No announcement yet.

I need something for Anxiety

  • Time
  • Show
Clear All
new posts

  • I need something for Anxiety

    I need some help with my anxiety. I am under so much stress coming in so many directions. If I were to list them all it would take me forever. to make a long story short. Before I was diagnosed with IC I was on Prozac given to me back in 1995. At the time my 21month old baby was diagnosed with Type 1 diabetes. This is the desease that killed my dad when I was 13 so you can imagine I took it very hard. Well after being on it for 11 years I didn't think I needed for depression anymore. So when my Dr. put me on elavil I came off of the prozac. well I am realizing I do need something to help me deal with the everyday stresses in my life. My PCP said I can't take anything with elavil. I notice lots of you are on elavil as well as something for anxiety & depression. I am taking 10mg of elavil in the am and 30mg at night. I am sensitive to feeling sleepy with meds. Elavil has made me gain about 20lbs.
    I am having a hard time to take off any weight.

    My Uro/gyno suggested decreasing the elavil to see if it makes a difference since I just had botox. He is the one that wanted me to stay on it. he said it does stuff in my pelvic floor to help it even if it doesn't help the bladder.

    I know I need something all I want to do is bite peoples head off.
    please send any suggestions.
    IC/IBS Hopeful : I had my bladder removed on September 29, 2008 for me but I am also so happy I have no regrets

  • #2
    I don't take Elavil, but I do take a lot of other things -- including medication for bipolar disorder -- as well as Klonopin occasionally for major anxiety days. Klonopin (clonazepam) is in the same family as Valium and I find it works quite well.

    You may want to ask for something that acts quickly like this to add to your antidepressant regimen. This is a very common prescription regimen.

    I know that there are others on Elavil who do take this sort of thing.

    *Diagnosed with severe IC in 2004
    *Also diagnosed with PFD, fibromyalgia, chronic myofascial pain, IBS, migraines, allergies/asthma, dermatographism
    *Kept trying a million different treatments for all these things until I found what works, and I am doing okay these days with the help of a cocktail of medications and the InterStim, which was first placed in 2007. [I have had 2 revisions - one in 2010 when my battery died and had to be replaced, and one complete replacement (lead and generator) in 2012 after a fall on my stairs caused my lead to move.]
    *Current meds include Atarax (50mg at night), Lyrica (150mg twice a day), Xanax (0.5mg at night and as needed), Zanaflex (4mg at night), hydrocodone (10/325, every 6 hours as needed), Advair, Nasonex, Singulair (10mg at night), oral contraceptives, home instills containing Elmiron and Marcaine (as often as I need to do them).

    **I am not a medical authority nor do I offer definitive medical advice. I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.


    • #3
      I am on 25mg of Elavil at night and take Lexapro as well, for generalized anxiety disorder and depression. I went to a psychiatrist rather than my GP for the antidepressant b/c I have a family history of bipolar (I do not have it) and I just wanted to make sure I was getting the right medication for sure in terms of all my other meds. He saw no problem with me taking Elavil and an antidepressant.

      Would your doctor prescribe one if your Elavil dose was lower?

      Diagnosed August 2001

      Current IC meds: Elmiron (since 2001), Levaquin (one pill after intercourse to prevent UTIs), Effexor (for depression & anxiety)

      Past IC meds: Amitriptyline (Elavil), Hydroxyzine (Vistaril), Detrol LA, Lexapro (for depression & anxiety, but also helped my IC) (They all helped, but I was able to discontinue them.)

      I've been virtually symptom free and able to eat & drink whatever I'd like for about 8 years now.


      “We who lived in concentration camps can remember the men who walked through the huts comforting others, giving away their last piece of bread. They may have been few in number, but they offer sufficient proof that everything can be taken from a man but one thing: the last of the human freedoms -- to choose one's attitude in any given set of circumstances, to choose one's own way.” ~ Viktor Frankl

      “You cannot control what happens to you, but you can control your attitude toward what happens to you, and in that, you will be mastering change rather than allowing it to master you.” ~ Brian Tracy


      • #4
        I took 30 mg Cymbalta twice a day and 10mg of Elavil at bedtime. I took that combo for over a year. (My Dr. said it was such a low dose of Elavil that it was okay to take the Cymbalta too.)

        I quit taking the Cymbalta about 8 mo ago b/c I dont think I am depressed anymore, since coming here. (Before the ICN, I was SO isolated and lonely, since I couldnt leave the house very often due to the pain.) But, now, I have so many friends here, that I am not lonely or isolated anymore. Plus, I have pain meds now that help some, so I can save them for when I get back and hurt from moving.

        But, I also took Cymbalta and Atavan for a long time together too. Cymbalta is an antidepressant and Atavan is an antianxiey med. The combo worked well for me, but I got off the Atavan when I didnt need it anymore.

