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  • I am having a really depressing day..

    I know all you are thinking why I am having such a down day after all I did get the word out about my home.. But thats just it. I had not seen my house since they fixed it all up.. I tried to avoid going there because I miss it so much and I knew it would hurt! I have been crying most of the day trying to understand what I have did wrong in life to deserve all this..

    I know I should be grateful for what I have, but seeing what all I have lost again has brought up so many emotions.. I worked so hard for that house..I had it built the way I wanted it..I did have some money to put down on it before it was built, but that was only 10 thousand and that come from when the kids dad died..But I still had a 800 hundred dollar house note.. And I worked so hard to keep it...

    I know I am just rambling on but I just cant keep thinking of how unfair the system has been to me..I just want all this over so I can quit thinking of it and being so sad..

    Thanks for listening..
    Hugs
    Ronda

    ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!


    Link to Patient Handbook:
    http://www.ic-network.com/handbook/

    Diet Reference Sheet:
    http://www.ic-network.com/diet/icndi...tsheet0909.pdf

    Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

    Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

    Meds I have Tried:
    Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
    Lexapro< Bad reaction to this med!
    Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

    Dx With IC in Nov 2006 with Hydro/Cysto
    Hydro/Cysto Caused Bladder to Rupture.

    Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.



    ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

  • #2
    Sorry you're feeling down. ((hugs))
    Leah

    Comment


    • #3
      I can't even imagine what your going thru or the other 100's of people dealing with the same thing. The most I can do is to tell you to hang in there and life will get better. You have to have hope.

      So I read this back to myself to check for spelling errors and it sounds so stupid. All you want is answers and things to start happening. That part I understand. I'll hope the best for you.

      Comment


      • #4
        It was the house you built and you miss it. I don't blame you for feeling down. You never should have lost it to begin with. Lots of things are not fair. Sometimes I think the less a person has or owns the better off they are. Not sure what to say to help you get through this but just wanted to let you know I'm here.

        Comment


        • #5
          Thanks all of you..I am usually so strong and positive, but I just broke today.. I guess its ok to have down days...Thanks again for your support..
          Hugs
          Ronda

          ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!


          Link to Patient Handbook:
          http://www.ic-network.com/handbook/

          Diet Reference Sheet:
          http://www.ic-network.com/diet/icndi...tsheet0909.pdf

          Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

          Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

          Meds I have Tried:
          Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
          Lexapro< Bad reaction to this med!
          Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

          Dx With IC in Nov 2006 with Hydro/Cysto
          Hydro/Cysto Caused Bladder to Rupture.

          Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.



          ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

          Comment


          • #6
            (((((((((((((((Ronda))))))))))))))) So sorry that you're having a really bad day. You were there for me when I needed you so if there is anything I can do please let me know. We all have bad days. I'm so sorry about your house
            Christine



            I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
            1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
            2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
            I have tried every oral medication as well as rescue instills and DMSO.

            I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

            Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
            Also proud mom to the best Bullmastiff on earth, Claus

            Comment


            • #7

              Comment


              • #8
                Sorry you are having a rough day and I can't even imagine what you are going through but I hope things will start looking up for you.

                Sending hugs, Trishann

                Comment


                • #9
                  ((((HUGS))))) You are right, it's completely unfair, and it is a big loss. It was your home, built exactly how you wanted, and it's completely normal to miss it and feel very cheated. All this stress would be enough to make anyone break down and have terrible depression.

                  I hope tomorrow will be a better day.

                  Blessings,
                  Lori

                  Comment


                  • #10
                    leelee...I hope you are feeling better today. I know what you mean about losing something that your worked so hard for. It isn't fair and what happedned to you is wrong. Just plain wrong. Feel better, sweetie and know that there are many here who are pulling for you and hoping that things turn around very soon. (((hugs)))
                    Sharon

                    Shopping??? Did someone mention shopping? I'll get my hat... ;-)

                    Where I can be found most days.



                    Link to the ICN Patient Handbook:
                    http://www.ic-network.com/handbook/

                    Link to the IC Diet:
                    http://www.ic-network.com/diet/


                    IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

                    Comment


                    • #11
                      Thanks to all of you....
                      I do feel better today.. Heck I should I slept untill 10:30.. Its funny how being stressed can take all your energy out of you..I think I was upset to by the coment my sister made after seeing the video.. She said yea being on camera does make you look bigger another words calling me fat..I know I have gained over 20 pounds since elavil, but dang that hurt me...But shes like that she always kicks me when im down...

