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  • Having a TERRIBLE Week

    This week has, for lack of a better word, sucked. I can't wait for it to be over so we can get on with the beautiful, warm weekend we are supposed to have... and so I can have a little time to just sit and remember how to breathe.

    I have been yelled at or criticized every time I turn around.

    On Tuesday, my boss started the whole "You are not in the lab enough" crap yet again. What made it worse was that Monday I worked until 6:30 and last night I didn't get home until after 8pm; it just happened that on Tuesday, I had doctor appointments (pain clinic and psychiatrist) and a two-hour class that HE is making me take. I hate that this class is for second-year grad students and he is making me take it even though I am six years post Ph.D. -- it makes me feel devalued, like he thinks I'm stupid. And I hate that he makes me take this class, and then yells at me for going to it!!

    Luckily, I was able to discuss these issues with my psychiatrist that afternoon; after hearing about my day she insisted I needed to go home immediately after our session despite his whining. Not only did she see emotional pain in me, she saw physical pain -- "Your bladder is hurting, isn't it?" Yes, it was -- and it felt good to have it validated. We discussed my boss, and we both agreed that with my myriad conditions, I really do need to get out of bench research. She asked what I wanted. I said to write, to teach... something in that line. In the only potential stroke of luck this week, she is married to someone rather famous in the science world, she said her husband was looking for scientific writers to add to his team. Of course, she cannot get in the middle of that, but it was a great tip that I am now following up on.

    In addition, my husband decided to pick that day to be critical about the way I do certain things ... and after logging on here, I found a rather critical PM in my box as well. (My husband has since apologized... yet I still feel the sting.)

    Of course, I am in the midst of the Come-and-Go type of flare... severe for a few days, then goes away, and then... hey, I was just teasing, I'm back!! The working late does not help; neither does knowing that no matter how late I work, I'm still not working enough to please Dr. Slavedriver, my boss.

    I am also in pain in my hips. Recently, I was diagnosed with probable osteoarthritis in both hip joints. When I was younger, I was a competitive gymnast, practicing 3-6 hours a day, and my hips took a hell of a beating during that time, so it is not that surprising. I'm just annoyed that I am just about to turn 33, but walk like my 93 year old grandma in the mornings. Anyway, the pain is horrible today -- not only was I on my feet for hours yesterday, we are supposed to have big storms today and that often triggers the pain.

    ARRRRGHHHH. OK, I just needed to get all that out. I feel better
    ****
    Jen

    *Diagnosed with severe IC in 2004
    *Also diagnosed with PFD, fibromyalgia, chronic myofascial pain, IBS, migraines, allergies/asthma, dermatographism
    *Kept trying a million different treatments for all these things until I found what works, and I am doing okay these days with the help of a cocktail of medications and the InterStim, which was first placed in 2007. [I have had 2 revisions - one in 2010 when my battery died and had to be replaced, and one complete replacement (lead and generator) in 2012 after a fall on my stairs caused my lead to move.]
    *Current meds include Atarax (50mg at night), Lyrica (150mg twice a day), Xanax (0.5mg at night and as needed), Zanaflex (4mg at night), hydrocodone (10/325, every 6 hours as needed), Advair, Nasonex, Singulair (10mg at night), oral contraceptives, home instills containing Elmiron and Marcaine (as often as I need to do them).

    **I am not a medical authority nor do I offer definitive medical advice. I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

  • #2
    I feel your pain about the work problems. I've been having problems with the girls I work with latley. Theyre just nasty miserable people and live for drama. Thank god I asked to be moved to another branch 3 days a week so I dont have to deal with them as much as I do now! I'm sending you lots of hugs

    Rach
    ***Rachel***

    Dance like no one is watching
    Love like you've never been hurt
    Live today like it's your last

    Dxd with IC in June '06

    Comment


    • #3
      Jen,
      I am so sorry you are dealing with the work situation! It is so hard do deal with things when your job makes you misrable. The stress causes flares.(your thinking no ****!) I hope you have a great time this weekend in a chance to get away. I am thinking of you, as I am dealing with work related stress. Hang in there Jen! I am sorry your husband was harsh. Thinking of you...

      Erika
      IC diagnosed officially via cysto/urodynamics 1/26/07

      Grade II Endometriosis diagnosed via lap 12/11/07

      "Fall down seven times, Stand up eight."

      "Life is a tragedy for those who feel and a comedy for those who think."

      Current Treatments:
      Interstim Since 5/25/07!
      Birth Control

      Comment


      • #4
        Jen, I am so sorry about this crappy week you are having. I hope you find a new job that you love and is much less stressful.
        hugs,
        Janie

        Comment


        • #5
          Boy Jen, you're right - your week has sucked!! Yikes - good thing tomorrow is Friday though, there's solace in that at least, I keep telling myself that anyway! LOL I am happy to hear you have a line of a possible out - getting out of that toxic workplace will do wonders for you and your health. And it's too bad really, you enjoy what you do and to have the people you do it with ruin it all, just stinks!!!

