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I'm Tired, In Pain, Have Gained Weight .. Any words of encouragment would help...

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  • I'm Tired, In Pain, Have Gained Weight .. Any words of encouragment would help...

    Im sorry to complain...but im just getting sooo tired... physically and emotionally...its been the worst year EVER.. not only do i get diagnosed with IC...(which was a relief to know what the heck was going on at least).. and then developed IBS.. im gaining weight.. ive always been so tiny.. not anymore.. i can't exersise cuz it hurts and i eat cuz im depressed!! I know i could follow a diet, but im not emtionally motivated to do it..I need my spirits lifted... i pray lots, and my church prays for me.... i have lots of support... and happy people around me... i just need to get happy now...
    Thanks for listening...
    How does everyone else keep thier spirits up.. this disease is AWFUL!
    Ive even lost my job.. !!

  • #2

    I try to stay positive and pray alot, I also know that things could be worse, so I try not to dwell on my disease and just live one day at a time..It might help you if you start a journel, I have found writing my feelings down really seem to help..I always start my writing with the blessing I have had for the day, even if its small.. I also write things down that I am thankful for.. Try too think positive thoughts...It will get better..
    I will keep you in my prayers... God Bless You!

    ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!

    Link to Patient Handbook:

    Diet Reference Sheet:

    Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

    Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

    Meds I have Tried:
    Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
    Lexapro< Bad reaction to this med!
    Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

    Dx With IC in Nov 2006 with Hydro/Cysto
    Hydro/Cysto Caused Bladder to Rupture.

    Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.

    ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.


    • #3
      HI! Sorry to hear you are so down. I know pain from IC and from IBS can really get to you after a while. Lots of us have those problems plus some and can totally relate.
      It's hard to say what to do to help.....except to try to get your mind wrapped around something else. I work in my gardens when I'm feeling bad or down....and that is some exercise......better than nothing.
      I hope you can get a handle on things and lean on those who are there for you.......or us. There's lots of great people on this site who have great advice, recommendations and shoulders to lean on. Take care.....(((hugs))) Roxie

      Double Spinal Cord Stimulator surgery 8/09
      Unsuccessful MiniArc sling surgery 12/07
      Dx'd Hypothyroid
      Dx'd Chronic Axonal Neuropathy & Myopathy
      June 2007
      Dx'd IC May 2006 (after suffering for 25+ yrs!)
      First Cysto 1979
      First Hydro 1981 (Many treatments since then!)
      Collagin"Durasphere" injections for urethra
      Gall bladder surgery Aug. 2004
      Gastric Bypass Dec. 2004
      Dx'd: Barrett's Esphogus July 2004
      Dx'd: Vaginal Atrophy 2005
      Bladder surgery 2000
      Dx'd: IBS 2000
      Hysterectomy (fibroids) 1999
      Laminectomy 1989
      Dx'd: Degerative Disk Disorder 1989

      For IC I use Elmiron, Elavil and Freeze dried Aloe Vera (it works likes Elmiron, but naturally)and Azo as needed. I also take Zegerid, Randitine for Barrett's Esophagus. (which causes me to have constant yeast infections!)I take Cymbalta for Neuopathy/Myopathy pain. I use the Climara patch for menopause symptoms. I'm on a very strict diet because of the IC, IBS and Gastric Bypass. I take Primal Defense Probiotics and whole food Iron.
      I no longer have the awful urethral pain! I've been using MSM gel now for 4 mo. and haven't had a flare up or the urethra's amazing stuff!!:woohoo:


      • #4
        I am so sorry that you feel so tired. I know the feeling myself. I told myself today that I can't take it too much longer. I'm going to a therapist tomorrow to see what we can do to get me thinking right. It's hard to think that things will get better when you feel so bad.
        I do depend on prayer. I love what St. John the Baptist says, because it helps me to know where my strength comes from. It is similar to what St. Paul says too, "I must decrease, he must increase. In weakness, we reach perfection." At times when we have to depend the most on God are the times that we are really the strongest because it is his strength and not ours. That's when I just try to stop fighting and let God comfort me. Fighting it makes me more tired.
        Be at peace, my friend.


        • #5
          'The will of God will never take you where the Grace of God will not protect you.'