC '09, vulvodynia '10, fructose intolerance '06, GERD '06, fibromyalgia '09, IBS '10 and TMJ '09, PCOS '11, genital herpes '12

    Current Meds: Butrans patch, welbutrin, lamictol, geodon, xanax, aldactone, linzess, topimax, trazadone and diflucan as needed.

    Meds tried before: Elmiron, elavil, antibiotics, welbutrin, cymbalta, prozac, nerve blocks, instills, nyastatin, flexerol, percocet, naproxen (which was what I was given for pain for years).

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    • #3
      my itching is vaginal under bladder wall

      I joined the Vulvur Pain group when they started. But now they seem totally involved with vulvadynia. My problem is intense vaginal itching under the bladder wall. For a long time gabapentin and Lactimal helped. Now I'm using Valium suppositories with a Percocet and a few puffs of weed at bedtime. I keep reading about vulvudynia but not about vaginal itching. When I had a support group there was one other woman with same symptoms.

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      • #4
        I do have chronic vulvar itching with no infection/yeast usually. I do occasionally use lidocain to help with the itching. Have you tried a dermatologist? One told me to use baby powder at night and desotin in the morning. I did not try this. I have also taken prednisone for the itching and inflammation down there and that helped substantially but I don't want to take them all the time. While I was on prednisone I ate like a cow and gained 15 lbs in 3 weeks.
        Diagnosis: IC '09, vulvodynia '10, fructose intolerance '06, GERD '06, fibromyalgia '09, IBS '10 and TMJ '09, PCOS '11, genital herpes '12

        Current Meds: Butrans patch, welbutrin, lamictol, geodon, xanax, aldactone, linzess, topimax, trazadone and diflucan as needed.

        Meds tried before: Elmiron, elavil, antibiotics, welbutrin, cymbalta, prozac, nerve blocks, instills, nyastatin, flexerol, percocet, naproxen (which was what I was given for pain for years).

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        • #5
          Derms

          Before my remission I saw a couple derms. One was especially interested in vulvudynia. She left my area and I think is still in Buffalo, N.Y.
          I was constantly sent to derms because I had a strange rash and my thighs and pubic area. I would get it when I had a yeast infection: a pedi derm stopped by to see my regular derm and said he'd seen it in other patients.

          I do have acutely sensitive skin with very little melanin (tanning pigment.) This is a family thing. Instead of a family doctor we had a family derm. I think we paid for his daughter's lavish wedding. I can wear cosmetics, but have to use very mild products. My maternal aunt had same problem and would tell me what to buy.

          I'm very new to this board and don't know if I'm allowed to post doctor's names. Please advise.

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