Announcement

Collapse
No announcement yet.

In pain tonight so i decided to read...

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • In pain tonight so i decided to read...

    the IC remission/success stories.I cried so hard cuz I'm hoping someday this will be me.Happy tears for the ones who have overcame this illness. I feel so nauseated from all this medication.I found out tonight there is a FEMALE urologist in my area and if i do not show any improvement within 2-3 months or my drs office is still not treating me right i will get a 2nd opinion or switch doctors.I believe God does truly heal.I don't know if the medications have any play in it or its just God,but im not giving up on God or myself.
    Newly IC diagnosed as of February 2011.

    Medications I'm on that seem to work:
    Zoloft- one once a day
    Butrans pain patch 5 mcg (THANK GOD FOR WHOEVER INVENTED THIS!SO MUCH PAIN RELIEF ITS UNREAL,I AM IN NO PAIN AT ALL UNLESS I STRESS OR SCREW UP ON THE DIET)

    Failed Meds:
    Elmiron-after 4 months,digestive side effects got to be too much
    tramadol-allergic
    DMSO treatments(5-6)
    probiotics

    THERAPIES:gardening,cooking,IC Diet,Counseling,Lots of warm baths,stress reduction,heating pad or ice packs,meditation/deep breathing,listening to relaxing music,having fun on pain free days,drinking chamomile or peppermint tea,pelvic floor physical therapy
    AROMATHERAPY-candles,incense
    Village Naturals Aches and Pains Peppermint Bath Salts
    Johnson and Johnsons Lavender Melt Away Stress Body Wash/Lotion

    ACUPUNCTURE/HERBS
    Significant pain relief so far.

    MAY TRY:yoga,swimming/hydrotherapy and anti-candida diet if i can kick my sugar addiction
    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
    ***TO MY IC SISTERS AND BROTHERS:WE ARE OUR OWN ADVOCATES!,PLEASE DO AS MUCH RESEARCH ON YOUR OWN AS POSSIBLE AND TRY DIFFERENT TREATMENTS TO GET WELL.NOT ONE TREATMENT WORKS FOR EVERYONE.MOST IMPORTANTLY,TRY TO KEEP A POSITIVE ATTITUDE,DISTANCE YOURSELF FROM NEGATIVITY/NEGATIVE PEOPLE AND NEVER,EVER GIVE UP!***

    Add me on facebook Angela Hasic

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
    Lord, make me an instrument of your peace;
    where there is hatred, let me sow love;
    when there is injury, pardon;
    where there is doubt, faith;
    where there is despair, hope;
    where there is darkness, light;
    and where there is sadness, joy.
    Grant that I may not so much seek
    to be consoled as to console;
    to be understood, as to understand,
    to be loved as to love;
    for it is in giving that we receive,
    it is in pardoning that we are pardoned,
    and it is in dying [to ourselves] that we are born to eternal life.

  • #2
    Maybe you should not wait so long, see a new uro you should not have to suffer 3 months.

    I hope and pray that your new uro will find the right treatment plan for you.

    God bless you and I do not believe God is punishing you, but I do believe that there are reasons for alot of things that do happen.

    Keep us posted we are all here for you even if its just to listen ,lots of hugs your way.
    <center>
    <a href="http://s1086.photobucket.com/albums/j441/linda5552/?action=view&amp;current=Picture005.jpg" target="_blank"><img src="http://i1086.photobucket.com/albums/j441/linda5552/th_Picture005.jpg" border="0" alt="Photobucket" ></a>
    </center>

    Comment


    • #3
      Hang in there. If you were just diagnosed this month, it may take longer for you to feel much improvement. Are you following an IC diet? Drinking enough water? Those two things can help a lot.

      You are wise in giving yourself some time before considering a change in doctors.

