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  • #16
    Ha, ha, ha...I'd have to stop the sputtering anger, conquer the topamax memory lapses (which make me look like a total idiot...I used to be very articulate) in order to get that out...Maybe I'll print it on some business cards, stick 'em in my purse and hand them to these people. Perhaps we should all do this.... Hmm...a line of witty yet stinging comebacks to hand to people when they've completely put somebody over the edge...They'd be clean, of course...Yet just enough to let them know what a speck of mud they really are....'Course, they wouldn't understand. Because they are ignorant. Thanks for making me laugh.
    I.C. DX'd following my "second hysterectomy" (the remaining ovary, that kept bursting and bleeding 2 years after my hyster/right oompherectomy, was removed in 2003. I was a special ed teacher. I am now very lost, and feeling rather hopeless in my life.

    Medications I CURRENTLY take:
    90 mgs Ms contin (45 mgs Am/PM)
    Percocet as needed
    Topomax 100mg day
    Ambien 10 mg bed
    desipramine 25 mgs




    If people are good only because they fear punishment, and hope for reward, then we are a sorry lot indeed.
    Albert Einstein

    Comment


    • #17
      OMG Tracey, I didn't have time to read all of the posts this morning before I posted mine. I didn't see the one where your friends bladder cancer is back! I'm soooo sorry. I can't even imagine. Right before the end of the day yesterday one of my members (I work customer service for retirees about their health insurance) called me to tell us that her husband had died. They were in their 80's and you get used to it, it's just something you have to process on a regular basis w/ older people. Usually they seem okay when they call, like they've been sick for awhile and they came to terms with it. She told me he had had cancer and this one has just stuck with me because she really didn't sound okay. I felt so sorry for her Totally off subject, but cancer is just so scary, I'm so sorry.
      Christine



      I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
      1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
      2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
      I have tried every oral medication as well as rescue instills and DMSO.

      I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

      Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
      Also proud mom to the best Bullmastiff on earth, Claus

      Comment


      • #18
        Jack @#$%$#

        What a JACK #&$%!!

        .
        Quit ELMIRON due to hair loss
        Cystoprotek ROCKS!

        find me on FACEBOOK -
        search my email [email protected]

        Current Meds:
        AM Cystoprotek & ATARAX 50mg
        Dinner CYSTOPROTEK
        PM Elavil 25mg

        Comment


        • #19
          I've always loved the cartoon symbols for swearing...very effective. And yes..jerk was one of the many adjectives I used.

          Christine: that's ok...I wrote alot..It's just been a rotten coupla days. i haven't felt this low in a while. My bladder has reminded me in the last few days I have IC...I had to take 15 mgs of Oxycontin this AM, I haven't had breakthrough pain in awhile (at least at this level).... Then my daughter (youngest ) wanted to crawl into bed with me last night while my husband was up for awhile and I needed some time alone (I hurt, I needed to cry because of Greg...and she was a total brat...wouldn't leave until I was yelling) I tried to talk with her and apologize to her, and make her understand this morning, (by comparing times when she needs to be alone) but she just whipped her head away and said "STOP"...I just went back to bed. I hate life sometimes....

          Tracey
          I.C. DX'd following my "second hysterectomy" (the remaining ovary, that kept bursting and bleeding 2 years after my hyster/right oompherectomy, was removed in 2003. I was a special ed teacher. I am now very lost, and feeling rather hopeless in my life.

          Medications I CURRENTLY take:
          90 mgs Ms contin (45 mgs Am/PM)
          Percocet as needed
          Topomax 100mg day
          Ambien 10 mg bed
          desipramine 25 mgs




          If people are good only because they fear punishment, and hope for reward, then we are a sorry lot indeed.
          Albert Einstein

          Comment


          • #20
            Awww Tracy, I'm sorry, how old is your youngest? Griffin is almost 3 and he climbs into my bed just about every night. He's still too young for me to get him to leave me alone at all. I have to fight with him to stay out of the bathroom when I'm in the shower because I can't see what he's doing and he gets himself into trouble.

            I know how hard it is to have them want time with you and you don't feel well enough. I fell so guilty after I yell at Griffin because he has just pushed me too far and I don't feel good. My bladder has been up and down so much lately, and now my right knee hurts everytime I walk but I'm scared to go to the dr because I don't want to find out anything else is wrong w/ me. It's probably my joints can't handle the fact that I'm becoming a fat a**.

            On a brighter note I get a little break, the two boys are going to their moms tonight and then going to Hershey Park tomorrow. Their sister was supposed to go too but she did so many bad things in such a short period of time that we couldn't let her go.
            Christine



            I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
            1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
            2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
            I have tried every oral medication as well as rescue instills and DMSO.

