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Okay,
I have tried and tried and TRIED to stay positive and work with my IC and other ailments but they've finally won.
I'm in a major IC flare,but can't take pain meds because Opiods cause retention,(I took some last week and couldn't pee for hours). I have a cystocele and the way I understand it, that plus anything that slows the bladder or bowels,like narcotics or anticholenergics(sp?), can cause problems. I've been specifically told by my uro not to take any antisposmodics except my Klonipin for restless leg. Tylenol seems to irritate my IC. I've been drinking baking soda, taking warm showers, using heat and ice. Pyridium and AZO, btw, make me very queasy.
So, I am peeing every other minute, in pain, not sleeping and not going anywhere. I had a urine culture done last Monday, but it was inconclusive, so my doctor's nurse cathed me and sent the urine from that to the lab. I will get the results tomorrow. BTW again, I am very hesitant to take antibiotics because I had a Clostridia infection(awful), the last time I did take them, and the chances of another one are greater after the first.
In the meantime, my bowels are acting up,(IBS, leakage and maybe other problems), which I'm sure bothers my bladder as well. I am scheduled for a defacography on the 12th to see what's going on with my organs. I'm dreading that and have been putting it off but I guess I have to do it. A def. btw, is an MRI where they place some ultrasound gel into the rectum,(TMI?), and then take pics using the MRI,as you push the gel out, to see how everything is working. It's done in a closed MRI and I am SUPER claustrophobic.
To add insult to injury, my other problem, which is rather embarrasing, vaginal spasms, are driving me nuts, and also irritating my bladder further. I went to a female gyn and told her about this, but she had no clue excpet to tell me to get an eeg and maybe brain MRI. I honestly do not believe this is in my brain, I think it's related to all my other problems, but no one seems to get it or even wants to discuss it. Even my female acupuncturist told me she didn't work with that and didn't want to.
In the meantime, and the worst part, my family doesn't seem to get any of this. I thought my husband did, but some things he's said lately have made me believe otherwise. Really the only people I have who do get it, are all of you here.
As I've written before, my grand daughter is having her Bat Mitzvah in Michigan(we live in VA.) in two months and we of course are supposed to go and be social etc. but all I want to do is hide in my bed and not come out. It might be easier if I felt like my daughter,(mom of Bat M. girl), got it, but she doesn't. Bottom line, no one is helping or listening and I'm too tired to try any more. Even the counselor I went to didn't really understand, and I got charged each time I was too sick to go, so I stopped going.
For anyone who has gotten this far, thank you very much.
I'm going to go have a meaningful discussion with my dog, who seems like he cares,(probably just wants steak)!
Sorry for going on and on.
Laurie
I have tried and tried and TRIED to stay positive and work with my IC and other ailments but they've finally won.
I'm in a major IC flare,but can't take pain meds because Opiods cause retention,(I took some last week and couldn't pee for hours). I have a cystocele and the way I understand it, that plus anything that slows the bladder or bowels,like narcotics or anticholenergics(sp?), can cause problems. I've been specifically told by my uro not to take any antisposmodics except my Klonipin for restless leg. Tylenol seems to irritate my IC. I've been drinking baking soda, taking warm showers, using heat and ice. Pyridium and AZO, btw, make me very queasy.
So, I am peeing every other minute, in pain, not sleeping and not going anywhere. I had a urine culture done last Monday, but it was inconclusive, so my doctor's nurse cathed me and sent the urine from that to the lab. I will get the results tomorrow. BTW again, I am very hesitant to take antibiotics because I had a Clostridia infection(awful), the last time I did take them, and the chances of another one are greater after the first.
In the meantime, my bowels are acting up,(IBS, leakage and maybe other problems), which I'm sure bothers my bladder as well. I am scheduled for a defacography on the 12th to see what's going on with my organs. I'm dreading that and have been putting it off but I guess I have to do it. A def. btw, is an MRI where they place some ultrasound gel into the rectum,(TMI?), and then take pics using the MRI,as you push the gel out, to see how everything is working. It's done in a closed MRI and I am SUPER claustrophobic.
To add insult to injury, my other problem, which is rather embarrasing, vaginal spasms, are driving me nuts, and also irritating my bladder further. I went to a female gyn and told her about this, but she had no clue excpet to tell me to get an eeg and maybe brain MRI. I honestly do not believe this is in my brain, I think it's related to all my other problems, but no one seems to get it or even wants to discuss it. Even my female acupuncturist told me she didn't work with that and didn't want to.
In the meantime, and the worst part, my family doesn't seem to get any of this. I thought my husband did, but some things he's said lately have made me believe otherwise. Really the only people I have who do get it, are all of you here.
As I've written before, my grand daughter is having her Bat Mitzvah in Michigan(we live in VA.) in two months and we of course are supposed to go and be social etc. but all I want to do is hide in my bed and not come out. It might be easier if I felt like my daughter,(mom of Bat M. girl), got it, but she doesn't. Bottom line, no one is helping or listening and I'm too tired to try any more. Even the counselor I went to didn't really understand, and I got charged each time I was too sick to go, so I stopped going.
For anyone who has gotten this far, thank you very much.
I'm going to go have a meaningful discussion with my dog, who seems like he cares,(probably just wants steak)!
Sorry for going on and on.
Laurie
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