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How much has IC messed with your mind?
Please take the poll.
Please take the poll.
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35not at all?14.29%5Just a Bit?8.57%3somewhat loony?25.71%9hearding for the edge?28.57%10Totally lost it?22.86%8The poll is expired.
Blessed Be!!
There is more to life than fighting IC!!! -
Good Morning! Loved the poll! Sounds like most of us here are totally messed up with IC......I know I am! Roxie
Double Spinal Cord Stimulator surgery 8/09
Unsuccessful MiniArc sling surgery 12/07
Dx'd Hypothyroid
Dx'd Chronic Axonal Neuropathy & Myopathy
June 2007
Dx'd IC May 2006 (after suffering for 25+ yrs!)
First Cysto 1979
First Hydro 1981 (Many treatments since then!)
Collagin"Durasphere" injections for urethra
Gall bladder surgery Aug. 2004
Gastric Bypass Dec. 2004
Dx'd: Barrett's Esphogus July 2004
Dx'd: Vaginal Atrophy 2005
Bladder surgery 2000
Dx'd: IBS 2000
Hysterectomy (fibroids) 1999
Laminectomy 1989
Dx'd: Degerative Disk Disorder 1989
For IC I use Elmiron, Elavil and Freeze dried Aloe Vera (it works likes Elmiron, but naturally)and Azo as needed. I also take Zegerid, Randitine for Barrett's Esophagus. (which causes me to have constant yeast infections!)I take Cymbalta for Neuopathy/Myopathy pain. I use the Climara patch for menopause symptoms. I'm on a very strict diet because of the IC, IBS and Gastric Bypass. I take Primal Defense Probiotics and whole food Iron.
I no longer have the awful urethral pain! I've been using MSM gel now for 4 mo. and haven't had a flare up or the urethra pain.....it's amazing stuff!!:woohoo: -
I've totally lost it, but I think I might be on the verge of finding it again.
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I def feel like I'm heading for the edge.
Christine
I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
I have tried every oral medication as well as rescue instills and DMSO.
I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)
Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
Also proud mom to the best Bullmastiff on earth, Claus
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Every now and then I think I have found it....but then it slips out of my hand and rolls in the couch and collects dust rabbits ( to big to be bunnies). I meant to say headed not heard...I am sure you know what I was trying to say.
JOYBlessed Be!!
There is more to life than fighting IC!!!Comment
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Joy, I thought I was the only one with dust bunnies. Maybe mine could come over to your place and play with yours?
Yupe, I am completly gone. When you start having a second "person" in your mind you pretty much have gone to the loonie side of life. Then it is the only friend I have where I live so at least I am not totally alone and it goes every where I want to go.
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You just got me giggling at 3:30 in the morning, LOL!Originally posted by waterflow View PostJoy, I thought I was the only one with dust bunnies. Maybe mine could come over to your place and play with yours? Yupe, I am completly gone. When you start having a second "person" in your mind you pretty much have gone to the loonie side of life. Then it is the only friend I have where I live so at least I am not totally alone and it goes every where I want to go.
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3:30 in the morning?
Why are you up so early? I only got up that early a few times and that was so I could go to auctions way far away. Gee, I thought getting up at 7:00 am today was bad. 
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3:00am sounds more like bed time for me. LOL As far a the other person in your head and dust bunnies I will send mine to your house for a play date anytime. And theat other person...I have a whole party oning on in mine 
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JOYBlessed Be!!
There is more to life than fighting IC!!!Comment
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I got the trump card, guys... I'm bipolar
But yeah, I think IC makes everyone a little loony. You'd be abnormal if you weren't mentally affected by it.
Chronic conditions: IC, bipolar disorder, Lown-Ganong-Levine syndrome, Raynaud's disease, bile reflux, scoliosis
Current IC treatments: menstrual suppression
Daily treatments for other conditions: Neurontin, Zyprexa, Cymbalta, Modafinil
As-needed treatments for other conditions: Klonopin, Ambien
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Green the Fish, we are mentally affected by this. I never thought of it that way but does make a lot of sense. By the way. How did you come up with your name if it is ok to ask?Comment
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Pain and Stress cause a huge amount of damage if not handlled in a timely matter, and for those of us that have pain that isn't controlled... we suffer tremendously, not just physically, but mentally as well.Blessed Be!!
There is more to life than fighting IC!!!Comment
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Joy, dust bunnie play dates. This weekend my house next weekend yours. Maybe we can get a dust bunnie support group meeting going too. 
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Group therapy!!!
Thanks for the laugh.
JOYBlessed Be!!
There is more to life than fighting IC!!!Comment
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I'm not exactly sure how I came up with my name. Green has always been one of my favorite colors; I associate myself with it. I remember when I had green streaks in my hair, and later, green tips, I felt the color was pretty "me." I rememebr I used to go by the name Goldfish on a few websites, since I'm a fan of the Goldfish snack crackers. I also hapen to have a pin with a green fish on it. Fish is one of my favorite foods, too. So, I just kind of put together the things that I associate with my personality.
Chronic conditions: IC, bipolar disorder, Lown-Ganong-Levine syndrome, Raynaud's disease, bile reflux, scoliosis
Current IC treatments: menstrual suppression
Daily treatments for other conditions: Neurontin, Zyprexa, Cymbalta, Modafinil
As-needed treatments for other conditions: Klonopin, Ambien
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