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  • sandramac
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  • Berkshire Road
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    That is an EXTREMELY low blood pressure. I'm surprised they didn't have you hospitalized. Oh, Lisa, you have always been so strong in your faith, please don't give up now!

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  • tabasco32
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    Thank you everyone for your sweet words. You made me tear up. Kara I do want to eat but it's not the IC that bothers me it is the bowels that clench up and it's the constipation. If it was just IC of course I would eat a lot more. My height is about 5'4" and 100 pounds. THe last time I went to the doctors my pressure was 67 over 48 so I really don't know how low that is. And if It is low why don't they tell me. They just say that I am anorexic to and I'm not. I just have so many food intolerances with my gut that I don't know what to eat not more. So my only solution is lots and lots of prayer.
    lisa

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  • vm
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    So sorry you are dealing with all this - I am sure it is completely exhausting.

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  • Kara Isabel
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    I can really RELATE with you, I"ve been eating the same dinner for several months (and its my only meal each day) and I'm wasting away too. It scares me...I weigh about 105 lbs and I'm 5'8, so people are CONSTANTLY saying something about my weight or telling me I look anorexic, but I feel SO BAD, the pain is out of control, and my depression over the IC is at an all time HIGH, but I've realized that I can't go down without a fight and I have to EAT. Even though I don't want to eat much and even though it hurts...I can't let myself die.

    Seriously, PLEASE contact a nutritionist that can work with you. With low blood pressure, you are running a risk of electrolyte imbalances and that can KILL you. There are dangers to not eating and not eating is not the answer.

    Last night, I took a big step and ate something that I don't normally eat, my pain is up this morning, but atleast I ate.

    I think I'm more sensitive to foods/drinks, so the IC diet is far more complicated for me, but I can't let the IC starve me to death. I realize that, and PLEASE don't let it kill you.

    You start running all sorts of medical risks when your BMI (Body mass index) gets under 17. How tall are you? I'm worried about you, too. Don't let the IC make you emaciated.....its not the answer. I still have pain regardless if I eat or not, so I might as well eat more, ya know?

    PM me anytime.

    Lots of love and prayers,
    Kara

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  • GriffsMommy
    replied
    Oh Lisa, I'm so sorry that you are feeling so horrible. It really wears us down to feel so horrible day after day. Somedays I feel like I can't go on and all I know I have is IC and endo, I don't have the other problems that you do. I hope that you figure out if it is mercury poision and get it taken care of. We are all here for you so don't ever feel sorry for coming to us.

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  • ICKIRSTI
    replied
    all we need is love!!!

    O.k. the intensive feel better and smile kit contains!An yay for angels indeed they so beautifully.. so that should be nice to have with you! Right here! and .. for you too... can't forget the greeting.. perhaps? maybe say hi to this one here ..Ooo..tee hee a a to help flush away all the and and if only for this one single moment! Lets all be grateful we aren't this one over here. I mean at least we do things so that we will feel better. This smiley man over here.. is seemingly content with hitting himself over and over again in the head!!! ..
    All the best in the world I am sending to you... warmest regards... your friends here.. are walking with you.. every step of the way. So at least we can say.. that we are never alone.. ya know? PLUR... for all forever!

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  • Roxie2007
    replied
    HI Lisa, Gosh that's just the pits! I feel for you and all you are going through! Life with IC and all the baggage it brings with it is just awful and no one realizes it till they've lived it!
    I will keep you in my thoughts and prayers girl, don't give up and be strong....(((HUGS))) Roxie

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  • Mare
    replied
    HI Lisa,

    I am so SORRY to hear that you are feeling so bad! If you want to PM me, you can. When is your next appt. in Fresno? May be we could meet at a park or have a short visit some place. Let me know. I will pray for you. Take care, don't give up! Maybe you will find some relief soon! warmest regards, Mare

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  • ICNDonna
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    Donna

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  • tabasco32
    started a topic so depressed

    so depressed

    dear friends,

    Today I feel very upset and depressed. My bladder is being bad. My colon is acting up. My thrush on my tongue taste sweet and drives me crazy. My constipation and hemmrroids hurt. I am tired of fighting this thing. We are now looking for toxicity in my system. This isn't just IBS, IC, Celiac, And systematic yeast. I have been eating the same dinner for almost 2 months since my food intolerances have gone up the roof. I now weigh 100 pounds and counting. The only thing that gets me through the day is prayer. I wish even sometimes that It was just IC I am dealing with but it's not. My naturopath is looking for mercury toxicity since I have 9 almagan filling that are leaking real bad. I don't know though. I wonder if this caused damage to the bladder and colon and is inflamming the tissue which mercury does that. It is so hard girls because now I feel I am living day to day and one day I will not wake up. I am so fraile and scared please anyone out their with a lot of faith pray for me as I pray for you all the time. I am really, really, scared.
    My heart pounds fast and I have low blood pressure but the docs don't listen or want to do anything for me. I am seeking guidance from a naturopath now and she is helping me out with this. I pray to god that this is mercury so we can start detoxing my body and healing my bladder and intestines and teeth. Sorry I am placing my depression on you but sometimes I need to let this out.
    LOve
    lisa marie gonzales
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