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  • #1

    dealing with the pain :( kinda a blog..

    one thing ive noticed with my IC is some days are really good and then other days are hell. im in constant pain regardless but sometimes the pain is worse.to not be in pain i have to stay constantly doped up on pain meds which i dont like but i know they do help.

    and i sleep alot due to being drowsy from those.theyve written me a rx for a non narcotic pain med but you can only have 1 a day compared to the percoset is on an as needed basis

    im scared to try it.because if it doesnt work..i will be back to square one. if i continue to take the percoset im afraid i will become dependent/addicted to them.

    but the main reason i came to this part of the forum is i feel like im still in the whole grieving process.whats sad is ive never grieved before,no one close to me has died yet. so now im sitting here grieving for myself feeling like a part of me has died.i could try to do the things i used to do before ic came and live my life like it never happened but i know it would be so painful i wouldnt be able to enjoy those things like i did. another thing ive heard is god wont give you too much that you cant handle. he knows your limits.well im right here god and this is too much,way over my limit.

    i am having issues staying strong for myself because ive never had to be this strong.i ask god every night why me,did i do something to upset him?because i havent been perfect the past 2-3 yrs.i feel like no one deserves to go through this type of pain.chronic pain.pelvic pain.it could be anywhere else besides there.

    im young and i still have so much life to live yet i cant see myself living it like this.everyone i talk to suggests seeing a psych so i can work out my past issues and this present ic issue,but i really dont want to be goin to like 3 or 4 different drs.its painful enough going to see one.

    it would be nice if my uros office had a psych there.he treats patients with cancer also.maybe i could find one near him and do it all in the same day. i dont know.

    this has shown me who true friends and family members are.i was honest and open with everyone about it and only a select few friends reached out to me.some family members have began to disown me or treat me worse because of this. or they just dont understand and im tired of having to explain it over and over.whats sad is no one can relate unless theyve been through it or start to go through it later.

    i have sympathy for those who have to live with IC as well as other conditions at the same time. my sinuses just started acting up today w/ all this pain and i feel so weak.i know i cant just give up on me.i have to fight. ive always been a fighter.but i am really clueless as what to do to get my life back,or quality of life. the end.
    Newly IC diagnosed as of February 2011.

    Medications I'm on that seem to work:
    Zoloft- one once a day
    Butrans pain patch 5 mcg (THANK GOD FOR WHOEVER INVENTED THIS!SO MUCH PAIN RELIEF ITS UNREAL,I AM IN NO PAIN AT ALL UNLESS I STRESS OR SCREW UP ON THE DIET)

    Failed Meds:
    Elmiron-after 4 months,digestive side effects got to be too much
    tramadol-allergic
    DMSO treatments(5-6)
    probiotics

    THERAPIES:gardening,cooking,IC Diet,Counseling,Lots of warm baths,stress reduction,heating pad or ice packs,meditation/deep breathing,listening to relaxing music,having fun on pain free days,drinking chamomile or peppermint tea,pelvic floor physical therapy
    AROMATHERAPY-candles,incense
    Village Naturals Aches and Pains Peppermint Bath Salts
    Johnson and Johnsons Lavender Melt Away Stress Body Wash/Lotion

    ACUPUNCTURE/HERBS
    Significant pain relief so far.

    MAY TRY:yoga,swimming/hydrotherapy and anti-candida diet if i can kick my sugar addiction
    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
    ***TO MY IC SISTERS AND BROTHERS:WE ARE OUR OWN ADVOCATES!,PLEASE DO AS MUCH RESEARCH ON YOUR OWN AS POSSIBLE AND TRY DIFFERENT TREATMENTS TO GET WELL.NOT ONE TREATMENT WORKS FOR EVERYONE.MOST IMPORTANTLY,TRY TO KEEP A POSITIVE ATTITUDE,DISTANCE YOURSELF FROM NEGATIVITY/NEGATIVE PEOPLE AND NEVER,EVER GIVE UP!***

    Add me on facebook Angela Hasic

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
    Lord, make me an instrument of your peace;
    where there is hatred, let me sow love;
    when there is injury, pardon;
    where there is doubt, faith;
    where there is despair, hope;
    where there is darkness, light;
    and where there is sadness, joy.
    Grant that I may not so much seek
    to be consoled as to console;
    to be understood, as to understand,
    to be loved as to love;
    for it is in giving that we receive,
    it is in pardoning that we are pardoned,
    and it is in dying [to ourselves] that we are born to eternal life.
    Tags: None
  • #2
    I know honey its rough, but we here on the forum are your family and we know your suffering.
    Bad things that happen its not nessesary Gods will, but he does have a plan for us all.
    Maybe with you being on this forum and talking about your IC and helping others is what he planned for you to do.
    I get selfish and wish God would take me in my sleep sometimes but, I know he wants me here until he is ready to take me home.
    My son has a bad habit of blameing God for all the bad stuff.
    For example he left his wallet at a friends house thought he lost it and blamed God.
    I tried to explain to him that it was not Gods faught that he needs to be responsible for his own belongings.
    Keep praying there is nothing wrong for praying for yourself, just do not give up on God because he really loves you sister.
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    • #3
      dealing with pain

      Flower,
      Have you ever read the book, "Why Bad Things Happen to Good People" (I hope I can post this here). It's very helpful when we're asking, why?
      If you don't mind my asking, what is the non-narcotic pain med. that your doctor is RXing for you?