      Sending warm healing thoughts,
      Donna
      Stay safe


      Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
      Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

      Have you checked the ICN Shop?
      Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

      Patient Help: http://www.ic-network.com/patientlinks.html

      Sub-types https://www.ic-network.com/five-pote...markably-well/

      Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

      AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

      I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
      [3MG]

      Anyone who says something is foolproof hasn't met a determined fool

      Comment


      • #4
        It doesn't sound like you have been very happy with your doctors office or the nurses there and he hasn't really communicated with you and hasn't really told you why you even have your diagnosis. I would definitely get a second opinion if you can't get satisfaction, it is your right, and I guess I would ask why not? The new doctors office can request the test results.
        But maybe before you do that you should request a conference with the doctor via phone since you were in too much pain yesterday to go to your appointment. Thats what I would do. Call the office and just tell them you couldn't make it and you would like a telephone conference with him to discuss what he found. If the nurses or office staff hassle you, just try and be calm and stick to your request. Explain because he did the tests you would like to hear it from him. Did you feel comfortable talking to him? Did he have a good bedside manner? If not you owe it to yourself to go elsewhere. I think you will feel better once you have done this as you are left feeling like you have no control right now. The way it is right now, you are left floundering with all your questions unanswered. I'm sure he could find 5 to 10 minutes today to talk to you.
        Write your questions down, ask about your treatment plan, explain that you are in severe pain now since the hydro or was it the instill treatment? I'm sorry I forgot.
        Cindi


        Gelnique for frequency/urgency - works great
        Macrobid after sex
        Prilosec, continuous birth control pills
        synthroid .088mg, mucinex-d, restasis

        Supplements: Desert Harvest Aloe vera, Cysta-q, prelief, magnesium and calcium, Vit D, flaxseed oil

        Diag Mild IC Jan 11 but have had symptoms for 25 years. Also have GERD, TMJ, IBS-C, chronic dry eye syndrome, hashimotos thyroiditis, non-allergic rhinitis.

        IC Diet Link: http://www.ic-network.com/diet/2009icdietlist.pdf
        AUA 2011 Guidelines to diagnosing and treating IC overview- http://www.ic-network.com/forum/showthread.php?p=571592
        AUA 2011 Guidelines to diagnosing and treating IC PDF: http://www.auanet.org/content/guidel...ent_ic-bps.pdf
        Great treatment flowchart on page 19 of the pdf

        Comment


        • #5
          I hate this disease. I called the office today to get an immediate refill on my pain meds "theyre not here today but will be here tomorrow so theyll do it first thing in the morning". im hurting bad.the percoset isnt even touching this pain anymore. the pain started after the hydro and got worse after the instill. i called the female urologists office who i was thinking about going to for a second opinion and she accepts patients 'by referral only from your pcp'...that means i would have to go back to my pcp who i dont have a good relationship with who doesnt know about all this stuff about me going to the urologist and explain the whole thing and say i need a referral.
          Last edited by ICNDonna; 02-16-2011, 11:36 AM.
          Newly IC diagnosed as of February 2011.

          Medications I'm on that seem to work:
          Zoloft- one once a day
          Butrans pain patch 5 mcg (THANK GOD FOR WHOEVER INVENTED THIS!SO MUCH PAIN RELIEF ITS UNREAL,I AM IN NO PAIN AT ALL UNLESS I STRESS OR SCREW UP ON THE DIET)

          Failed Meds:
          Elmiron-after 4 months,digestive side effects got to be too much
          tramadol-allergic
          DMSO treatments(5-6)
          probiotics

          THERAPIES:gardening,cooking,IC Diet,Counseling,Lots of warm baths,stress reduction,heating pad or ice packs,meditation/deep breathing,listening to relaxing music,having fun on pain free days,drinking chamomile or peppermint tea,pelvic floor physical therapy
          AROMATHERAPY-candles,incense
          Village Naturals Aches and Pains Peppermint Bath Salts
          Johnson and Johnsons Lavender Melt Away Stress Body Wash/Lotion

          ACUPUNCTURE/HERBS
          Significant pain relief so far.

