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  • Anyone here get worse with BC????

    I'm on Loestrin 24, and oh my word has it flarred up my IC even worse!!!

    Already feeling better now that I stopped it.

    Anyone else?

  • #2
    I started zovia 1/50 a month ago and I was flaring really badly for a few days then it went away. I think it was due more so to the BV that I had. Im actually feeling a lil better while on birth control. I havent the PMS flare that I usually have. Some hormones can negatively affect an IC bladder. Is the birth control ur using progesterone or estrogen dominant? You might need to switch. Talk to your doctor.
    Diagnosed with IC October 2009- through bladder biopsy (no glomerations or hunners ulcers found, just irritation)

    I have moderate-severe IC

    Currently stopped taking all medications due to pregnancy

    Comment


    • #3
      Needs Relief,

      I get chronic BV, have you figured out anything that helps you to get it less frequently?
      Live Well
      Love Much
      Laugh Often!




      Diagnosed:
      Dec 2005
      Diagnosis:
      IC
      Cysto/Hydro:
      Dec 2005
      Other Conditions:
      Anxiety, Insomnia, Chronic Sinusitis, Bursitis of the hip, Chronic Fatigue Syndrome, PFD, Inflamitory Arthritis of the neck, Allergy to Yeast and Dairy
      Meds for IC:
      Prosed/DS as needed which works much better for me than Pyridium, Prelief, Coffee Tamer, Claritin 5mgs and sodium bicarb as needed.
      Alternative Treatments
      Physical therapy for 8 weeks, Acupuncture (just started).
      Other Meds:
      Skelaxin (as needed)
      Didn't work:
      Detrol LA (didn't help symptoms), Pyridium 200mg isn't working very well anymore.
      Tried:
      Elmiron (Major Dizziness), Hydrodistention (Greatly exacerbated IC symptoms), Urised (hard time breathing), Ditropan (bladder pain the next day), Rescue Instillations - Lidocane, sodium bicarb (all over body rash with itching),

      Comment


      • #4
        Shamay

        I do ok if I take 2 femdophilus a day. If u find a probiotic with the strains reuteri and rhamnosous, those strains are best for vaginal health. The other ones target the digestive system. Unfortunately, if I dont take probiotics BV comes back right away. Any probiotics with those strains need to be refrigerated or they will loose thier effectivness. Good Luck
        Diagnosed with IC October 2009- through bladder biopsy (no glomerations or hunners ulcers found, just irritation)

        I have moderate-severe IC

        Currently stopped taking all medications due to pregnancy

        Comment


        • #5
          Thank you for the information.
          Live Well
          Love Much
          Laugh Often!




          Diagnosed:
          Dec 2005
          Diagnosis:
          IC
          Cysto/Hydro:
          Dec 2005
          Other Conditions:
          Anxiety, Insomnia, Chronic Sinusitis, Bursitis of the hip, Chronic Fatigue Syndrome, PFD, Inflamitory Arthritis of the neck, Allergy to Yeast and Dairy
          Meds for IC:
          Prosed/DS as needed which works much better for me than Pyridium, Prelief, Coffee Tamer, Claritin 5mgs and sodium bicarb as needed.
          Alternative Treatments
          Physical therapy for 8 weeks, Acupuncture (just started).
          Other Meds:
          Skelaxin (as needed)
          Didn't work:
          Detrol LA (didn't help symptoms), Pyridium 200mg isn't working very well anymore.
          Tried:
          Elmiron (Major Dizziness), Hydrodistention (Greatly exacerbated IC symptoms), Urised (hard time breathing), Ditropan (bladder pain the next day), Rescue Instillations - Lidocane, sodium bicarb (all over body rash with itching),

          Comment


          • #6
            yep

            Yeah, that's actually how mine flared up to be diagnosed, or that's what I'm thinking. I was on progesterone only because I don't tolerate estrogen. It makes me worried that I'll have a really hard time if I manage to get pregnant since pregnancy increases progesterone and estrogen big time...

            Oh, and once I stopped the progesterone (had been on it for 4 months), it went down a little tiny bit, but not much.

            Comment


            • #7
              I Agree!

              Hi,
              I agree with needsrelief the reuteri and rhamnosis are key. I take a different brand (primadophilus reuteri) but the same probiotics. Most days I take one but if I feel "funny" I take 2 one in morning, one at night and it goes away! Its awesome. I swear by it.

              Originally posted by Shamay View Post
              Needs Relief,

              I get chronic BV, have you figured out anything that helps you to get it less frequently?
              Cindi


              Gelnique for frequency/urgency - works great
              Macrobid after sex
              Prilosec, continuous birth control pills
              synthroid .088mg, mucinex-d, restasis

              Supplements: Desert Harvest Aloe vera, Cysta-q, prelief, magnesium and calcium, Vit D, flaxseed oil

              Diag Mild IC Jan 11 but have had symptoms for 25 years. Also have GERD, TMJ, IBS-C, chronic dry eye syndrome, hashimotos thyroiditis, non-allergic rhinitis.

              IC Diet Link: http://www.ic-network.com/diet/2009icdietlist.pdf
              AUA 2011 Guidelines to diagnosing and treating IC overview- http://www.ic-network.com/forum/showthread.php?p=571592
              AUA 2011 Guidelines to diagnosing and treating IC PDF: http://www.auanet.org/content/guidel...ent_ic-bps.pdf
              Great treatment flowchart on page 19 of the pdf

              Comment


              • #8
                Thank you, I will have to give it a try.
                Live Well
                Love Much
                Laugh Often!




