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Which was easier for you?
Just wondering how many of us found it easier to just finally give up on finding anymore help on the IC and other health issues? I myself think going on pounding my head and crying myself to sleep was harder to deal with then to just stick my head in the sand and live with it all. I do go for weekly heparin/lidocaine instills and have the vicoden.
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23Yes, easier to give up17.39%4No, I will never give up82.61%19 -
Given up
I gave up 10 years ago, but luckily the doctors are being educated now on IC and Endo. It nice to know it's not in my head, even better when a doctor states that "it's not in your head."Diagnosis: Endometriosis, IC, PID, PCS, PFD, PN/PNE, VV, fibro, Pelvic Adhesions, DDD, Hysterectomy at a young age. Unable to take estrogen, causes pain—extremely bad pain.
Thankful: For all the support and comfort I receive on this site. -
never giving up>>>>Newly IC diagnosed as of February 2011.
Medications I'm on that seem to work:
Zoloft- one once a day
Butrans pain patch 5 mcg (THANK GOD FOR WHOEVER INVENTED THIS!SO MUCH PAIN RELIEF ITS UNREAL,I AM IN NO PAIN AT ALL UNLESS I STRESS OR SCREW UP ON THE DIET)
Failed Meds:
Elmiron-after 4 months,digestive side effects got to be too much
tramadol-allergic
DMSO treatments(5-6)
probiotics
THERAPIES:gardening,cooking,IC Diet,Counseling,Lots of warm baths,stress reduction,heating pad or ice packs,meditation/deep breathing,listening to relaxing music,having fun on pain free days,drinking chamomile or peppermint tea,pelvic floor physical therapy
AROMATHERAPY-candles,incense
Village Naturals Aches and Pains Peppermint Bath Salts
Johnson and Johnsons Lavender Melt Away Stress Body Wash/Lotion
ACUPUNCTURE/HERBS
Significant pain relief so far.
MAY TRY:yoga,swimming/hydrotherapy and anti-candida diet if i can kick my sugar addiction
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***TO MY IC SISTERS AND BROTHERS:WE ARE OUR OWN ADVOCATES!,PLEASE DO AS MUCH RESEARCH ON YOUR OWN AS POSSIBLE AND TRY DIFFERENT TREATMENTS TO GET WELL.NOT ONE TREATMENT WORKS FOR EVERYONE.MOST IMPORTANTLY,TRY TO KEEP A POSITIVE ATTITUDE,DISTANCE YOURSELF FROM NEGATIVITY/NEGATIVE PEOPLE AND NEVER,EVER GIVE UP!***
Add me on facebook Angela Hasic
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Lord, make me an instrument of your peace;
where there is hatred, let me sow love;
when there is injury, pardon;
where there is doubt, faith;
where there is despair, hope;
where there is darkness, light;
and where there is sadness, joy.
Grant that I may not so much seek
to be consoled as to console;
to be understood, as to understand,
to be loved as to love;
for it is in giving that we receive,
it is in pardoning that we are pardoned,
and it is in dying [to ourselves] that we are born to eternal life.
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giving up
Waterflow,
I gave up for a while, but am back to working on getting better. I think I just needed a little rest from doctors, etc. Maybe that's where you're at right now?Comment
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I will never give up. I've had to fight to get all of the treatments in my sig on the crappy, slow NHS as they don't seem interested if your condition is invisible, chronic or something they don't understand. Giving up would be ending my life because I can barely handle living life like this and if I thought I had no hope of a future without pain I just wouldn't see the point.
I've already exhausted 90% of the more usual options but I just keep thinking if I carry on trying to see different people, try anything possible however unlikely it is to help then at least there's a chance of hitting the jackpot and finding some relief. If I give up there's no chance.Seven years of hell ongoing, chronic bladder and urethral pain with an umbrella diagnosis of 'chronic pelvic pain syndrome'
Procedures done:
3 x Cystoscopies (1 with biopsy)/1 x Kidney Ultrasound/1 x Laparoscopy (found old endometriosis)/1 x Pelvic MRI/12 Cystistat Instillations/1 x Nerve Block in my spine (no anaesthesia)/Acupuncture
Drugs I've had:
Nabilone/Tramadol/Dosulepin/Amitryptaline/Oramorph/Gabapentin/Pregabalin/Ketamine/Duloxetine/Buprenorphine
Due to have Sacral Nerve Neuromodulation Therapy in April 2012 (Insterstim Therapy I believe it's called)
Currently taking:
600mg Pregabalin, 120mg Duloxetine, 30mcg/hour Buprenorphine through transdermal patches, Laxatives every night and a nightly Trimethoprim antibiotic.Comment
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