          Seems to be the week for yuck though, that's for sure! I have landed myself a killer cold and have no idea where the bug came from, I am the only sick one! ARGH!!! And hubby got on my list too, lol. I was "lightly" complaining something about dinner and I got a "well, we don't really care we like it" sort of statement, speaking of himself and my mom. I wish I could remember what was said, but that was the gist. It hurt my feelings because no matter what my tastes may be most times I make dinner to everyone elses, never a too bad for you this is how I like it sort of thing! ARGH! Yeah, he too has apologized but still...it was just one more thing...

          So, see? You are so not alone, and vent away all you like! We girls gotta stick together, lol.
          Hugs,
          Tracey
          How do you eat an elephant? One bite at a time...

          Harry arrived 2/23/09!



          *IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

          IC Diet Cheat Sheet:
          http://www.ic-network.com/diet/2009icdietlist.pdf



          Dx's:
          IC dx'd Nov 2004
          Lymphocytic Colitis dx'd July 2005
          Possible IBS
          Current IC Meds
          Vistaril 25mg in the evening
          Previous IC Meds taken:
          Cystoprotek - 2 caps 2x's a day
          Elmiron, 100mg 3x's a day
          Ditropan, 5 mg 3x's a day
          Others:
          Wellbutrin 150mg 2x's a day for Anxiety/IBS
          Pepcid 40mg a day for GERD
          Zytrec for Nasal Allergies
          Align Probiotic daily for IBS

          Comment


          • #6
            (((((((((((hugs))))))))))

            I feel for you.. People can sometimes be so cruel.. And somedays it bothers me and then others I could care less..
            I sure hope things start looking up for you.. You have been through so much and you do not need this added stress..I can tell you are a very strong person just by your post.. So keep your head high and things will start to turn around real soon....
            Hugs
            Ronda

            ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!


            Link to Patient Handbook:
            http://www.ic-network.com/handbook/

            Diet Reference Sheet:
            http://www.ic-network.com/diet/icndi...tsheet0909.pdf

            Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

            Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

            Meds I have Tried:
            Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
            Lexapro< Bad reaction to this med!
            Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

            Dx With IC in Nov 2006 with Hydro/Cysto
            Hydro/Cysto Caused Bladder to Rupture.

            Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.



            ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

            Comment


            • #7
              Jen I am so sorry you have been having such a rotten week...it really does suck. Hang in there, I promise it will get better. You are great person and, you know that you are good at what you do at the lab. I am confident you will figure it out.

              Sending hugs.
              Last edited by hoping4acure; 04-19-2007, 05:54 AM.
              Minds are like parachutes-they ony function when they are open.
              -Thomas DeWar-



              ICN Newbie Volunteer


              *ICN Angel Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

              Comment


              • #8
                (((hugs))) being sent to you, Jen. I am so sorry that mean ol boss is taking his aggressions out on you. Here's one for him... I am also sorry that someone felt the need to send you a less than nice PM.

                Hope your contact with the doc's husband works in your favor.
                Sharon

                Shopping??? Did someone mention shopping? I'll get my hat... ;-)

                Where I can be found most days.



                Link to the ICN Patient Handbook:
                http://www.ic-network.com/handbook/

                Link to the IC Diet:
                http://www.ic-network.com/diet/


                IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

                Comment


                • #9
                  Jen

                  Sorry you are having such a rotten week. I am glad your hubby has apologized and hopefully you two can enjoy the weekend and spend some time together. As for your boss and work situation - I hope this lead pans out so you can get away from them. They are way to horrid to be around. I have no doubt that you work very hard and are very good at what you do and the fact that you do it all feeling as bad as you too so often is such a testament to your strength as a person. As for the mean PM - people are just mean and I wish we could all remember that if you can't say anything nice just keep your thoughts to yourself!

                  I hope your day gets better.

                  hugs,

                  April

                  Comment


                  • #10
                    One thing you might do is to keep track of how you spend your work time, then let your supervisor know that you took a full time position, but didn't expect it to be a position and a half! I did that once and I got a substantial salary increase.

                    Some dirty dogs eat sour owl dodo and bark at the moon!

                    Donna
                    Stay safe


                    Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
                    Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

                    Have you checked the ICN Shop?
                    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

                    Patient Help: http://www.ic-network.com/patientlinks.html

                    Sub-types https://www.ic-network.com/five-pote...markably-well/

                    Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

                    AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

                    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
                    [3MG]

                    Anyone who says something is foolproof hasn't met a determined fool

                    Comment


                    • #11
                      Sorry your week has been sucky. The first part of mine was that way, too - but it's looking better now. I hope yours takes a turn for the better, too.

