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  • #1

    therapist knows about IC and bladder removal!

    I decided I needed to see a therapist. There is just too much going on in my life. I am contemplating the cystectomy, I'm moving, I'm changing jobs, I just lost my sister, not to mention the ordinary stresses of my job.
    I had asked this gentleman about helping with some children in school who were having trouble with sexual orientation and cutting. He is a member of my church. His wife is a therpist working with one of the students in my school. I thought he seemed very kind. He is!
    I was listing my stresses and he shook his head very knowingly about IC and then the cystectomy. He had a patient who had both. Actually - a man with IC. Anyway, I think this is going to be a very productive session with him. I think I will be able to do some good work with him.
    What a surprise when someone doesn't say, "What's that?"
    I go again Tuesday.
    Tags: None
    • #2
      That's so good to hear.

      Warm hugs,
      Donna
      Stay safe


      Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
      Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

      Have you checked the ICN Shop?
      Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

      Patient Help: http://www.ic-network.com/patientlinks.html

      Sub-types https://www.ic-network.com/five-pote...markably-well/

      Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

      AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

      I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.       [3MG]

      Anyone who says something is foolproof hasn't met a determined fool

        Comment

        • #3
          Wonderful news
          ****
          Jen

          *Diagnosed with severe IC in 2004
          *Also diagnosed with PFD, fibromyalgia, chronic myofascial pain, IBS, migraines, allergies/asthma, dermatographism
          *Kept trying a million different treatments for all these things until I found what works, and I am doing okay these days with the help of a cocktail of medications and the InterStim, which was first placed in 2007. [I have had 2 revisions - one in 2010 when my battery died and had to be replaced, and one complete replacement (lead and generator) in 2012 after a fall on my stairs caused my lead to move.]
          *Current meds include Atarax (50mg at night), Lyrica (150mg twice a day), Xanax (0.5mg at night and as needed), Zanaflex (4mg at night), hydrocodone (10/325, every 6 hours as needed), Advair, Nasonex, Singulair (10mg at night), oral contraceptives, home instills containing Elmiron and Marcaine (as often as I need to do them).

          **I am not a medical authority nor do I offer definitive medical advice. I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

            Comment

            • #4
              Serendipitous. I love when stuff like that happens. Yay, you.
              Kim

              Diagnosed August 2001

              Current IC meds: Elmiron (since 2001), Levaquin (one pill after intercourse to prevent UTIs), Effexor (for depression & anxiety)

              Past IC meds: Amitriptyline (Elavil), Hydroxyzine (Vistaril), Detrol LA, Lexapro (for depression & anxiety, but also helped my IC) (They all helped, but I was able to discontinue them.)

              I've been virtually symptom free and able to eat & drink whatever I'd like for about 8 years now.

              *****************************

              “We who lived in concentration camps can remember the men who walked through the huts comforting others, giving away their last piece of bread. They may have been few in number, but they offer sufficient proof that everything can be taken from a man but one thing: the last of the human freedoms -- to choose one's attitude in any given set of circumstances, to choose one's own way.” ~ Viktor Frankl

              “You cannot control what happens to you, but you can control your attitude toward what happens to you, and in that, you will be mastering change rather than allowing it to master you.” ~ Brian Tracy

                Comment

                • #5
                  That is the best news! My therapist actually has IC herself, and it's so much easier to talk with her because I don't have to explain things over and over. Like you, I had no idea before I went to see her that she was an IC patient too. She has been in remission for 14 years, so that also gives me hope.

                  Good luck to you, it sounds like you've found a perfect place to be. Like VM said, it's serendipity. (I had to look that word up in my French/English dictionary and it turns out, there is no such word in French. LOL It just gives the French words, "Happy and unexpected discovery." What a wonderful word, I'm glad to have discovered it. Thanks, VM. Does this count as a serendipitous moment?)
                  Last edited by Berkshire Road; 03-24-2007, 09:52 AM.
                  Je vous souhaite de la joie, de la bonne santée, et tout ce qu'il y a de bon dans la vie.
                  Wishing you happiness and good health, and all the best out of life.