          MAY TRY:yoga,swimming/hydrotherapy and anti-candida diet if i can kick my sugar addiction
          ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
          ***TO MY IC SISTERS AND BROTHERS:WE ARE OUR OWN ADVOCATES!,PLEASE DO AS MUCH RESEARCH ON YOUR OWN AS POSSIBLE AND TRY DIFFERENT TREATMENTS TO GET WELL.NOT ONE TREATMENT WORKS FOR EVERYONE.MOST IMPORTANTLY,TRY TO KEEP A POSITIVE ATTITUDE,DISTANCE YOURSELF FROM NEGATIVITY/NEGATIVE PEOPLE AND NEVER,EVER GIVE UP!***

          Add me on facebook Angela Hasic

          ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
          Lord, make me an instrument of your peace;
          where there is hatred, let me sow love;
          when there is injury, pardon;
          where there is doubt, faith;
          where there is despair, hope;
          where there is darkness, light;
          and where there is sadness, joy.
          Grant that I may not so much seek
          to be consoled as to console;
          to be understood, as to understand,
          to be loved as to love;
          for it is in giving that we receive,
          it is in pardoning that we are pardoned,
          and it is in dying [to ourselves] that we are born to eternal life.

          Comment


          • #6
            oh and as far as the diet ive been trying to stick to it as best as i can. drinking water i do drink enough water but it seems like i can never pee. like im always dehydrated. this morning it was so hard to go. i fear im going to have to start cathing myself at home cuz i cant get it to come out.
            Newly IC diagnosed as of February 2011.

            Medications I'm on that seem to work:
            Zoloft- one once a day
            Butrans pain patch 5 mcg (THANK GOD FOR WHOEVER INVENTED THIS!SO MUCH PAIN RELIEF ITS UNREAL,I AM IN NO PAIN AT ALL UNLESS I STRESS OR SCREW UP ON THE DIET)

            Failed Meds:
            Elmiron-after 4 months,digestive side effects got to be too much
            tramadol-allergic
            DMSO treatments(5-6)
            probiotics

            THERAPIES:gardening,cooking,IC Diet,Counseling,Lots of warm baths,stress reduction,heating pad or ice packs,meditation/deep breathing,listening to relaxing music,having fun on pain free days,drinking chamomile or peppermint tea,pelvic floor physical therapy
            AROMATHERAPY-candles,incense
            Village Naturals Aches and Pains Peppermint Bath Salts
            Johnson and Johnsons Lavender Melt Away Stress Body Wash/Lotion

            ACUPUNCTURE/HERBS
            Significant pain relief so far.

            MAY TRY:yoga,swimming/hydrotherapy and anti-candida diet if i can kick my sugar addiction
            ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
            ***TO MY IC SISTERS AND BROTHERS:WE ARE OUR OWN ADVOCATES!,PLEASE DO AS MUCH RESEARCH ON YOUR OWN AS POSSIBLE AND TRY DIFFERENT TREATMENTS TO GET WELL.NOT ONE TREATMENT WORKS FOR EVERYONE.MOST IMPORTANTLY,TRY TO KEEP A POSITIVE ATTITUDE,DISTANCE YOURSELF FROM NEGATIVITY/NEGATIVE PEOPLE AND NEVER,EVER GIVE UP!***

            Add me on facebook Angela Hasic

            ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
            Lord, make me an instrument of your peace;
            where there is hatred, let me sow love;
            when there is injury, pardon;
            where there is doubt, faith;
            where there is despair, hope;
            where there is darkness, light;
            and where there is sadness, joy.
            Grant that I may not so much seek
            to be consoled as to console;
            to be understood, as to understand,
            to be loved as to love;
            for it is in giving that we receive,
            it is in pardoning that we are pardoned,
            and it is in dying [to ourselves] that we are born to eternal life.

            Comment


            • #7
              i found a temporary solution to my pain if u read my thread under pain management.i am going to have to try to make another appointment with him
              what i had originally planned to do and go no matter how much pain i am in to get some answers. i dont know if he diagnosed me on IC based on the appearance of the hunners ulcers on cystoscopy or just based off of the symptoms i have been telling him.my mom seems to remember him coming out to see her after the cystoscopy and telling her my bladder and kidneys looked totally normal.there had just been an infection behind my bladder that was hard to clear up.next thing you know.. they call me tell me he made a diagnosis of IC and i will be coming in for bladder treatments. I have not spoken with him since the day of cystoscopy before they put me under. all i know is this cysto and the instills made my pain worse than it originally was. and im still wondering.. IC or not,could it be something else?
              Newly IC diagnosed as of February 2011.

