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  • #1

    Can't go to sleep at night

    I have no problem taking a nap, but when it comes to going to bed at night, I just can't sleep. My anxiety takes over, my mind races, and I start to slightly shake and get cold sweats. For the past several nights I've been taking an Ativan and 1 Tylenol PM to sleep and that's been working. Well, tonight I tried not taking anything. Here I am at 12:30am, out of bed, and I just took my Ativan and Tylenol PM

    I guess I just wanted to post somewhere. Does anyone else deal with this at night? It's always taken me a long time to fall asleep but since my IC has been flaring back up, I just lay there and think about every little pain/irritation and it becomes too much. I hate having to medicate myself in order to sleep
    Diagnosed with IC in 2004 at the age of 19
    12 weeks of instillations (don't remember what)
    Remission from late 2005 until August 2011.
    Married in 2005 - Our son was born in 2008!

    IC acting back up after a severe UTI in June followed by another mild UTI in August.

    Current Treatment
    ~IC diet - not strict, but avoiding most things including my beloved soy chai lattes. Drinking only water and blueberry juice. No tomatoes or anything spicey.
    ~1/2-1mg Ativan per day - has been the only thing to help! Praying that my doctor will let me continue with it
    ~25mg Doxipen
    ~Azo as needed (don't really notice a difference)

    IC symptoms get progressively worse throughout the day. Sleep and constant distraction are my only refuge!
    Tags: None
    • #2
      yes I have a problem stayiing asleep without medication. I take ambien. I fought taking medication for a long time but gave in finally when I realized I was so miserable. At least now I can sleep at least until 6 in the morning. I hope you get some sleep. I long for the old days when I could nap at anytime of the day and sleep all night too.

      Sue

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        • #3
          sleep

          Ok guys I cant sleep and I take Ambien CR 2 xanax and I am still awake any suggestions?
          Blessings,
          Ruth

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            • #4
              My mind does the same thing. I take hydroxyzine (100 mgs.) when I go to bed. Some nights I fall asleep within 15 minutes. Other nights can take 2-3 hours. Depends on how much my brain is working. Try to do calming breathing and shut off your mnd. That might help.

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                • #5
                  I usually take a book to bed with me. I have a TV & DVD player in our bedroom so I sometimes will watch a movie before I feel sleepy enough. I also have ambien on hand but I don't take it unless I can't sleep after reading or watching TV.


                  Donna
                  Stay safe


                  Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
                  Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

                  Have you checked the ICN Shop?
                  Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

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                  AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

                  I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.                   [3MG]

                  Anyone who says something is foolproof hasn't met a determined fool

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                    • #6
                      Sleep issues seems to go hand in hand for some people with IC. I just didn't sleep for years.

                      Until I got a migraine lasted litterally for years with no break. I just could not shake it, tried all kinds of things from meds to no meds, accupunture, botox etc.

                      I changed dr's who put 2 and 2 togehter and realize the headache was from sleep deprivation due to IC, once I started sleep meds, slowly the headache got better, and my IC symptoms improved and other sleep deprevation issue cause.

                      I still wake with a headache if I don't get enough sleep, but dealing with not sleeping improve my quaility of life 100%.

                      Just don't ignore this get some help.

                      MG
                      My are with you all. May you all find a way to peace and joy in your lives.

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                        • #7
                          sleep

                          OK Mothergoos may I ask what meds you are on?
                          Blessings,
                          Ruth

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                            • #8
                              My sleep was so badly disrupted by my bladder pain that even after the bladder pain calmed down I still couldn't sleep. The insomnia pattern had set in. I had taken Ativan which really helped but sometimes it was still difficult. Atarax was also helpful when I tried it. I have a meditation/self hypnosis tape I play when I get in bed and I fall asleep really quick from it. If I wake up again I keep playing it all night if I have to. The voice on the tape displaces my own thoughts of worry and anxiety.

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                                • #9
                                  Elavil was a miracle drug for me with regard to sleep and nocturia. I went from voiding every 20 minutes day & night, to being able to sleep through the night with only 1-2 wakeups.

                                  I use a heating pad under my back every night (it has a shut-off after 2 hours). I really can't sleep without it. Should have come with a label "may be addictive". For some reason, putting it on my bladder directly helps with flares, but for everyday tension & can't sleep, underneath me works best.