                  Peace, Carolyn
                  ___________________________________________________

                  Laura (11), Susannah (12 1/2) and Maman (that's me!), North Wildwood NJ, September 2007


                  On the Beach with IC

                    Comment

                    • #6
                      I am glad to hear this. I am sure it is nice to have someone actually sit there and listen to you. And to not look at you like you have some strange weird thing going on. I hope he helps and you are able to straighten some things up...
                      God grant me the serinity to withstand the days ahead!!!

                      My myspace link...
                      www.myspace.com/patricia_luvs_matt

                      Patricia

                      In Memory of My Father (Lawerence) 1/25/2007

                      Procedures:
                      Interstim Sept 2001
                      1st InterStim Removal May 2005
                      2nd Interstim Implanted May 2005
                      2nd InterStim Removed March 2007
                      Hysterectomy 1999
                      Tubes Tied 1997
                      C-Section 1996

                      Me and my kids


                      Taylor (my daughter) Me and my daughter My son Cody and Taylor

                        Comment

                        • #7
                          LOL N'importe. It is one of my favorite words - I love when the opportunity arises to actually use it.
                          Kim

                          Diagnosed August 2001

                          Current IC meds: Elmiron (since 2001), Levaquin (one pill after intercourse to prevent UTIs), Effexor (for depression & anxiety)

                          Past IC meds: Amitriptyline (Elavil), Hydroxyzine (Vistaril), Detrol LA, Lexapro (for depression & anxiety, but also helped my IC) (They all helped, but I was able to discontinue them.)

                          I've been virtually symptom free and able to eat & drink whatever I'd like for about 8 years now.

                          *****************************

                          “We who lived in concentration camps can remember the men who walked through the huts comforting others, giving away their last piece of bread. They may have been few in number, but they offer sufficient proof that everything can be taken from a man but one thing: the last of the human freedoms -- to choose one's attitude in any given set of circumstances, to choose one's own way.” ~ Viktor Frankl

                          “You cannot control what happens to you, but you can control your attitude toward what happens to you, and in that, you will be mastering change rather than allowing it to master you.” ~ Brian Tracy

                            Comment

                            • #8
                              Hey, I just found this - never knew:

                              Serendipity is the effect by which one accidentally discovers something fortunate, especially while looking for something else entirely. The word derives from an old Persian fairy tale and was coined by Horace Walpole on 28 January 1754 in a letter he wrote to his friend Horace Mann (not the same man as the famed American educator) an Englishman then living in Florence. The letter read,

                              "I once read a silly fairy tale, called The Three Princes of Serendip: as their highnesses travelled, they were always making discoveries, by accidents and sagacity, of things which they were not in quest of: for instance, one of them discovered that a mule blind of the right eye had travelled the same road lately, because the grass was eaten only on the left side, where it was worse than on the right—now do you understand serendipity? One of the most remarkable instances of this accidental sagacity (for you must observe that no discovery of a thing you are looking for, comes under this description) was of my Lord Shaftsbury, who happening to dine at Lord Chancellor Clarendon's, found out the marriage of the Duke of York and Mrs. Hyde, by the respect with which her mother treated her at table."[1]

                              http://en.wikipedia.org/wiki/Serendipity
                              Kim

                              Diagnosed August 2001

                              Current IC meds: Elmiron (since 2001), Levaquin (one pill after intercourse to prevent UTIs), Effexor (for depression & anxiety)

                              Past IC meds: Amitriptyline (Elavil), Hydroxyzine (Vistaril), Detrol LA, Lexapro (for depression & anxiety, but also helped my IC) (They all helped, but I was able to discontinue them.)

                              I've been virtually symptom free and able to eat & drink whatever I'd like for about 8 years now.

