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  • estrogen & hormone replacement

    What experiences have others had with hormones? I am 46 and have used OrthoEvra patches for 2 months now; they are strong enough to act as birth control and override my own hormones which were really getting out of whack. Anyway, about a week after I started them, my bladder symptoms improved dramatically and stayed that way for almost 2 months. It was very cause/effect. Also, my migraines disappeared! Unfortunately, something changed and I had a bad flare 10 days ago. It's as if the initial feelings of "being pregnant" like sore breasts and weight gain involved processes that saved me from bladder pain; once my body adjusted to the higher hormone levels the IC symptoms returned. I am going to call my provider tomorrow to discuss.

  • #2
    I am quite sure the hormones play a hige role in IC based on personal experience as well as reports fom others. Maybe this explains why not many men get IC too? I just don't know what the role is exacly though. Perhaps there will be some sutdies on it?

    I didn't have bladder problems until after my first child. During pregnancies (4) I felt great and no bladder problems. As soon as they were born, WHAM, actually a few months after dilivery. Then, a couple yrs. after my last child the real problems started. One bladder infection after another. Then IC.

    Soon, I got endometriosis too. I had a hysterctomy and the IC got really bad. They put me on HRT and it helped the IC but made the Endo. worse so I'm in a catch 22. If I could have stayed pregnant for the rest of my life I would have.

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    • #3
      dminton,

      I am certain that the estrogen patch helps my i.c. I have had a hysterectomy, so I can just take the estrogen patch and not have to take the progestins. Once when my husband and I were trying to rejuvenate our sex drives (I'm 63, he is 60,) I asked my obgyn for something to help boost it and she gave me some progestin pills. I didn't realize that they aggravated i.c. My i.c was in total remission at that point. As soon as I started the progestins, in about 5 days my i.c. returned and was a nightmare (I had also lowered my estrogen patch to .5 mg) I immediately cut out the progestin and put my estrogen back up to l.0 mg, and obtained some relief, but the damage was done, or so it seemed. This time I haven't been able to get back to remission. I know that if I forget to put on my new estrogen patch for a few days, my i.c. flares badly. I can't reallyl prove the progestins and lower estrogen are the total culprits, but I feel pretty strongly that they are. Later I read that the progestins are aggravaters of i.c. At the time I tried them I had been in total remission for 3 years and thought I didn't even have i.c. anymore, so I wasn't even thinking that anything was going to start it up again. I was back on a normal diet, could have aspartame, coffee, cokes, etc. so I thought I was done with i.c. I could kick myself for starting those pills. But actually another trigger could have been waiting to get me somewhere down the road. Sorry to be so lengthy. Good luck,\
      lyse

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      • #4
        Hi. I am 37 and I have been post menopausal for 8 years. I had endo and a complete hysterectomy. Where did you guys hear about progesterone and IC? I am on .5 estradiol every second day, 100 mg of prometrium a day, estradiol cream amd topical testosterone. I go in for dmso installtions every 6 months because I can't tolerate Elmiron. I did find something that seems to be helping a lot, though. I have been on Celebrex for 2 months and my IC symtoms have disappeared. Weird, huh? I should be going into flare up mode right now.

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        • #5
          Tracey: Welcome to the IC Network.

          I'm glad you are doing so well.

          Warm hugs,
          Donna
          Stay safe


          Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
          Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

          Have you checked the ICN Shop?
          Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

          Patient Help: http://www.ic-network.com/patientlinks.html

          Sub-types https://www.ic-network.com/five-pote...markably-well/

          Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

          AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

          I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
          [3MG]

          Anyone who says something is foolproof hasn't met a determined fool

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          • #6
            I KNOW for me that hormones are very related to my symptoms. I have had a hysterectomy for endometriosis and now take Estrace and Estratest. If I'm 3 hours late taking it in the morning my bladder reminds me. Hormones don't get rid of my symptoms but help.

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