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  • #1

    Anxiety is getting the best of me....

    Agh...this flare is taking so much out of me.

    My ic came back after I was in a full-fledge remission and all of the old anxiety and fear came crashing back with it! I'm exhausted, I'm angry, I'm feeling nausea from the elmiron, and I'm trying really hard not to isolate myself from the world (which is really what I feel like doing!).

    I miss my remission!

    Thanks for letting me vent.
    mom_in_ma
    Tags: None
  • #2
    HI Mom in Ma.........SO sorry to hear you are back in the IC game. How dreadful!! I hope you can get a handle on it again. I can imagine you are totally depressed and just plain mad! I would be too. I'm sure remission was great.....while it lasted. I guess this just shows the rest of those who are in remission that they need to stay on the diet.......stay on Elmiron.......just in case!
    I vent often......so don't feel bad about it. It's better to get it off your chest than bottle it up...cause that just makes flares worse! I wish you luck with all this......I know it's rough! Take care....Roxie

    Double Spinal Cord Stimulator surgery 8/09
    Unsuccessful MiniArc sling surgery 12/07
    Dx'd Hypothyroid
    Dx'd Chronic Axonal Neuropathy & Myopathy
    June 2007
    Dx'd IC May 2006 (after suffering for 25+ yrs!)
    First Cysto 1979
    First Hydro 1981 (Many treatments since then!)
    Collagin"Durasphere" injections for urethra
    Gall bladder surgery Aug. 2004
    Gastric Bypass Dec. 2004
    Dx'd: Barrett's Esphogus July 2004
    Dx'd: Vaginal Atrophy 2005
    Bladder surgery 2000
    Dx'd: IBS 2000
    Hysterectomy (fibroids) 1999
    Laminectomy 1989
    Dx'd: Degerative Disk Disorder 1989

    For IC I use Elmiron, Elavil and Freeze dried Aloe Vera (it works likes Elmiron, but naturally)and Azo as needed. I also take Zegerid, Randitine for Barrett's Esophagus. (which causes me to have constant yeast infections!)I take Cymbalta for Neuopathy/Myopathy pain. I use the Climara patch for menopause symptoms. I'm on a very strict diet because of the IC, IBS and Gastric Bypass. I take Primal Defense Probiotics and whole food Iron.
    I no longer have the awful urethral pain! I've been using MSM gel now for 4 mo. and haven't had a flare up or the urethra pain.....it's amazing stuff!!:woohoo:

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    • #3
      Just remember that you have had a remission before --- and you will again. Hang tough!

      Donna
      Stay safe


      Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
      Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

      Have you checked the ICN Shop?
      Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

      Patient Help: http://www.ic-network.com/patientlinks.html

      Sub-types https://www.ic-network.com/five-pote...markably-well/

      Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

      AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

      I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.       [3MG]

      Anyone who says something is foolproof hasn't met a determined fool

      Comment

      • #4
        Hi Robin,

        It's a terribly helpless feeling isn't it? This disease requires so much maintenance, and if you don't have great reserves to begin with, it can be devastating.

        Hang in there, I know that isn't much, but for me it helps to know how many thousands of others are on the same road I am on, just at different places.

        Take care,
        Moonheart
        http://www.TheCraftyEwe.etsy.com

        Comment

        • #5
          Thanks....http://www.icnshop.com/

          Thanks. My fear and anxiety are coming are happening because my 'typical meds' that worked before aren't working. I'm having to more forward in the med process and that scares me!
          ICNDonna
          ICNDonna
          ICN Staff
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          Last edited by ICNDonna; 03-29-2007, 03:14 AM. Reason: Profanity
          mom_in_ma

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          • #6
            I'd gone off my Detro and Ditropan when I had my gastric bypass surgery......then tried to get back on them afterwards.......I had a terrible time and never could get back on the Detrol. It gave me terrible frequency and pain. Now I use the Ditropan patch called Oxytrol. It was the only way I could use Ditropan now.....crazy how the body changes over time and won't react the same to certain meds!

            Double Spinal Cord Stimulator surgery 8/09
            Unsuccessful MiniArc sling surgery 12/07
            Dx'd Hypothyroid
            Dx'd Chronic Axonal Neuropathy & Myopathy
            June 2007
            Dx'd IC May 2006 (after suffering for 25+ yrs!)
            First Cysto 1979
            First Hydro 1981 (Many treatments since then!)
            Collagin"Durasphere" injections for urethra
            Gall bladder surgery Aug. 2004
            Gastric Bypass Dec. 2004
            Dx'd: Barrett's Esphogus July 2004
            Dx'd: Vaginal Atrophy 2005
            Bladder surgery 2000
            Dx'd: IBS 2000
            Hysterectomy (fibroids) 1999
            Laminectomy 1989
            Dx'd: Degerative Disk Disorder 1989

            For IC I use Elmiron, Elavil and Freeze dried Aloe Vera (it works likes Elmiron, but naturally)and Azo as needed. I also take Zegerid, Randitine for Barrett's Esophagus. (which causes me to have constant yeast infections!)I take Cymbalta for Neuopathy/Myopathy pain. I use the Climara patch for menopause symptoms. I'm on a very strict diet because of the IC, IBS and Gastric Bypass. I take Primal Defense Probiotics and whole food Iron.
            I no longer have the awful urethral pain! I've been using MSM gel now for 4 mo. and haven't had a flare up or the urethra pain.....it's amazing stuff!!:woohoo:

            Comment

            • #7
              Hi MOM IN MA. I am also a mom in ma and also totally anxious at the moment. I had almost 12 years of remission and then the bladder bomb dropped in Feb. I have been having some okay days but whenever I feel a new twinge, a change in symptoms or any frequency I get very anixious. I try to talk myself through it and say this will pass. It is so hard to do. Where in MA are you? Send me a private message if you like. Hang in there!

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