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I've not been on lately because of my Mother the Weddings, and myself being so sick. To put it all over the edge.......
My Husband is very sick with a Prostate Infection. This has never happened before. I can't get his fever to drop. He's normally 97.6 and it's been 102.1 for two days now. He's not drinking, eating, or sleeping and out of work for the rest of the week at least. We may have to go to the hospital if the Cipro our primary prescribed for him doesn't start working. He's in so much pain. It's killing me to see him suffer the way I do. NONE OF US DESERVE IT. We are awaiting the culture results. You know how that goes!
I am also really upset about some treatment that my Pudendal Nerve Specialist wants me to do. Anyone that knows me, knows that I've climbed over the highest mountains to get myself some relief. I am just so stuck on this Pelvic Floor Therapy. Partly because I am in so much pain, I can't imagine being in more pain and I just don't feel right about this. One of my specialists telling me that he will NOT consider the Decompression Surgery for my PNE ONLY until I've done at least 3 months of aggressive Pelvic Floor Therapy. (3 times a week) I feel like a trapped animal because he won't help me unless I do it. It's been 5 years many, many Urologists in my local area and I still don't have a general urologist in my area let alone someone that even knows what pelvic floor therapy is. AND NO ONE knows what PNE is. I can't even touch myself down there..........I am speechless and very sad. My nerve blocks are done. They say that if you sit on your Pudendal Nerve when it is this damaged, that it will only become more damaged and virtually impossible to decompress. So I feel that the more time that passes, I could have done something about it already. My neck and tailbone are still on fire and we have no ideas as to what that is. I did go to a Neurologist but he seems clueless. He is having me do an MRI on the 21st of May that I will be put under general anesthesia for. I don't want to do it and feel that it is useless, but he may just find something. It bothers me that he can only do it on one part of my body (the neck) and not the tailbone as well, but we already know that the tailbone is not right because of the PNE.
My Sister's Quilt is done and Sharon's is just started. My Mom is in good spirits for what she is going through. It's been very emotional for her up to this point rather than pain and tiredness. Emotions are so exhausting.
I am having a really emotional night. I am worried to death about Allen and tired from running around.
I fully explained my reasons for not wanting to do it and he firmly put me in a place I feel I have no choice of now. In 9 years of doing therapy, medication teatments and procedures AND surgery, I've only turned away ONE of them!!!
I will go on but I am so tired and upset about not being able to have a say in my treatment plan. This was the ONE surgeon in the US that can actually do the surgery so I have to do what he tells me to do or he won't decompress me. Finding a Pelvic Floor Specialist to touch me in my local area for 3 months, 3 times a week, will be the hardest battle over all.
I guess I am just a BAD Patient all around.
Do people actually go into the hospital for being exhausted????
My Husband is very sick with a Prostate Infection. This has never happened before. I can't get his fever to drop. He's normally 97.6 and it's been 102.1 for two days now. He's not drinking, eating, or sleeping and out of work for the rest of the week at least. We may have to go to the hospital if the Cipro our primary prescribed for him doesn't start working. He's in so much pain. It's killing me to see him suffer the way I do. NONE OF US DESERVE IT. We are awaiting the culture results. You know how that goes!
I am also really upset about some treatment that my Pudendal Nerve Specialist wants me to do. Anyone that knows me, knows that I've climbed over the highest mountains to get myself some relief. I am just so stuck on this Pelvic Floor Therapy. Partly because I am in so much pain, I can't imagine being in more pain and I just don't feel right about this. One of my specialists telling me that he will NOT consider the Decompression Surgery for my PNE ONLY until I've done at least 3 months of aggressive Pelvic Floor Therapy. (3 times a week) I feel like a trapped animal because he won't help me unless I do it. It's been 5 years many, many Urologists in my local area and I still don't have a general urologist in my area let alone someone that even knows what pelvic floor therapy is. AND NO ONE knows what PNE is. I can't even touch myself down there..........I am speechless and very sad. My nerve blocks are done. They say that if you sit on your Pudendal Nerve when it is this damaged, that it will only become more damaged and virtually impossible to decompress. So I feel that the more time that passes, I could have done something about it already. My neck and tailbone are still on fire and we have no ideas as to what that is. I did go to a Neurologist but he seems clueless. He is having me do an MRI on the 21st of May that I will be put under general anesthesia for. I don't want to do it and feel that it is useless, but he may just find something. It bothers me that he can only do it on one part of my body (the neck) and not the tailbone as well, but we already know that the tailbone is not right because of the PNE.
My Sister's Quilt is done and Sharon's is just started. My Mom is in good spirits for what she is going through. It's been very emotional for her up to this point rather than pain and tiredness. Emotions are so exhausting.
I am having a really emotional night. I am worried to death about Allen and tired from running around.
I fully explained my reasons for not wanting to do it and he firmly put me in a place I feel I have no choice of now. In 9 years of doing therapy, medication teatments and procedures AND surgery, I've only turned away ONE of them!!!
I will go on but I am so tired and upset about not being able to have a say in my treatment plan. This was the ONE surgeon in the US that can actually do the surgery so I have to do what he tells me to do or he won't decompress me. Finding a Pelvic Floor Specialist to touch me in my local area for 3 months, 3 times a week, will be the hardest battle over all.
I guess I am just a BAD Patient all around.
Do people actually go into the hospital for being exhausted????
too!
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