        I hope you find something that helps you. I agree with the others that if your Dr. isnt comfortable r/xing these meds or is uncertain which ones can be combined, you might go to a Psychiatrist for a consultation. Then, if you want to continue to see him/her, of course you could, but if not, they could make recommendations for meds to your other Dr.

        I hope you get to feeling better soon!



        • #5
          try atarax

          Hydroxzine / used for both IC & Anxiety

          (i just started i cant yet vouch for its effectiveness..but i quit elmiron & elavil..for hair loss..and became a nervous wreck. This one medication is supposed to help both of my problems)

          there is side note
          it says if combined w/ elavil...a lower dose of either med may be necessary
          Quit ELMIRON due to hair loss
          Cystoprotek ROCKS!

          find me on FACEBOOK -
          search my email [email protected]

          Current Meds:
          AM Cystoprotek & ATARAX 50mg
          Dinner CYSTOPROTEK
          PM Elavil 25mg


          • #6
            Thank you all for your experiences, I will keep them in mind as I speak with my Doctor. I e-mailed him yesterday and I await his answers. We will see what happens.
            Thank you all
            IC/IBS Hopeful : I had my bladder removed on September 29, 2008 for me but I am also so happy I have no regrets


            • #7
              I take Cymbalta 60mg and Elavil 25mg at night.. They have helped with my pain and Anxiety and Depression..

              ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!

              Link to Patient Handbook:

              Diet Reference Sheet:

              Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

              Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

              Meds I have Tried:
              Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
              Lexapro< Bad reaction to this med!
              Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

              Dx With IC in Nov 2006 with Hydro/Cysto
              Hydro/Cysto Caused Bladder to Rupture.

              Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.

              ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.


              • #8
                I don't take elavil, but my pcp, has me on Hydroxazyne for anxiety, I think its an antihistimine, but it works when I feel really stressed or something.


                • #9
                  Need help trying to do a thread

                  [Just how do you send a new thread. i can reply but can't figure out the other.

                  Thanks :


                  • #10
                    How ironic!

                    Isn't it Ironic? I JUST went to my psychiatrist TODAY, and had a full blown 30 minute panic attack when I left. I tried for the billionth time to stress to him that my life has been destroyed from my anxiety and panic. I don't think I.C. helps us much with that one, considering we go in full distress when we gotta go. Either way, he has never believed me enough to put me on anything other than EVERY ANTI-DEPRESSANT imagineable! Not that it ever helps. But Hes convinced I am anxious because I am depressed. I feel the complete opposite. He tried to inspire me and tell me I must learn to stop fearing, and that I must stop thinking negatively. That I must have faith and pride in myself. I appreciate it and all, but I'm loosing my mind. Have been for a while. Have lost plenty of people because of it. THat was my mission he said. I'm hoping my urologist will be more sympathetic when I see her tomorrow.
                    I know exactly how you feel and I am very worried that no one will ever believe me when I tell them how fearful I always am. I hope you stay strong and please know I am right there with you! Because I really am! Please be firm and stand your ground. Don't let them push you around like I have let them push me. Warmest regards. May you find nothing but the best!!!
                    Love is a fruit in season at all times, within reach of every hand. ~ The Blessed Mother Teresa

                    Status: Diagnosed October 2006 via cystoscopy with hydrodistention. Max anesthetized bladder capacity only 250 cc's. Mast cells and pinpoint bleeding found.

                    Remission for me means less pain for more days than not. Frequency is inevitable with a bladder this tiny! That is ok though. The difference between when I was diagnosed and now, is that I have embraced that fact. Me and the loo, we are one.


                    • #11
                      I thank you all. I have an appt tomorrow with my PCP and I did e-mail my gyno/uro today and told him my feelings. I find working with different Dr. for different things hard. one puts you on one thing the other doesn't want to say anything about the other thing aaaaaahhhhhh. and will not start something else.
                      oh well I will see what happens tomorrow.
                      IC/IBS Hopeful : I had my bladder removed on September 29, 2008 for me but I am also so happy I have no regrets


                      • #12
                        me too

                        I've always been a stressed out person. I worry about everything.

                        After having a breakdown last week due to the hair loss..some of the girls suggested i see a therapist.

                        i saw her monday..and guess what..she has ANOTHER patient w/ IC.
                        So i was fortunate there.

                        ive always been skeptical of those the problem is NOT IN MY HEAD..but well see. Can't hurt I suppose.

                        Now I worry...I can never run for president...because it will come out..that I saw a therapist.

                        one worry or another i
                        Quit ELMIRON due to hair loss
                        Cystoprotek ROCKS!

                        find me on FACEBOOK -
                        search my email [email protected]

                        Current Meds:
                        AM Cystoprotek & ATARAX 50mg
                        Dinner CYSTOPROTEK
                        PM Elavil 25mg