              Medications I'm on that seem to work:
              Zoloft- one once a day
              Butrans pain patch 5 mcg (THANK GOD FOR WHOEVER INVENTED THIS!SO MUCH PAIN RELIEF ITS UNREAL,I AM IN NO PAIN AT ALL UNLESS I STRESS OR SCREW UP ON THE DIET)

              Failed Meds:
              Elmiron-after 4 months,digestive side effects got to be too much
              tramadol-allergic
              DMSO treatments(5-6)
              probiotics

              THERAPIES:gardening,cooking,IC Diet,Counseling,Lots of warm baths,stress reduction,heating pad or ice packs,meditation/deep breathing,listening to relaxing music,having fun on pain free days,drinking chamomile or peppermint tea,pelvic floor physical therapy
              AROMATHERAPY-candles,incense
              Village Naturals Aches and Pains Peppermint Bath Salts
              Johnson and Johnsons Lavender Melt Away Stress Body Wash/Lotion

              ACUPUNCTURE/HERBS
              Significant pain relief so far.

              MAY TRY:yoga,swimming/hydrotherapy and anti-candida diet if i can kick my sugar addiction
              ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
              ***TO MY IC SISTERS AND BROTHERS:WE ARE OUR OWN ADVOCATES!,PLEASE DO AS MUCH RESEARCH ON YOUR OWN AS POSSIBLE AND TRY DIFFERENT TREATMENTS TO GET WELL.NOT ONE TREATMENT WORKS FOR EVERYONE.MOST IMPORTANTLY,TRY TO KEEP A POSITIVE ATTITUDE,DISTANCE YOURSELF FROM NEGATIVITY/NEGATIVE PEOPLE AND NEVER,EVER GIVE UP!***

              Add me on facebook Angela Hasic

              ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
              Lord, make me an instrument of your peace;
              where there is hatred, let me sow love;
              when there is injury, pardon;
              where there is doubt, faith;
              where there is despair, hope;
              where there is darkness, light;
              and where there is sadness, joy.
              Grant that I may not so much seek
              to be consoled as to console;
              to be understood, as to understand,
              to be loved as to love;
              for it is in giving that we receive,
              it is in pardoning that we are pardoned,
              and it is in dying [to ourselves] that we are born to eternal life.

              Comment


              • #8
                Hmm... why would he tell your mom it is infection behind your bladder then tell you something totally different? I see why you are thinking about switching. You should do whatever you feel comfortable with.

                I wonder if the pyridium may be making you nauseated. I had trouble with that. Are you eating with it? If not it can make you really feel ill.

                If you think that you may not be peeing you should go in. I went into ER and they checked me for this. You can have them check with an ultrasound thing. You can also have your uro show you how to self cath in case you need to do it in the future. I know I felt better after know how to do this.

                Please take care, if you ever need to pm someone when you are in pain feel free to pm me. I am usually up very late most evenings with pain etc.

                Most people on this board have found solutions to help them live much better.
                Teresa

                We are not HUMAN BEINGS going through a temporary SPIRITUAL EXPERIENCE. We are SPIRITUAL BEINGS going through a temporary HUMAN EXPERIENCE....so that we may become more SPIRITUAL.

                Comment


                • #9
                  im dealing with nausea,diarhea and constipation on top of all this. i just had an "accident" and my family jumped on me about it. im young i shouldnt be having all this pain and accidents. i feel helpless. drs wont even help me. i dont think i need the pyridium. i havent had any spasms before and its starting to feel like the dye in it is irritating me down there.im feeling very sick from all these medications...hard for me to pee when i do pee. im drinking plenty of water it just wont come.
                  Newly IC diagnosed as of February 2011.