            I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

            Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
            Also proud mom to the best Bullmastiff on earth, Claus

            Comment


            • #21
              My youngest is 11...she is very volitile...she is the one who was with me yesterday when jerk face confronted me. My husband and I have had problems with discipling her/ie: he thought I was over reacting to her behaviors but he has actually dealt with it in the past few weeks and discovered I'm not crazy, she is hard. No...At 3 they kinda have to hang with you and you feel like you have an ever increasing weighted appendage hanging on you....but one day...it's not there. I was actually teary eyed the night before last because it was the 11 year old's "exit night" from elementary. Funny, with my oldest daughter I'm one of the very young moms (she is a Junior)...with my 11 year old, I'm an older mom. With the oldest daughter, most of the moms look like grandmothers, and no offense to anyone who is also sharing the title of a soon to be high school senior mother.....Maybe it's my perspective. When she was in kindergarten, I wasn't still 3 years from 30 so the moms were already going grey (in that neighborhood of my town...kinda upper snobby) Many stares when she was a little one, I just looked too young, around there, to be her mommy. However, now I feel old. my 11 year just left elementary, but she really has a lack of compassion. It kind of scares me. For me to sit and tell her I was hurting and a person she knew quite well was sick, and that was the source of my emotions the night before...(and she is old enough to step into empathy..she's done it before, she just won't give me a break).....She just sticks her hand up and tells me to stop...GEEEZZZZ......

              Oh well...Just had my shower, feel better.............

              Have a good night
              I.C. DX'd following my "second hysterectomy" (the remaining ovary, that kept bursting and bleeding 2 years after my hyster/right oompherectomy, was removed in 2003. I was a special ed teacher. I am now very lost, and feeling rather hopeless in my life.

              Medications I CURRENTLY take:
              90 mgs Ms contin (45 mgs Am/PM)
              Percocet as needed
              Topomax 100mg day
              Ambien 10 mg bed
              desipramine 25 mgs




              If people are good only because they fear punishment, and hope for reward, then we are a sorry lot indeed.
              Albert Einstein

              Comment


              • #22
                Oh Tracy, we should have a support group for our girls, lol. Miranda is going to be 13 in a couple of weeks and she has similar behavior. Griffin broke a snow globe of hers that she was told to take to her room but didn't. She was so overly dramatic about it that he was walking around the house holding pieces of it saying he was sorry and then he tried to give her a hug and a kiss to say he was sorry w/o being told to do so and she shunned him! I was really upset when I heard about that, he's not quite three yet.
                Christine



                I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
                1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
                2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
                I have tried every oral medication as well as rescue instills and DMSO.

                I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

                Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
                Also proud mom to the best Bullmastiff on earth, Claus

                Comment


                • #23
                  Makin It.

                  I'm so sorry this happend to you...I've had this happen to me before and I finally found a quite effective answer to it.

                  I got out of my car once when I had parked in a handicap spot and hung my placard in my window. After being harrassed MANY times over this before, I decided NOT to park in these spots any longer for a very long time because I got tired of being looked at and harrassed until my husband finally told me I WAS disabled and had just as much a right to park there as anyone else. So...he told me my next response to someone who said something was this:

                  The next time someone says "you dont look disabled to me..blah blah blah" To tell them "Yeah..and you dont look like an a** hole either - however looks can be decieving cant they?" and walk away.

                  It worked....they were so stunned they didnt know what to say or think....

                  the last person who said something to me...shut up very quickly as I walked WITH MY 6 year old son into the grocery store...smiling the entire time I pushed the cart!

                  It was the nicest thing I could possibly say given the circumstances and the best satisfaction I could get because I'd already been pushed around and harrassed enough by idiots who didnt understand. I didnt NEED to go into any explainations of WHY I was parked where I was...I WAS ENTITLED to be there by my doctor signing off on my permit, period!

                  Good luck and I'm so sorry you had that happen.

                  Hugs,
                  Brittany
                  Last edited by BrittanysDance; 06-11-2007, 09:22 AM.

                  Comment


                  • #24
                    Brittany...That is the most awesome answer yet....And it would've worked on this guy too. Oh, that makes me laugh just to think about it. Perfect. Now, I just have to remember it so I can say it next time it happens...I'll prob get confused and call myself an* A hole! L.o.L.

                    * Topamax...It messes with your brain and you forget what you are saying or how to say it.


                    Thanks much for a great reply, I will have to practice that one with a friend just to make sure I have it right.

                    Tracey
                    I.C. DX'd following my "second hysterectomy" (the remaining ovary, that kept bursting and bleeding 2 years after my hyster/right oompherectomy, was removed in 2003. I was a special ed teacher. I am now very lost, and feeling rather hopeless in my life.

                    Medications I CURRENTLY take:
                    90 mgs Ms contin (45 mgs Am/PM)
                    Percocet as needed
                    Topomax 100mg day
                    Ambien 10 mg bed
                    desipramine 25 mgs




                    If people are good only because they fear punishment, and hope for reward, then we are a sorry lot indeed.
                    Albert Einstein

                    Comment

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