                                  I also use the "sleep" feature on my ipod dock radio to listen to podcasts or the "sleep" feature on the tv to watch favorite dvds. I'm usually out before 30 minutes. When I get up to use the bathroom at night, I almost always put the podcasts back on with "sleep".
                                  Kadi

                                  -------------------------------------------------------------
                                  I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
                                  ------------------------------------------------------


                                  New favorite quote: "God gives us only what we can handle. Apparently God thinks I'm a bad-ass" ~Author Unknown
                                  Source - Pinterest
                                  "

                                  Current treatments:
                                  -IC diet
                                  -Elavil 50mg at night
                                  -Continuous use birth control pills (4-5 periods/year)
                                  -Heparin/Marcaine/Sodium Bicarb home instills at night 3-4x per week, more often if needed
                                  -Pyridium if needed,
                                  -Pain medicine at bedtime daily, as needed during the day several times per week
                                  -Antibiotic when doing an instillation to prevent UTI
                                  -Colace & SmartFiber to treat chronic constipation from meds, Fleet enema as needed
                                  -Dye Free Benadryl 50 mg at bedtime
                                  -"Your Pace Yoga: Relieving Pelvic Pain" dvd, walking, treadmill at gym
                                  -Managing stress= VERY important!
                                  -Fur therapy: Hugging the cat!

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                                    • #10
                                      I forgot about the heating pad underneath. I used that too all the time.

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                                        • #11
                                          I was very reluctant about meds because I used to take Klonopin to sleep and felt guilty for having to take it. Well, I finally came to the realization that I cannot sleep through the night most of the time, mostly because of IC symptoms. It's extremely hard to get up a couple times a night and fall back to sleep. So I realized I have a serious problem and a legitimate medical condition that requires medication to sleep. I now take the Ambien and can sleep almost 6 hours without waking to pee. If I'm very desperate I'll take an antihistamine or ativan to knock me out even more. Some nights the Ambien is not enough for some reason. Having bad nights of sleep causes many other additional problems for me and it's not worth it.

                                          Oh...and I cannot sleep without my heating pad. I have a stone pad from Korea (maybe they have them hear) and I put it on my bladder each night. The heat calms me down and relaxes me. Reading helps get my mind to calm down and refocus. Of course it has to be something I'm really interested in.

                                          I hope the nights get better for you.
                                          Frances

                                          Diagnosed: 2011 - have had symptoms for over 20 years. Diagnoses so far: Overactive Bladder, then IC, and now Myofacial Pelvic Pain Syndrome.

                                          Medicines: For IC am doing PT, and will be taking Gabapentin, Ativan, Tramadol and Ambien. Ice packs and drinking vanilla shakes help. Foods that cause a flare, tomatoes, yogurt, coffee, soda, all sports drinks, and most teas. Take Verapamil, Naproxen (as needed), Omeprazole, Frova (as needed) and receive Botox shots(every three months) for migraines. For allergies I use Claritin and Flonase. (Feel free to ask me any questions about meds.)

                                          Other conditions: Migraines, allergies, mild IBS.

                                          "If you believe, you will receive whatever you ask for in prayer." (Matthew 21:22)

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                                            • #12
                                              I agree getting proper rest with IC is a challenge for sure. I take zopeclone at bedtime it's a mild sleeping pill. I usually get up 4 times at night and it helps me to get back to sleep without as much tossing and turning.
                                              As for the racing mind I have read books by Eckhart Tolle his teachings have really helped me.
                                              Good Luck,
                                              Cindy-Lou

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                                                • #13
                                                  sleep

                                                  I am going to try 2 Tylenol pm and a Ambien see how that works?
                                                  Blessings,
                                                  Ruth

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                                                    • #14
                                                      Cindy-lou...you get up 4 times? That's horrible. I used to get up 2 to 3 times and occasionally am up more with flares. (but thankfully it's not often and I have good sleep meds) I feel so bad for you!
                                                      Frances

                                                      Diagnosed: 2011 - have had symptoms for over 20 years. Diagnoses so far: Overactive Bladder, then IC, and now Myofacial Pelvic Pain Syndrome.

                                                      Medicines: For IC am doing PT, and will be taking Gabapentin, Ativan, Tramadol and Ambien. Ice packs and drinking vanilla shakes help. Foods that cause a flare, tomatoes, yogurt, coffee, soda, all sports drinks, and most teas. Take Verapamil, Naproxen (as needed), Omeprazole, Frova (as needed) and receive Botox shots(every three months) for migraines. For allergies I use Claritin and Flonase. (Feel free to ask me any questions about meds.)

                                                      Other conditions: Migraines, allergies, mild IBS.

                                                      "If you believe, you will receive whatever you ask for in prayer." (Matthew 21:22)

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