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  • Spring Time Pitty Party

    I go through this every year and you would think after living with the IC (if you can call my life actually living ) I would get used to the fact of never going any where for spring/summer. No place for 4th of July. I just keep having fits of wanting to cry. I know I will never have a clean house again, will always feel lousy, will always feel tired, will always be in pain. Am going to buy a large outside kennel for the kids (AKA...my cats) this year for their birthday which is April. That way they get to go outside every day during good weather. I'm fooling myself if I think I can walk 6 cats every day. Doubt I could walk them once a week. I really do not know how to ever accept the IC or live with it. Only way for me is to keep my head in the sand and pretend it is not happening.
    Ok, Pitty Party at my house tomorrow at 2:00 pm. Figured make it middle of the day. I don't do well in mornings and by 5:00 pm I'm done for the day (physically but still have stuff to do after that time) and thought maybe it was the same for the rest of you. Can make it a "pot luck" and everyone could bring their own Pottys. That way there is no long line with people crossing their legs. I will supply the toilet paper. Extra soft 3 ply.

  • #2
    Sometimes it can feel good just to go outdoors and sit and read a book. And smell the springtime blossoms --- my favorite time of year because it says that winter is going away for a few months. This morning when I walked down the driveway for our newspaper, there were literally thousands of Canada geese flying over singing their song --- and the daphne bush is in full bloom with its heavenly smell.


    Donna
    Stay safe


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    • #3
      I love to be outside too Donna, but here in the 3rd highest allergy city in the US taking a deep breath this time of year can be dangerous! My daughter is away at school in GA and has her first sinus infection of the year. Even my dog is on benadryl three times a day, the poor thing, her skin on her belly is bright reddish pink and she is misearable. I do love this time of year, just wish I wasn't in the allergy capital!

      Sandra
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      American Urological Association Clinical Guideline
      Diagnosis and Treatment of Intersitial Cysitis/Painful Bladder Syndrom
      http://www.auanet.org/content/guidel...ent_ic-bps.pdf

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      • #4
        I will sometimes on the weekends go and sit on my patio with a good book in the early morning and read for a few hours. Right now the weather really wants to try and be Spring time, but don't know....sometimes it feels like Summer; if you know what I mean.

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        • #5
          Spring?

          I would love to get outside and sit in the sun and smell the flowers but it is snowing here today. We got 12-14 inches of snow in 12 hours...
          But spring is coming and this year I am going to spend some time outside this year and try to do a little bit more every day.
          Started Vaginal Valium Suppositories April 2014
          Hysterectomy April 2003 (for abdominal pain),Diagnosed with IC August 2003
          Diagnosed with Pelvic Floor Disorder 2004,Had right ovary and fallopan tube removed 2005
          Diagnosed with diverticulosis 2006,Interstim December 2006,Home Instillations 2007-not effective
          Diagnosed with Fibromyalgia November 2007,Appendectomy February 2008,
          Interstim repair December 2008,Removal of the Interstim August 2011,
          6 Hydrodistentions from 2003-2009 Diagnosed with restless leg syndrome March 2014
          Diagnosed with Raynaud's Syndrome November 2013
          Ambien 5mg for sleep.
          Elivil 50 mg at bed
          Lisinopril 20mg in AM
          Effexor 225 mg
          Oxycodone 10 mgs 2 x a day for pain
          Baclofen 20mg 3x a day
          Phenazopyridine 200 mg as needed
          Omeprazole 20 mg at night
          Lyrica 450 mg daily
          Requip .50 mg at night
          Ketorolac 10 mg as needed for migraines

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          • #6
            beautiful day here.i love spring and summer when theres plenty of sun and warm,comfortable temps.. not gonna let ic ruin it for me even tho i am sitting inside now
            Newly IC diagnosed as of February 2011.

            Medications I'm on that seem to work:
            Zoloft- one once a day
            Butrans pain patch 5 mcg (THANK GOD FOR WHOEVER INVENTED THIS!SO MUCH PAIN RELIEF ITS UNREAL,I AM IN NO PAIN AT ALL UNLESS I STRESS OR SCREW UP ON THE DIET)

            Failed Meds:
            Elmiron-after 4 months,digestive side effects got to be too much
            tramadol-allergic
            DMSO treatments(5-6)
            probiotics

            THERAPIES:gardening,cooking,IC Diet,Counseling,Lots of warm baths,stress reduction,heating pad or ice packs,meditation/deep breathing,listening to relaxing music,having fun on pain free days,drinking chamomile or peppermint tea,pelvic floor physical therapy
            AROMATHERAPY-candles,incense
            Village Naturals Aches and Pains Peppermint Bath Salts
            Johnson and Johnsons Lavender Melt Away Stress Body Wash/Lotion

            ACUPUNCTURE/HERBS
            Significant pain relief so far.

            MAY TRY:yoga,swimming/hydrotherapy and anti-candida diet if i can kick my sugar addiction
            ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
            ***TO MY IC SISTERS AND BROTHERS:WE ARE OUR OWN ADVOCATES!,PLEASE DO AS MUCH RESEARCH ON YOUR OWN AS POSSIBLE AND TRY DIFFERENT TREATMENTS TO GET WELL.NOT ONE TREATMENT WORKS FOR EVERYONE.MOST IMPORTANTLY,TRY TO KEEP A POSITIVE ATTITUDE,DISTANCE YOURSELF FROM NEGATIVITY/NEGATIVE PEOPLE AND NEVER,EVER GIVE UP!***

            Add me on facebook Angela Hasic

            ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
            Lord, make me an instrument of your peace;
            where there is hatred, let me sow love;
            when there is injury, pardon;
            where there is doubt, faith;
            where there is despair, hope;
            where there is darkness, light;
            and where there is sadness, joy.
            Grant that I may not so much seek
            to be consoled as to console;
            to be understood, as to understand,
            to be loved as to love;
            for it is in giving that we receive,
            it is in pardoning that we are pardoned,
            and it is in dying [to ourselves] that we are born to eternal life.

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            • #7
              Pitty Part VIP

              I love it Waterflow... I will bring my own Toilet I know what you mean right now I am going through a bad time controlling my IC and I get anxiety but I just go on and on everyday for my family.
              Blessings,
              Ruth

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