                  Medications I'm on that seem to work:
                  Zoloft- one once a day
                  Butrans pain patch 5 mcg (THANK GOD FOR WHOEVER INVENTED THIS!SO MUCH PAIN RELIEF ITS UNREAL,I AM IN NO PAIN AT ALL UNLESS I STRESS OR SCREW UP ON THE DIET)

                  Failed Meds:
                  Elmiron-after 4 months,digestive side effects got to be too much
                  tramadol-allergic
                  DMSO treatments(5-6)
                  probiotics

                  THERAPIES:gardening,cooking,IC Diet,Counseling,Lots of warm baths,stress reduction,heating pad or ice packs,meditation/deep breathing,listening to relaxing music,having fun on pain free days,drinking chamomile or peppermint tea,pelvic floor physical therapy
                  AROMATHERAPY-candles,incense
                  Village Naturals Aches and Pains Peppermint Bath Salts
                  Johnson and Johnsons Lavender Melt Away Stress Body Wash/Lotion

                  ACUPUNCTURE/HERBS
                  Significant pain relief so far.

                  MAY TRY:yoga,swimming/hydrotherapy and anti-candida diet if i can kick my sugar addiction
                  ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
                  ***TO MY IC SISTERS AND BROTHERS:WE ARE OUR OWN ADVOCATES!,PLEASE DO AS MUCH RESEARCH ON YOUR OWN AS POSSIBLE AND TRY DIFFERENT TREATMENTS TO GET WELL.NOT ONE TREATMENT WORKS FOR EVERYONE.MOST IMPORTANTLY,TRY TO KEEP A POSITIVE ATTITUDE,DISTANCE YOURSELF FROM NEGATIVITY/NEGATIVE PEOPLE AND NEVER,EVER GIVE UP!***

                  Add me on facebook Angela Hasic

                  ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
                  Lord, make me an instrument of your peace;
                  where there is hatred, let me sow love;
                  when there is injury, pardon;
                  where there is doubt, faith;
                  where there is despair, hope;
                  where there is darkness, light;
                  and where there is sadness, joy.
                  Grant that I may not so much seek
                  to be consoled as to console;
                  to be understood, as to understand,
                  to be loved as to love;
                  for it is in giving that we receive,
                  it is in pardoning that we are pardoned,
                  and it is in dying [to ourselves] that we are born to eternal life.

                  Comment


                  • #10
                    Hi, pyridium also does that to me. I get nauseated, and then after a few days it hurts more. You could ask your dr. for Prosed DS which is similiar. It didn't help me either, but it may help with you. We are all different.

                    How many times are you peeing per day? If you are having severe retention and cannot pee you should go to the ER to be checked. Just tell them how long it has been and you can't go. You may need to stop a medication. Your doctor should be helping you with this. If you are not getting good responses you need to find a new dr.
                    Teresa

                    We are not HUMAN BEINGS going through a temporary SPIRITUAL EXPERIENCE. We are SPIRITUAL BEINGS going through a temporary HUMAN EXPERIENCE....so that we may become more SPIRITUAL.

                    Comment


                    • #11
                      hey thanks for words of wisdom fellow icers. i ended up having to go the ER yesterday.waited 6 hrs in the waiting room because they were havin alot of traumas comin in but it was worth it. didnt get home till 3am. i couldnt pee and was in so much pain and that woman that was filling in for my dr never called me back or refilled my pain meds. they ended up giving me diludad through an iv (that was HEAVEN) couldnt feel a thing,refilled my percoset,and put a foley catheter in.also gave me a prescription for antib cipro cuz they tested my pee and i had a UTI on top of this and a rx for nausea,diarrhea,etc i look so stylish w/ a bag of pee on the side of my leg. lol. they said to make an appt w/ my dr on tues since hes out of town till then.im going to have a serious discussion with him.i'm also gonna start hunting for a psych this week. wish me luck.
                      Newly IC diagnosed as of February 2011.

