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Phsycially, emotionally, and finacially drained

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  • ICNDonna
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    Donna

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  • lizzie_71
    replied
    Tired of it.

    I know how you feel. I was already disabled d/t several
    DX.'s mostly back pain for about 20 years, first HNP in 1990 in neck. I've been on so many pain pills and other meds for depression and anxiety. I believed they were the cause of me devleoping IC. So I've been trying to get off as many as possible. I was off premarin for at least 2 months and at times , that is some days were alittle better. But the hot flashes came back very badly. So I asked my Dr. for a patch of estridiol (estrogen) and after1 week ,my hot flashes have gone away but my IC is worse. Is this just a coincidence? Usually pee every hour but at night I can go 1 and 1/2 hrs. and have to self-cath at least twice a night, sometimes more. So I'm going back to the Uro. Dr. next week. I'm really good with the IC diet,so I don't think it's any thing I've eaten. I hate sleep depravation.
    blessings for you,
    Lizzie_71:

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  • Pammylynn8
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    Hugs!! Yes it can be sooo hard It is something I am trying to get used to.. and it takes time..

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  • nanawaggs
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    Hi, Jerzeygirl ~ Oh, how many of us identify with you. I was already "retired" when my IC hit so I don't experience missing the work companionships but the rest is familiar. My hubby and I were "savers" during our working years and now it's time to spend it, but certainly not as we planned.....the medical bills sure add up.

    I absolutely remember saying the same as you about wanting my old life back. I wanted to feel well once again. I wanted to go places without knowing ahead where all the bathrooms were so every 5 minutes I could "go". I wanted to go places with my friends but always had to ask them to understand when I needed to stay close to a bathroom. I still have my times (in fact just these last few weeks I've been in a flare most likely due to my own denial about this miserable disease) but I NOW KNOW I CAN GET THINGS UNDER CONTROL. I understand there are many who aren't as fortunate and battle daily, monthly, yearly but with treatment I have been able to make life more livable once again.

    Are you using the IC Diet? Do you have relief with any of your doc's treatments? I really found the diet helps, particularly if we're diet sensitive.

    I'm glad you are able to vent here and find some comfort that others share your frustration with compassion. Please don't ever give up, we need to keep up the hope that some day they will find better solutions to our problems.

    Blessings and let us know how you're doing.

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  • Jerzeygirl
    started a topic Phsycially, emotionally, and finacially drained

    Phsycially, emotionally, and finacially drained

    I am physically, emotionally, and finacially drained from this disease. I am tired of feeling pain, having the urge to pee, or even running the bathroom throughout the day. I am tired of not being able to work due to these symtpons. I miss the interactions I would have with my co-workers on a daily baisis. I feel lonely at times being home all by myself during the day.I sometimes find myself crying wanting my old life back, the life I had prior to IC. I am tired of paying co-pays each week,paying for prescriptions, treatments, and hosptial visits. I am fortuanate enough to get a little assiastance from my former job, however it barely covers my medical expensives. I am tired of this disease in general. I wish it would just go away!
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