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i hear all the time about how menopause and decreased estrogen and taking the pill hellp people stay out of flares or decrease pain, but are there any out there who think the pill hurts more than helps? I'm just wondering b/c I am trying to figure out what caused this flare up and I just started the BC pill after quitting when I started having IC symptoms back in 06, and now I seem to have a flare for about 6 days now, if anyone has any feedback, let me know.
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Onset of symtoms November 1, 2006
Diagnosed December 8, 2006 with cysto/hydrodistention... Gradual relief with elmiron around month two, keep feeling better and better. and then remission
2008 Update...still in remission
Diagnosis: IC
Meds: Elmiron 300mg/day, hydroxyzine 25 mg 1x/day
Myspace: Add me! Im always looking make new IC friends. http://www.myspace.com/45171133 -
gosh, I don't know what to tell you, I had a hysterectomy in Nov 05, before that I hadn'r used birth control it 15 years.
I am sure there are many that will have an answer for you. I do know of one that no matter what hormone b/c she used flaired her, and she got an IUD.'The will of God will never take you where the Grace of God will not protect you.'
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My IC doctor says that birth control pills bother some IC patients, but help others. He said that he looked for a pattern several years ago, but was unable to find one. (RATS!)Kadi
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I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
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New favorite quote: "God gives us only what we can handle. Apparently God thinks I'm a bad-ass" ~Author Unknown
Source - Pinterest
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Current treatments:
-IC diet
-Elavil 50mg at night
-Continuous use birth control pills (4-5 periods/year)
-Heparin/Marcaine/Sodium Bicarb home instills at night 3-4x per week, more often if needed
-Pyridium if needed,
-Pain medicine at bedtime daily, as needed during the day several times per week
-Antibiotic when doing an instillation to prevent UTI
-Colace & SmartFiber to treat chronic constipation from meds, Fleet enema as needed
-Dye Free Benadryl 50 mg at bedtime
-"Your Pace Yoga: Relieving Pelvic Pain" dvd, walking, treadmill at gym
-Managing stress= VERY important!
-Fur therapy: Hugging the cat!
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so, if a birth control pill does bother an IC patient and the BC pill is supposed to trick the body into thinking it is pregnant, does that mean that when Ic PATIENTs who do not tolerate BC have no hope of spontaneous remission while pregnant?? I just wish I knew so I could decide to stop taking the pill or not, why does everything have to be so complicated.Onset of symtoms November 1, 2006
Diagnosed December 8, 2006 with cysto/hydrodistention... Gradual relief with elmiron around month two, keep feeling better and better. and then remission
2008 Update...still in remission
Diagnosis: IC
Meds: Elmiron 300mg/day, hydroxyzine 25 mg 1x/day
Myspace: Add me! Im always looking make new IC friends. http://www.myspace.com/45171133Comment
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Actually, I tried the patch and it put me into a flare within just a couple of days. But, I just can't take hormones. So, it could be the cause of your flare.mom_in_maComment
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I don't know about menopause yet but I know that I get a HORRIBLE flare when I get my period because I just had my first one in months and it was awful. I take continous birth control for this very reason. I know there are some other women who do this too.Christine
I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
I have tried every oral medication as well as rescue instills and DMSO.
I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)
Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
Also proud mom to the best Bullmastiff on earth, Claus
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Bam
BC pills are a smorgasboard of doses, and types of estrogens and progestins. If one isnt working for you and causing a flare, ask the MD for another type. In general for IC a higher estrogen is better than a higher progestin. Ovcon 35 is a common BC pill that a lot of IC'ers can take.
If you are interested in birth control, ask about the Mirena IUD. I had one and loved it, it will stop periods after a time and is a BC device also.
Sammi
Sammi
Meds: Melatonin 3mg @ bedtime if needed. Estrogen 1.5 mg troche and 0.1 mg Estrace cream.
Diagnosis: IC, PFD (both in remission)Comment
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