                              *****************************

                              “We who lived in concentration camps can remember the men who walked through the huts comforting others, giving away their last piece of bread. They may have been few in number, but they offer sufficient proof that everything can be taken from a man but one thing: the last of the human freedoms -- to choose one's attitude in any given set of circumstances, to choose one's own way.” ~ Viktor Frankl

                              “You cannot control what happens to you, but you can control your attitude toward what happens to you, and in that, you will be mastering change rather than allowing it to master you.” ~ Brian Tracy

                                Comment

                                • #9
                                  Wow, thanks Kim! I love word derivations; I studied linguistics as an undergraduate (in the U.S.). I think serendipity will be one of my favorite words now too. Now, sagacity, I knew that one...

                                  But who were the Duke of York and Mrs. Hyde?
                                  Je vous souhaite de la joie, de la bonne santée, et tout ce qu'il y a de bon dans la vie.
                                  Wishing you happiness and good health, and all the best out of life.

                                  Peace, Carolyn
                                  ___________________________________________________

                                  Laura (11), Susannah (12 1/2) and Maman (that's me!), North Wildwood NJ, September 2007


                                  On the Beach with IC

                                    Comment

                                    • #10
                                      That's so encouraging!

                                      Good luck with your decisions. If you need any help with the Cystectomy just holler or PM me!

                                      Kara
                                      Complex Case: Severe IC 1999, Interstim 2001, Endometriosis 2001, End Stage Refractory IC 2002, Bladder Removal (Cystectomy) 2002, Gall Bladder Removal 2005, Infertility 2003, Urethra Removal, Bladder Reconstruction (Urethrectomy/Indiana Pouch) 2006, Celiac Disease 2007, Adhesion Disease 2007, Pudendal Nerve Entrapment, Ovarian Cysts, Vestibulitis, Vulvodynia, Total Vestibulectomy and removal of both Skene's Glands, 2007 and Coccydynia 2007. Fibromyalgia and, Chronic Myofascial Pain Syndrome both in my neck and knees, 2007, PNE Decompression Operation May, 2009.Multiple Chemical Sensitivities, Anesthesia Awareness (to awaken during operations)Pudendal Nerve Decompression Surgery, Revrse Uterine Sling, Sept. 2011

                                      "One hour at a time, this was NOT my American Dream but it has to work out somehow."

                                      I also have some journals of my journeys, past and some present at:
                                      http://karasnewblog2008.blogspot.com/ and http://icnkaralynn.blogspot.com/

                                      Most of my Journaling now is currently on Facebook. These are old and my ICN Patient story is very old and outdated.

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                                        • #11
                                          That is great, I hope you continue to get good help.

                                          Sending hugs, Trishann

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                                            • #12
                                              That is wonderful news!
                                              mom_in_ma

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                                                • #13
                                                  I AM VERY HAPPY FOR YOU
                                                  NEW YORK YANKEES ROCK THE HOUSE. 26 WORLD SERIES CHAMPIONSHIPS, THE MOST EVER\

                                                  GO YANKEES                                                   :woohoo: :woohoo:

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                                                    • #14
                                                      Love your willingness to ask for help!!! I agree... it's definitely serendipity!

                                                      Jill
                                                      Would you like to talk with someone about your IC struggles? The ICN now offers personal coaching sessions that include myself, Julie Beyer RD on the diet and Dr. Heather Howard on Sexuality. http://www.icnsales.com/icn-personal-coaching/

                                                      Looking for books, magazines & reports on IC? Please visit the ICN Shop at: http://www.icnsales.com: Your ICN subscription & purchases in our shop support these message boards, chats and special events. BECOME AN ICN ANGEL TODAY!

                                                      Please remember that the information on the ICN is provided with the understanding that ICN, its founder, staff, volunteers, and participants are not engaged in rendering medical or professional medical services. We cannot and do not give medical advice. Only your personal physician can do this for you.






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