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  • so depressed

    dear friends,

    Today I feel very upset and depressed. My bladder is being bad. My colon is acting up. My thrush on my tongue taste sweet and drives me crazy. My constipation and hemmrroids hurt. I am tired of fighting this thing. We are now looking for toxicity in my system. This isn't just IBS, IC, Celiac, And systematic yeast. I have been eating the same dinner for almost 2 months since my food intolerances have gone up the roof. I now weigh 100 pounds and counting. The only thing that gets me through the day is prayer. I wish even sometimes that It was just IC I am dealing with but it's not. My naturopath is looking for mercury toxicity since I have 9 almagan filling that are leaking real bad. I don't know though. I wonder if this caused damage to the bladder and colon and is inflamming the tissue which mercury does that. It is so hard girls because now I feel I am living day to day and one day I will not wake up. I am so fraile and scared please anyone out their with a lot of faith pray for me as I pray for you all the time. I am really, really, scared.
    My heart pounds fast and I have low blood pressure but the docs don't listen or want to do anything for me. I am seeking guidance from a naturopath now and she is helping me out with this. I pray to god that this is mercury so we can start detoxing my body and healing my bladder and intestines and teeth. Sorry I am placing my depression on you but sometimes I need to let this out.
    LOve
    lisa marie gonzales
    not yet dx with ic-diagnosing myself as of aug 2006
    diagnosed ic-october 5 2006(huh just what I thought)

    Charcoal
    cod liver oil (for vitamins a and d)
    bladder is not getting worse but maybe better
    diagnosed ibs-september 27, 2006
    don't know if it's ibs or some other underlining condition. hair loss, weight loss, constipation
    all this even though I eat.
    Mercury toxicity with Candida Albicans
    Realy toxic and sick
    Dental almagams removal and chelation for heavy metal toxins and candida cleansing as soon as fillings are out
    had catscan, ultrasound, colonoscopy
    Matthew 21 verse 22: jesus quotes"and all the things you ask in prayer, having faith, you will receive."

    I eat to live, not live to eat.

  • #2


    Donna
    Stay safe


    Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
    Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

    Have you checked the ICN Shop?
    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

    Patient Help: http://www.ic-network.com/patientlinks.html

    Sub-types https://www.ic-network.com/five-pote...markably-well/

    Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

    AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
    [3MG]

    Anyone who says something is foolproof hasn't met a determined fool

    Comment


    • #3
      HI Lisa,

      I am so SORRY to hear that you are feeling so bad! If you want to PM me, you can. When is your next appt. in Fresno? May be we could meet at a park or have a short visit some place. Let me know. I will pray for you. Take care, don't give up! Maybe you will find some relief soon! warmest regards, Mare

      Comment


      • #4
        HI Lisa, Gosh that's just the pits! I feel for you and all you are going through! Life with IC and all the baggage it brings with it is just awful and no one realizes it till they've lived it!
        I will keep you in my thoughts and prayers girl, don't give up and be strong....(((HUGS))) Roxie

        Double Spinal Cord Stimulator surgery 8/09
        Unsuccessful MiniArc sling surgery 12/07
        Dx'd Hypothyroid
        Dx'd Chronic Axonal Neuropathy & Myopathy
        June 2007
        Dx'd IC May 2006 (after suffering for 25+ yrs!)
        First Cysto 1979
        First Hydro 1981 (Many treatments since then!)
        Collagin"Durasphere" injections for urethra
        Gall bladder surgery Aug. 2004
        Gastric Bypass Dec. 2004
        Dx'd: Barrett's Esphogus July 2004
        Dx'd: Vaginal Atrophy 2005
        Bladder surgery 2000
        Dx'd: IBS 2000
        Hysterectomy (fibroids) 1999
        Laminectomy 1989
        Dx'd: Degerative Disk Disorder 1989

        For IC I use Elmiron, Elavil and Freeze dried Aloe Vera (it works likes Elmiron, but naturally)and Azo as needed. I also take Zegerid, Randitine for Barrett's Esophagus. (which causes me to have constant yeast infections!)I take Cymbalta for Neuopathy/Myopathy pain. I use the Climara patch for menopause symptoms. I'm on a very strict diet because of the IC, IBS and Gastric Bypass. I take Primal Defense Probiotics and whole food Iron.
        I no longer have the awful urethral pain! I've been using MSM gel now for 4 mo. and haven't had a flare up or the urethra pain.....it's amazing stuff!!:woohoo:

        Comment


        • #5
          all we need is love!!!

          O.k. the intensive feel better and smile kit contains!An yay for angels indeed they so beautifully.. so that should be nice to have with you! Right here! and .. for you too... can't forget the greeting.. perhaps? maybe say hi to this one here ..Ooo..tee hee a a to help flush away all the and and if only for this one single moment! Lets all be grateful we aren't this one over here. I mean at least we do things so that we will feel better. This smiley man over here.. is seemingly content with hitting himself over and over again in the head!!! ..
          All the best in the world I am sending to you... warmest regards... your friends here.. are walking with you.. every step of the way. So at least we can say.. that we are never alone.. ya know? PLUR... for all forever!
          Love is a fruit in season at all times, within reach of every hand. ~ The Blessed Mother Teresa

          Status: Diagnosed October 2006 via cystoscopy with hydrodistention. Max anesthetized bladder capacity only 250 cc's. Mast cells and pinpoint bleeding found.