                      Medications I'm on that seem to work:
                      Zoloft- one once a day
                      Butrans pain patch 5 mcg (THANK GOD FOR WHOEVER INVENTED THIS!SO MUCH PAIN RELIEF ITS UNREAL,I AM IN NO PAIN AT ALL UNLESS I STRESS OR SCREW UP ON THE DIET)

                      Failed Meds:
                      Elmiron-after 4 months,digestive side effects got to be too much
                      tramadol-allergic
                      DMSO treatments(5-6)
                      probiotics

                      THERAPIES:gardening,cooking,IC Diet,Counseling,Lots of warm baths,stress reduction,heating pad or ice packs,meditation/deep breathing,listening to relaxing music,having fun on pain free days,drinking chamomile or peppermint tea,pelvic floor physical therapy
                      AROMATHERAPY-candles,incense
                      Village Naturals Aches and Pains Peppermint Bath Salts
                      Johnson and Johnsons Lavender Melt Away Stress Body Wash/Lotion

                      ACUPUNCTURE/HERBS
                      Significant pain relief so far.

                      MAY TRY:yoga,swimming/hydrotherapy and anti-candida diet if i can kick my sugar addiction
                      ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
                      ***TO MY IC SISTERS AND BROTHERS:WE ARE OUR OWN ADVOCATES!,PLEASE DO AS MUCH RESEARCH ON YOUR OWN AS POSSIBLE AND TRY DIFFERENT TREATMENTS TO GET WELL.NOT ONE TREATMENT WORKS FOR EVERYONE.MOST IMPORTANTLY,TRY TO KEEP A POSITIVE ATTITUDE,DISTANCE YOURSELF FROM NEGATIVITY/NEGATIVE PEOPLE AND NEVER,EVER GIVE UP!***

                      Add me on facebook Angela Hasic

                      ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
                      Lord, make me an instrument of your peace;
                      where there is hatred, let me sow love;
                      when there is injury, pardon;
                      where there is doubt, faith;
                      where there is despair, hope;
                      where there is darkness, light;
                      and where there is sadness, joy.
                      Grant that I may not so much seek
                      to be consoled as to console;
                      to be understood, as to understand,
                      to be loved as to love;
                      for it is in giving that we receive,
                      it is in pardoning that we are pardoned,
                      and it is in dying [to ourselves] that we are born to eternal life.

                      Comment


                      • #12
                        Wow, now that ER is on top of things. Good for you!!! Maybe that foley catheter will allow your bladder to heal some. Did they give you Zofran for nausea? I am taking Diluadid extended release now. It is not strong enough and they want me to think about a pain pump. But, I know how well it just cuts through the pain at the ER. It's like you can breathe again. Thanks for letting us know how you are. I am sooo glad you got some relief.
                        Teresa

                        We are not HUMAN BEINGS going through a temporary SPIRITUAL EXPERIENCE. We are SPIRITUAL BEINGS going through a temporary HUMAN EXPERIENCE....so that we may become more SPIRITUAL.

                        Comment


                        • #13
                          Wow, SO glad you went in. See, there was a reason you couldn't pee! You poor thing. so glad you went and found help and relief! Let us know Tue how you and your doctor appt went.
                          Cindi


                          Gelnique for frequency/urgency - works great
                          Macrobid after sex
                          Prilosec, continuous birth control pills
                          synthroid .088mg, mucinex-d, restasis

                          Supplements: Desert Harvest Aloe vera, Cysta-q, prelief, magnesium and calcium, Vit D, flaxseed oil

                          Diag Mild IC Jan 11 but have had symptoms for 25 years. Also have GERD, TMJ, IBS-C, chronic dry eye syndrome, hashimotos thyroiditis, non-allergic rhinitis.

