No announcement yet.

One of those days

  • Filter
  • Time
  • Show
Clear All
new posts

  • One of those days

    It is one of those days where I just feel like crying. I am hurting physically, emotionally, and spiritually. Every cell in my body is screaming out in pain. Personally, I am not where I want to be professionally. I don't have my dream career. I can hardly work because of the IC and Fibro. Most days I just want to give up. Family as usual is in turmoil. I dont have a social life. I want to get married and have at least one kid (having anxiety about this). I want to live. I want to be like other people. I just want to cry. I just want to be happy. Pity party for one.
    IC-diagnosed August 1998 with cystoscopy and hydro
    IBS-diagnosed in 1998 probably had for majority of my life
    Fibro-Diagnosed in 2010
    Other conditions: Depression, High Cholesterol (irony)

    Primary symptoms: PAIN, bloating, frequency, urgency, fatigue

    Current Meds: Elavil 10mg at bedtime, Toviaz 4mg at bedtime, Lyrica 3x a day

    Failed meds: Vesicare, Detrol LA, Celexa, Vioxx, Celebrex, Ditropan XL, Elmiron
    "In the middle of difficulty lies opportunity."

  • #2
    one of those days

    Oh Grinch, I'm so sorry that you're having a bad day.
    I hope your tommorow is a lot better.


    • #3
      I am sorry. I already had social anxiety before IC so I wasn't dating and now I too feel like a 'husband and kid' thing isn't going to happen especially now.


      • #4
        So sorry.. I used to have really bad anxiety. Then I finally got treated with right meds and it got better. I still have those "down" days when I am feeling down about everything. It can be hard not knowing if things will get better, but just knowing there are others out there that feel the same way is comforting for me.. hugs!
        -Pammylynn Rose
        Wishing everyone a pain free bladder day!

        Painful symptoms start in May 2011
        Diagnosed with IC in Aug 2011

        Axert (only for rare migraines)
        Strict IC diet
        Gluten/dairy/egg free diet


        • #5
          So Sorry you are feeling like this! I was just diagnosed recently and have those days too many more then I would like to admit, it is not easy dealing with IC and missing your old life and not feeling sorry for yourself and constantly worrying about what your future will bring but please hang in there and know you are not alone in this and we are all here for each other and are entitled to have self pity parties cause well IC SUCKS! Hope tomorrow is better and everyday from here just keeps getting better!


          • #6
            Dear Grinch,

            I am so sorry you are having such a bad day. I think we all have those. (Heck, some of us have "bad decades"! But, no matter how bad you may feel about yourself right now, just remember that there are always people (like me) who admire you just the way you are! I admire you and all of the others out there who still somehow manage to work AT ALL! I don't know how in the world you guys do it when I would be willing to bet that you have as much pain as the rest of us have, except you just still refuse to quit and go on disability. I cant tell you how much I respect and admire you for this! It truly astonishes me how you can possibly work in this condition. But, even if you guys arent as bad off as we are on a day to day basis, Lord knows that you still have some really, really bad days, just like the rest of us. They may happen once a week, every few weeks, or once a month. Yet we all know that no one can call in sick once,twice, or espcially 4 times a month! So, that means you all just go to work and suffer right on thru these and I for one dont know how in the world you do it!

            Then, after working all day, you still have to come home, cook supper, do the dishes, a few loads of laundry, vaccum, change sheets, clean bathrooms, etc. Since all working women really have 2 jobs.....the daytime one that pays, and the night-time one that doesnt. Yet they both have to be done and get done by you superstars! Yet here I am, home all day, and in bed most days, and often get nothing done all day except for maybe petting the cat. Talk about making a gal feel guilty!!!!

            You say you want to be like other people. Let me be the first to say you never could be, b/c you are way better than most people. So, next time you start to feel bad about yourself, look in the mirror and try to see what I amazing women who is tough as nails (or she couldnt possibly work in this condition). I see a women with a strong work ethic who somehow manages to do it all! I deeply admire and respect you and all those out there like you!

            I hope and pray that you feel better physically, emotionally, and spiritually very soon. I pray that God will send you the perfect mate for you, the one that God made just for you and that you find each other soon.

            Sending you very big hugs,
            I am not a medical professional. I do not give medical advice. In all cases, I urge you to talk to your Dr. about your treatment options.

            D/Xed 2003 with IC. Also have the co-existing condtions of VV, Vulvadynia, Lupus, Fibro, GERD, CPP, Endo, & Adhesions, and Depression

            Meds: Estrogel (due to total Hyster)
            The meds r/xed by my Pain Dr. from the Pain Clinic are as follows: Morphine ER and IR, Baclofen, and Lyrica and Seroquel (used off-label as a sleeping pill, but it also helps with depression)

            (I listed my meds in case someone reading this has been told like so many ICers that Drs dont r/x pain meds for IC.) I want you to know that there ARE tons of us who are also dealing w/this disease and the pain and many of us ARE on pain meds.)

            John 3:16 For God so loved the world that he gave his only begotten son, that whoever believes in him shall not perish but have everlasting life.