                Diagnosed:
                Dec 2005
                Diagnosis:
                IC
                Cysto/Hydro:
                Dec 2005
                Other Conditions:
                Anxiety, Insomnia, Chronic Sinusitis, Bursitis of the hip, Chronic Fatigue Syndrome, PFD, Inflamitory Arthritis of the neck, Allergy to Yeast and Dairy
                Meds for IC:
                Prosed/DS as needed which works much better for me than Pyridium, Prelief, Coffee Tamer, Claritin 5mgs and sodium bicarb as needed.
                Alternative Treatments
                Physical therapy for 8 weeks, Acupuncture (just started).
                Other Meds:
                Skelaxin (as needed)
                Didn't work:
                Detrol LA (didn't help symptoms), Pyridium 200mg isn't working very well anymore.
                Tried:
                Elmiron (Major Dizziness), Hydrodistention (Greatly exacerbated IC symptoms), Urised (hard time breathing), Ditropan (bladder pain the next day), Rescue Instillations - Lidocane, sodium bicarb (all over body rash with itching),

                Comment


                • #9
                  I began to flare using oral estrogen, tried the patches but had topical reactions to them. I'm now on Evamist which is sprayed on and seems to do fine. It is expensive though.
                  I'm Perfectly Imperfect and Praying for Remission

                  Comment


                  • #10
                    Thank you for the information!
                    Live Well
                    Love Much
                    Laugh Often!




                    Diagnosed:
                    Dec 2005
                    Diagnosis:
                    IC
                    Cysto/Hydro:
                    Dec 2005
                    Other Conditions:
                    Anxiety, Insomnia, Chronic Sinusitis, Bursitis of the hip, Chronic Fatigue Syndrome, PFD, Inflamitory Arthritis of the neck, Allergy to Yeast and Dairy
                    Meds for IC:
                    Prosed/DS as needed which works much better for me than Pyridium, Prelief, Coffee Tamer, Claritin 5mgs and sodium bicarb as needed.
                    Alternative Treatments
                    Physical therapy for 8 weeks, Acupuncture (just started).
                    Other Meds:
                    Skelaxin (as needed)
                    Didn't work:
                    Detrol LA (didn't help symptoms), Pyridium 200mg isn't working very well anymore.
                    Tried:
                    Elmiron (Major Dizziness), Hydrodistention (Greatly exacerbated IC symptoms), Urised (hard time breathing), Ditropan (bladder pain the next day), Rescue Instillations - Lidocane, sodium bicarb (all over body rash with itching),

                    Comment


                    • #11
                      New to IC!!!

                      Hi I've only developed IC symptoms since march of 2012. I'm 48 and in April it hit me like a truck. The pressure, the pain and the many trips to the toilet. I don;t suffer urgency but frequency. I live in the UK and over Easter it was a nightmare trying to get anyone to take me seriously. They told me it was a UTI etc. Had a ultrasound scan of my bladder,uterus and ovaries and they only found 2x1cm fibroids. Urologist that I see for a cyst on my left kidney told me to take antibiotics for 6 months and that it was not IC and the pain was caused by nitrites in my urine culture????? The antibiotics gave me extreme pain and i went back to GP. He examined me and agreed with me that it might be IC, He put me on Cimetidine for a week to see if I would have relief, I did but it constipated me so stopped. I also had a cystoscopy in july 2011 and they found sqamous displasia on my trigone so he suggested I try Vagifem for a month. I did but it burnt a little when I used it and did not get much relief. He is now refering me to a Gyno-urologist and he suggested I take Ovestin 0.1 mg 2x a week. I have been resding all these forum and I do find it difficult to see what to try next, I have changed my diet and I am rying quercitine, prelief, and mashmellow root . Keeping my fingers cross!!! Thanks for all you suggestions it really help when you feel very lonely on this IC Planet.

                      Comment


                      • #12
                        YES I have been off BC for a year. It flares my IC so bad that it is just not worth it for me to take. I was on it for 10 years prior to IC, but I was never able to continue it after.

                        Hormones do tend to affect IC, and I think that it is a fairly common thing for us to have problems with hormonal BC unfortunatley

                        Jenn
                        28 yrs old,

                        I have little to no problems now with my bladder, unless I am very stressed out, I forget to take Elmiron for a few days, or I eat or drink something that I know is a trigger...(i.e) like eating a tomato or drinking tea.... Took a long time to get here, but it IS possible to feel good again I just want people who are new to know that IT CAN get better, and for every one person who is suffering, there are hundreds of others who feel GREAT because they have control of thier IC.

                        What Works: Tylenol 3's, Pyridium, Elmiron (Going on 4 years now!) HOT showers!!!

                        Medications/ Vitamins: Elmiron-100mg 4x's daily Tylenol 3's/Advil (flaring) Vitamin D, WILD salmon oil 4x gels in the morning, Women's ONE a DAY multivitamin (the gummy kind doesn't make me flare) and PROBIOTICS!



                        Me in my graduation gown!

                        Comment


                        • #13
                          ovestin !!!

                          Thanks Jen, It is funny you say that because i was told that my IC was due to drop in estrogen level and this why i have tried vagifem and ovestin, but unfortunetly ovestin is not working either it is giving me period like pain and spotting. I'm moving back to Canada at the end of the summer and will have no heslth care for three month so i feel i need to find something that will keep me from going nut during flare up. I'm having reflexology this week and looking into acupunture. Because of my age I also feel that trying to see a pattern to this illness is mad even more difficult.

                          Ginette xx

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