                      Oh well its a new day so I will be fine...I am just so glad I can come here and vent when needed..(((((hugs))))) to all of you...
                      Hugs
                      Ronda

                      ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!


                      Link to Patient Handbook:
                      http://www.ic-network.com/handbook/

                      Diet Reference Sheet:
                      http://www.ic-network.com/diet/icndi...tsheet0909.pdf

                      Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

                      Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

                      Meds I have Tried:
                      Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
                      Lexapro< Bad reaction to this med!
                      Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

                      Dx With IC in Nov 2006 with Hydro/Cysto
                      Hydro/Cysto Caused Bladder to Rupture.

                      Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.



                      ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

                      Comment


                      • #12
                        I think I know how you are feeling. I cant even drive by the exit to my old house without bursting in to tears. I avoid that area like the plague. It just kills me to go anywhere near there. I lived there for 23 years, it is the only place I have ever called home and I miss it so much. I really dont let myself even think about it often. If I do, I can trace every single step in my mind, the way it looked at all times of the day, etc.
                        I wish I knew what to say to make you feel better. I think your situation is even worse than mine b/c you lost your house in something that wasnt your fault. At least I sold mine.
                        I hope this gets easier. I cant imagine feeling this anguish for so long. I so hope you will find another house you are comfortable in!
                        Love sarah
                        Current meds; , effexor 37.5 mg 2 times a day, and lyrica 100 mg 3 times a day, lots of reading and snuggling with the pets!

                        Comment


                        • #13
                          Ronda,
                          I am so sorry you are down. I wish I could take it all away and make it all better for you. sending you great big fluffy hugs.
                          'The will of God will never take you where the Grace of God will not protect you.'

                          Comment


                          • #14
                            I'm glad you're feeling better today.

                            Sending gentle hugs,
                            Donna
                            Stay safe


                            Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
                            Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

                            Have you checked the ICN Shop?
                            Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

                            Patient Help: http://www.ic-network.com/patientlinks.html

                            Sub-types https://www.ic-network.com/five-pote...markably-well/

                            Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

                            AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

                            I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
                            [3MG]

                            Anyone who says something is foolproof hasn't met a determined fool

                            Comment


                            • #15
                              Me too - I am glad you are feeling better today!

                              But, I totally get how you feel - I can't even look at me and my mom's house we sold a few years ago (and it's on my way to just about anywhere I'd want to go, grrr), to help save the one I have now (long story, ex got behind on payments, I didn't know, blah blah blah), and it breaks my heart. It was a "forced selling", had to, or this one would be taken. And that just made us take pretty much the first bid that came along - it was lakefront property, on Lake Huron, and easily worth 140,000 - but the realtor was new (a cousin-in-law) and set it lower than it should have been (we didn't find that out til AFTER the sale, ugh), so we sold it for 92000, I believe. By the time all was said and done, we got a whopping 74000. We even had to pay for the "advertising fees" - the placemat things in restaurants, and it never even made it to them, it was sold before they were printed... I look back now and wished we'd have hung on to it a little bit longer, I know it's worth WAY more now than it was then, and that basically was my inheritance from my dad...Makes me nauseated to think on how it all happened and went down - but the bright side is I have a roof over my head now...

                              BIG HUGS!!!!
                              Hugs,
                              Tracey
                              How do you eat an elephant? One bite at a time...

                              Harry arrived 2/23/09!



                              *IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

                              IC Diet Cheat Sheet:
                              http://www.ic-network.com/diet/2009icdietlist.pdf



                              Dx's:
                              IC dx'd Nov 2004
                              Lymphocytic Colitis dx'd July 2005
                              Possible IBS
                              Current IC Meds
                              Vistaril 25mg in the evening
                              Previous IC Meds taken:
                              Cystoprotek - 2 caps 2x's a day
                              Elmiron, 100mg 3x's a day
                              Ditropan, 5 mg 3x's a day
                              Others:
                              Wellbutrin 150mg 2x's a day for Anxiety/IBS
                              Pepcid 40mg a day for GERD
                              Zytrec for Nasal Allergies
                              Align Probiotic daily for IBS

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