      Laurie

      Comment

      • #4
        no i havent read that book. maybe i should.because the last 2-3 years of my life besides ic has been that.the name of the pain med is..mobic 15mg..cept its the generic of that. it can only be taken once a day. im keeping it for emergency purposes in case i run out or my dr wont rx percoset anymore.
        Newly IC diagnosed as of February 2011.

        Medications I'm on that seem to work:
        Zoloft- one once a day
        Butrans pain patch 5 mcg (THANK GOD FOR WHOEVER INVENTED THIS!SO MUCH PAIN RELIEF ITS UNREAL,I AM IN NO PAIN AT ALL UNLESS I STRESS OR SCREW UP ON THE DIET)

        Failed Meds:
        Elmiron-after 4 months,digestive side effects got to be too much
        tramadol-allergic
        DMSO treatments(5-6)
        probiotics

        THERAPIES:gardening,cooking,IC Diet,Counseling,Lots of warm baths,stress reduction,heating pad or ice packs,meditation/deep breathing,listening to relaxing music,having fun on pain free days,drinking chamomile or peppermint tea,pelvic floor physical therapy
        AROMATHERAPY-candles,incense
        Village Naturals Aches and Pains Peppermint Bath Salts
        Johnson and Johnsons Lavender Melt Away Stress Body Wash/Lotion

        ACUPUNCTURE/HERBS
        Significant pain relief so far.

        MAY TRY:yoga,swimming/hydrotherapy and anti-candida diet if i can kick my sugar addiction
        ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
        ***TO MY IC SISTERS AND BROTHERS:WE ARE OUR OWN ADVOCATES!,PLEASE DO AS MUCH RESEARCH ON YOUR OWN AS POSSIBLE AND TRY DIFFERENT TREATMENTS TO GET WELL.NOT ONE TREATMENT WORKS FOR EVERYONE.MOST IMPORTANTLY,TRY TO KEEP A POSITIVE ATTITUDE,DISTANCE YOURSELF FROM NEGATIVITY/NEGATIVE PEOPLE AND NEVER,EVER GIVE UP!***

        Add me on facebook Angela Hasic

        ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
        Lord, make me an instrument of your peace;
        where there is hatred, let me sow love;
        when there is injury, pardon;
        where there is doubt, faith;
        where there is despair, hope;
        where there is darkness, light;
        and where there is sadness, joy.
        Grant that I may not so much seek
        to be consoled as to console;
        to be understood, as to understand,
        to be loved as to love;
        for it is in giving that we receive,
        it is in pardoning that we are pardoned,
        and it is in dying [to ourselves] that we are born to eternal life.

        Comment

        • #5
          thanks for the kind words linda. i ask god to take me like that sometimes too but i know he has a reason for me being here.i never blame god for the bad stuff.. i think stuff just happens for reasons we dont understand.i believe satan is responsible for a lot of the bad stuff. i dont really know about sickness/illness. sometimes we are just..predisposed to get those. i will keep praying for myself and others here on the forum including you.hopefully my drs visit wont be a waste of time tomorrow. i will be praying about that. i really need some answers from my dr. about this diagnosis.
          Newly IC diagnosed as of February 2011.

          Medications I'm on that seem to work:
          Zoloft- one once a day
          Butrans pain patch 5 mcg (THANK GOD FOR WHOEVER INVENTED THIS!SO MUCH PAIN RELIEF ITS UNREAL,I AM IN NO PAIN AT ALL UNLESS I STRESS OR SCREW UP ON THE DIET)

          Failed Meds:
          Elmiron-after 4 months,digestive side effects got to be too much
          tramadol-allergic
          DMSO treatments(5-6)
          probiotics

          THERAPIES:gardening,cooking,IC Diet,Counseling,Lots of warm baths,stress reduction,heating pad or ice packs,meditation/deep breathing,listening to relaxing music,having fun on pain free days,drinking chamomile or peppermint tea,pelvic floor physical therapy
          AROMATHERAPY-candles,incense
          Village Naturals Aches and Pains Peppermint Bath Salts
          Johnson and Johnsons Lavender Melt Away Stress Body Wash/Lotion

          ACUPUNCTURE/HERBS
          Significant pain relief so far.

          MAY TRY:yoga,swimming/hydrotherapy and anti-candida diet if i can kick my sugar addiction
          ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
          ***TO MY IC SISTERS AND BROTHERS:WE ARE OUR OWN ADVOCATES!,PLEASE DO AS MUCH RESEARCH ON YOUR OWN AS POSSIBLE AND TRY DIFFERENT TREATMENTS TO GET WELL.NOT ONE TREATMENT WORKS FOR EVERYONE.MOST IMPORTANTLY,TRY TO KEEP A POSITIVE ATTITUDE,DISTANCE YOURSELF FROM NEGATIVITY/NEGATIVE PEOPLE AND NEVER,EVER GIVE UP!***

          Add me on facebook Angela Hasic

          ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
          Lord, make me an instrument of your peace;
          where there is hatred, let me sow love;
          when there is injury, pardon;
          where there is doubt, faith;
          where there is despair, hope;
          where there is darkness, light;
          and where there is sadness, joy.
          Grant that I may not so much seek
          to be consoled as to console;
          to be understood, as to understand,
          to be loved as to love;
          for it is in giving that we receive,
          it is in pardoning that we are pardoned,
          and it is in dying [to ourselves] that we are born to eternal life.

          Comment

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