                          IC Diet Link: http://www.ic-network.com/diet/2009icdietlist.pdf
                          AUA 2011 Guidelines to diagnosing and treating IC overview- http://www.ic-network.com/forum/showthread.php?p=571592
                          AUA 2011 Guidelines to diagnosing and treating IC PDF: http://www.auanet.org/content/guidel...ent_ic-bps.pdf
                          Great treatment flowchart on page 19 of the pdf

                          Comment


                          • #14
                            teresa- they prescribed me phernigan for nausea/vomiting it is also an antihistamine. it doesnt make me drowsy though.i was so happy not to feel pain even if it was only for a night!strangely the percoset is working better. maybe the er gave me a stronger rx than my dr. i take 2 325 mg when im in pain now.can barely feel it now.getting used to this foley but loving the idea of not having to get up and goin to strain to go pee. im drinking plenty of water. next is to get the ic diet out.. and try to stick to it/buy some groceries.go to dr tues and find a psych sometime this month.thanx for your kind words and help cindi i will keep you all posted.
                            Last edited by flowerangela; 02-18-2011, 06:04 PM. Reason: spelling
                            Newly IC diagnosed as of February 2011.

                            Medications I'm on that seem to work:
                            Zoloft- one once a day
                            Butrans pain patch 5 mcg (THANK GOD FOR WHOEVER INVENTED THIS!SO MUCH PAIN RELIEF ITS UNREAL,I AM IN NO PAIN AT ALL UNLESS I STRESS OR SCREW UP ON THE DIET)

                            Failed Meds:
                            Elmiron-after 4 months,digestive side effects got to be too much
                            tramadol-allergic
                            DMSO treatments(5-6)
                            probiotics

                            THERAPIES:gardening,cooking,IC Diet,Counseling,Lots of warm baths,stress reduction,heating pad or ice packs,meditation/deep breathing,listening to relaxing music,having fun on pain free days,drinking chamomile or peppermint tea,pelvic floor physical therapy
                            AROMATHERAPY-candles,incense
                            Village Naturals Aches and Pains Peppermint Bath Salts
                            Johnson and Johnsons Lavender Melt Away Stress Body Wash/Lotion

                            ACUPUNCTURE/HERBS
                            Significant pain relief so far.

                            MAY TRY:yoga,swimming/hydrotherapy and anti-candida diet if i can kick my sugar addiction
                            ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
                            ***TO MY IC SISTERS AND BROTHERS:WE ARE OUR OWN ADVOCATES!,PLEASE DO AS MUCH RESEARCH ON YOUR OWN AS POSSIBLE AND TRY DIFFERENT TREATMENTS TO GET WELL.NOT ONE TREATMENT WORKS FOR EVERYONE.MOST IMPORTANTLY,TRY TO KEEP A POSITIVE ATTITUDE,DISTANCE YOURSELF FROM NEGATIVITY/NEGATIVE PEOPLE AND NEVER,EVER GIVE UP!***

                            Add me on facebook Angela Hasic

                            ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
                            Lord, make me an instrument of your peace;
                            where there is hatred, let me sow love;
                            when there is injury, pardon;
                            where there is doubt, faith;
                            where there is despair, hope;
                            where there is darkness, light;
                            and where there is sadness, joy.
                            Grant that I may not so much seek
                            to be consoled as to console;
                            to be understood, as to understand,
                            to be loved as to love;
                            for it is in giving that we receive,
                            it is in pardoning that we are pardoned,
                            and it is in dying [to ourselves] that we are born to eternal life.

                            Comment


                            • #15
                              Oh, you even sound so much better. So, you think the Percoset is working better than the Diluadid? I wonder what dosage they gave you at ER. I really wish all ER's would be as responsive as yours was. Some are much better than others. Could you P.M. me with the hospital you went to? In case we are ever transfered around there - it sounds like the medical help was very good. I have been asking for a copy of my record now everytime I leave the ER. (bloodwork, other tests etc). I have found these to be helpful when I have to see a new doctor and just for myself to see medications, dosages etc that worked and I may need at another visit. I know I paranoid, but with a disease no one understands I find I must do what I can.
                              Teresa

                              We are not HUMAN BEINGS going through a temporary SPIRITUAL EXPERIENCE. We are SPIRITUAL BEINGS going through a temporary HUMAN EXPERIENCE....so that we may become more SPIRITUAL.

                              Comment

                              Working...
                              X