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  • #1

    ****** at Doc

    I had my 1st app today with a diabetic sp. OMG this woman did not even look at me or talk directley at me .She just kept looking at my chart & went over my blood work from Feb. Asked a few questions ordered more blood work & kept saying (Oh so you suffer from bladder infections ? ) I kept saying NO I have IC ! She say"s( Yeh, You get bladder infections .) I repeated No I have a very painfull bladder condition. 3 #rd time ( Yeh you just keep getting bladder infections ! ) I wish the medical world would educate more on IC. I'ts so frustrating ! I just had to vent this out.
    hugs to all Sandra
    "Never Give Up."

    To view pictures of my creative interests and Maine Coon kittens click here: http://www.flickr.com/photos/7769467@N03/

    My Photobucket Link:
    http://s237.photobucket.com/albums/f...ramack_photos/
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    • #2
      WHAT A *****! I would get another opinion! I am truly sorry you were treated that way. It is very upsetting that the medical communitiy continues to neglect us.

      Erika
      IC diagnosed officially via cysto/urodynamics 1/26/07

      Grade II Endometriosis diagnosed via lap 12/11/07

      "Fall down seven times, Stand up eight."

      "Life is a tragedy for those who feel and a comedy for those who think."

      Current Treatments:
      Interstim Since 5/25/07!
      Birth Control

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        • #3
          I would of felt like clocking her one! I would of said how long have you been in this feild of work and what in the world do you know about IC? If she had not be educated I would certainly get a seacond appion and never she that woman again. You deserve to be treated with respect not just something to look at on a piece of paper witch sounds like what she just did! Get a seacond appion and also check to make sure this one is educated on this issue. I know how you feel!

          Lori

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            • #4
              omg! you have a right to be angry.. I think it should be mandatory for all doctors to know about IC.
              sending you hugs.
              'The will of God will never take you where the Grace of God will not protect you.'

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                • #5
                  You should fax her some info on IC, sounds like she needs some reading material on it so she can become informed about it. Though, if you had to keep repeating to her that IC is NOT an infection, then maybe she is just not worth your time. FIRE her and find someone else.
                  Jen

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                    • #6
                      Thats a good idea jen....
                      Hugs
                      Ronda

                      ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!


                      Link to Patient Handbook:
                      http://www.ic-network.com/handbook/

                      Diet Reference Sheet:
                      http://www.ic-network.com/diet/icndi...tsheet0909.pdf

                      Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

                      Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

                      Meds I have Tried:
                      Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
                      Lexapro< Bad reaction to this med!
                      Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

                      Dx With IC in Nov 2006 with Hydro/Cysto
                      Hydro/Cysto Caused Bladder to Rupture.

                      Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.


                      ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

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                        • #7
                          Thank's ladies for your support. Just being Dio with Diabetes , It took me 12 weeks to get into see this Doc. I have to see her again in 12 weeks. By then I will take her some info about IC. I know she is highley specalised in her field. But no bedside manner that's for sure. It just really ****** me off that any Doc would not listen!! I left there with my head spinning and really ****** . But i know I can come here & you would all understand , Again I am so thankfull for these board's & My IC family !
                          Hugs Sandra
                          "Never Give Up."

                          To view pictures of my creative interests and Maine Coon kittens click here: http://www.flickr.com/photos/7769467@N03/

                          My Photobucket Link:
                          http://s237.photobucket.com/albums/f...ramack_photos/

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                            • #8
                              Sandra I am so sorry for what you just went through. Getting information to her is great and I would definitely explained to her why you decide to give it to her. "IT'S NOT A BLADDER INFECTION."

                              Sometimes it is really hard to get into a specialists. Maybe with you giving her information she will be more inform about IC and not just overlook it. I hope she is one of the best in her field so she can help you with your other health problems.

                              Sending hugs, Trishann

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                                • #9
                                  Sandra,
                                  A kick to the head for that doc. Heck, I about had kittens when the judge on Friday knew what RSD and IC were. I guess one person at a time we'll get there but it sure stinks when you have to constantly repeat yourself to a medical professional. I know how long you have to wait in Canada to see specialists and it must be frustrating when they are brain dead.

                                  Hugs,
                                  Barb
                                  (Babs passed away in April 2009. We honor her memory and remember her fondly. - Jill O. ICN President & Founder)

                                  [SIZE="1"]Proud mama of a gift named Lindsey who taught me through her autism what is important in life:angel:
                                  :angel: IC Angel Volunteer Coordinator :angel:
                                  :) Contact me via PM or e-mail if you would like to help
                                  I have learned all about life in 3 words: It goes on! :D--Robert Frost
                                  PCOS 7/85
                                  RSD 7/94 :headbang:
                                  Endometriosis 9/98 :toilet:
                                  Antiphospholipid antibody syndrome 9/99
                                  Kidney stones--too many to count
                                  Factor V Leiden mutation 10/02
                                  IC 6/03 :evilsmile
                                  Deep Venous Thrombosis and Cellulitis 12/05 :loco: DVT and Greenfield Placed 3/14/08
                                  "Spirit is an invisible force made visible in all of life"--Maya Angelou
                                  "Ohana means family--no one gets left behind or forgotten." Stitch[/SIZE][/SIZE][/SIZE]

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