          Remission for me means less pain for more days than not. Frequency is inevitable with a bladder this tiny! That is ok though. The difference between when I was diagnosed and now, is that I have embraced that fact. Me and the loo, we are one.

          Comment


          • #6
            Oh Lisa, I'm so sorry that you are feeling so horrible. It really wears us down to feel so horrible day after day. Somedays I feel like I can't go on and all I know I have is IC and endo, I don't have the other problems that you do. I hope that you figure out if it is mercury poision and get it taken care of. We are all here for you so don't ever feel sorry for coming to us.
            Christine



            I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
            1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
            2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
            I have tried every oral medication as well as rescue instills and DMSO.

            I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

            Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
            Also proud mom to the best Bullmastiff on earth, Claus

            Comment


            • #7
              I can really RELATE with you, I"ve been eating the same dinner for several months (and its my only meal each day) and I'm wasting away too. It scares me...I weigh about 105 lbs and I'm 5'8, so people are CONSTANTLY saying something about my weight or telling me I look anorexic, but I feel SO BAD, the pain is out of control, and my depression over the IC is at an all time HIGH, but I've realized that I can't go down without a fight and I have to EAT. Even though I don't want to eat much and even though it hurts...I can't let myself die.

              Seriously, PLEASE contact a nutritionist that can work with you. With low blood pressure, you are running a risk of electrolyte imbalances and that can KILL you. There are dangers to not eating and not eating is not the answer.

              Last night, I took a big step and ate something that I don't normally eat, my pain is up this morning, but atleast I ate.

              I think I'm more sensitive to foods/drinks, so the IC diet is far more complicated for me, but I can't let the IC starve me to death. I realize that, and PLEASE don't let it kill you.

              You start running all sorts of medical risks when your BMI (Body mass index) gets under 17. How tall are you? I'm worried about you, too. Don't let the IC make you emaciated.....its not the answer. I still have pain regardless if I eat or not, so I might as well eat more, ya know?

              PM me anytime.

              Lots of love and prayers,
              Kara
              Hugs and Wishes for Pain FREE days!!,
              Kara


              www.loveforearth.net ~reducing plastic waste one bag at a time~

              Facebook: Kara Kaiser
              Twitter: Love4Earth

              Me and my Guccigirl... she helps me through those painful hours!

              Comment


              • #8
                So sorry you are dealing with all this - I am sure it is completely exhausting.
                Kim

                Diagnosed August 2001

                Current IC meds: Elmiron (since 2001), Levaquin (one pill after intercourse to prevent UTIs), Effexor (for depression & anxiety)


                Past IC meds: Amitriptyline (Elavil), Hydroxyzine (Vistaril), Detrol LA, Lexapro (for depression & anxiety, but also helped my IC) (They all helped, but I was able to discontinue them.)

                I've been virtually symptom free and able to eat & drink whatever I'd like for about 8 years now.

                *****************************

                “We who lived in concentration camps can remember the men who walked through the huts comforting others, giving away their last piece of bread. They may have been few in number, but they offer sufficient proof that everything can be taken from a man but one thing: the last of the human freedoms -- to choose one's attitude in any given set of circumstances, to choose one's own way.” ~ Viktor Frankl

                “You cannot control what happens to you, but you can control your attitude toward what happens to you, and in that, you will be mastering change rather than allowing it to master you.” ~ Brian Tracy

                Comment


                • #9
                  Thank you everyone for your sweet words. You made me tear up. Kara I do want to eat but it's not the IC that bothers me it is the bowels that clench up and it's the constipation. If it was just IC of course I would eat a lot more. My height is about 5'4" and 100 pounds. THe last time I went to the doctors my pressure was 67 over 48 so I really don't know how low that is. And if It is low why don't they tell me. They just say that I am anorexic to and I'm not. I just have so many food intolerances with my gut that I don't know what to eat not more. So my only solution is lots and lots of prayer.
                  lisa
                  not yet dx with ic-diagnosing myself as of aug 2006
                  diagnosed ic-october 5 2006(huh just what I thought)

                  Charcoal
                  cod liver oil (for vitamins a and d)
                  bladder is not getting worse but maybe better
                  diagnosed ibs-september 27, 2006
                  don't know if it's ibs or some other underlining condition. hair loss, weight loss, constipation
                  all this even though I eat.
                  Mercury toxicity with Candida Albicans
                  Realy toxic and sick
                  Dental almagams removal and chelation for heavy metal toxins and candida cleansing as soon as fillings are out
                  had catscan, ultrasound, colonoscopy
                  Matthew 21 verse 22: jesus quotes"and all the things you ask in prayer, having faith, you will receive."

                  I eat to live, not live to eat.

                  Comment


                  • #10
                    That is an EXTREMELY low blood pressure. I'm surprised they didn't have you hospitalized. Oh, Lisa, you have always been so strong in your faith, please don't give up now!
                    Je vous souhaite de la joie, de la bonne santée, et tout ce qu'il y a de bon dans la vie.
                    Wishing you happiness and good health, and all the best out of life.

                    Peace, Carolyn
                    ___________________________________________________

                    Laura (11), Susannah (12 1/2) and Maman (that's me!), North Wildwood NJ, September 2007


                    On the Beach with IC

                    Comment


                    • #11
                      "Never Give Up."

                      To view pictures of my creative interests and Maine Coon kittens click here: http://www.flickr.com/photos/[email protected]/

                      My Photobucket Link:
                      http://s237.photobucket.com/albums/f...ramack_photos/

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