                      (Nasty PMs suck. Nasty posts do, as well. I've gotten some myself - sometimes people forget moderators have feelings, too. )
                      Kim

                      Diagnosed August 2001

                      Current IC meds: Elmiron (since 2001), Levaquin (one pill after intercourse to prevent UTIs), Effexor (for depression & anxiety)


                      Past IC meds: Amitriptyline (Elavil), Hydroxyzine (Vistaril), Detrol LA, Lexapro (for depression & anxiety, but also helped my IC) (They all helped, but I was able to discontinue them.)

                      I've been virtually symptom free and able to eat & drink whatever I'd like for about 8 years now.

                      *****************************

                      “We who lived in concentration camps can remember the men who walked through the huts comforting others, giving away their last piece of bread. They may have been few in number, but they offer sufficient proof that everything can be taken from a man but one thing: the last of the human freedoms -- to choose one's attitude in any given set of circumstances, to choose one's own way.” ~ Viktor Frankl

                      “You cannot control what happens to you, but you can control your attitude toward what happens to you, and in that, you will be mastering change rather than allowing it to master you.” ~ Brian Tracy

                      Comment


                      • #12
                        Jen, I'm so sorry that you're having a rough go of it. I know you'll be so much happier when you are doing a job that you love. Your boss sounds like a real piece of work. Why in the world is he making you take a 2nd year class??? What an insult!

                        I'm sure it doesn't help that your hubby picked the absolute worst time to be critical of you.

                        I'm glad that you have such a supportive doctor and I hope that her tip for a new job works out for you.

                        Take it easy and don't overwork yourself. It's not as if you're going to gain anything from it anyway...your boss doesn't seem to acknowlege all the time you actually put in, so why bother?

                        I hope you feel better soon!

                        Hugs, Sandy
                        *IC-- Summer 2004; PFD--October 2005
                        *Fibro--Fall 2000; CFS-- Fall 2000
                        *MPS--Fall 2000; Crohn's disease-- 1997*IBS,GERD, *Migraines, hypothyroidism, GYN problems *Degenerative Disc Disease/scoliosis

                        Total Abdominal Hysterectomy--adenomyosis--9\08

                        04/17/09 Crohn's disease almost killed me with a combo of extreme constipation from pain medications. My bowel ruptured, I almost died from peritonitis and spent several days in the ICU then more in a private room on the floor. If you have any questions about severe constipation from pain meds please don't hesitate to send me a message.

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                        • #13
                          ((((((((((((((((((((((((((((((Jen))))))))))))))))))))))))))))))))))

                          You don't deserve any of that hon. I hope things get better.

                          Moonheart
                          http://www.TheCraftyEwe.etsy.com

                          Comment


                          • #14
                            Jen,
                            I'm so sorry that you've had a hard week. I know exactly what you're talking about. I've had those days lately where from the moment I get out of bed I can tell it's going to be a bad day. At least tomorrow is Friday, I have been telling myself that, and Friday at my job is jean day, woohoo, lol. Hope your Friday goes fast and your weekend goes slow.
                            Christine



                            I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
                            1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
                            2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
                            I have tried every oral medication as well as rescue instills and DMSO.

                            I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

                            Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
                            Also proud mom to the best Bullmastiff on earth, Claus

                            Comment


                            • #15
                              Wow, that really is a stinky week! Here's to things looking up! It can't rain all the time.

                              Which reminds me...Neil Gaiman once wrote something like: Bad things are cowards, and therefore they come in packs.

                              I try and remember that when things come crashing down, like the $600 hospital bill I opened *right* before we were about to go out to dinner.

                              So, hopefully good things are cowards too and will come in packs for you!
                              (That rhymed. Hehe...)

                              Anyway, I hope your week gets better, and I'm with everyone else. TGIF!

                              Kitty!

                              Just diagnosed w/PFD - Oh Boy!

                              What I have tried: Elmiron, Lyrica, ,Methadone, Vicodin, Norco, Cystoprotek, imipramine, xanax, hydroxizine, trazadone, a bunch of anti-spasmotics and more I'm sure I can't remember.

                              What I'm presently on:
                              Noritriptyline 25 mg
                              OxyContin 20 mg AM - 10 mg afternoon - 20 mg PM
                              Zanaflex 2 mg at bedtime
                              Percocet PRN for breakthrough
                              Zyrtec
                              Nasonex (allergies)
                              Jolessa (b.c.)
                              Physical Therapy 2x weekly

                              Be my buddy?

                              http://www.facebook.com/home.php?#/p...88&ref=profile

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