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  • so confused.

    I have seen others post about having PCOS. I saw a new dr (reporoductive endo) this week and she said I for sure have PCOS. She said no doubt in her mind. She started me on continuous Yaz plus my IUD. I have a cyst on my ovary right now and it hurts so bad...Im scared that it will burst.

    She said that I could have endo possibly since its been since 04 since I have been checked... She also said you can have it with no visible signs of it. Would endo cause chronic pelvic pain?

    I guess I'm so confused because so much is going on... I've always had period problems even before I had bladder issues. I've been on BC for 8 years now and I can't go off of it. So the new dr I saw said that she feels she can't really help me and referred me to a gyn that specializes in chronic pelvic pain. She said she isnt really familiar with IC. I have laproscopic surgery scheduled next month...

    I'm feeling so down and depressed...Having pcos is just another condition I have...I'm only 21. I've had 16 surgeries and have IC, VV, fibro, IBS, GERD, fructose intolerance and now PCOS. When will it end???

    For people who have pcos what do you take? My dr did blood work and I get the results tomorrow to make sure I dont have any insulin problems. The dr said the yaz should help with my acne and abnormal hair growth.
    Diagnosis: IC '09, vulvodynia '10, fructose intolerance '06, GERD '06, fibromyalgia '09, IBS '10 and TMJ '09, PCOS '11, genital herpes '12

    Current Meds: Butrans patch, welbutrin, lamictol, geodon, xanax, aldactone, linzess, topimax, trazadone and diflucan as needed.

    Meds tried before: Elmiron, elavil, antibiotics, welbutrin, cymbalta, prozac, nerve blocks, instills, nyastatin, flexerol, percocet, naproxen (which was what I was given for pain for years).

  • #2
    I have a good friend that has PCOS, he'sr started being a problem for her in her 20's when her peroid became irregular and she was TTC and it was not happening.

    Dr.'s pretty much ignored her and she never was able to have her third child, lucky for her she started to have kids at 16. They couldn't even be bothered enough with her concerns to figure out why her periods stopped in her 20's.

    She is now 50 has 2 grown son's, and a granddaughter which she enjoys very much. The thing is she had the extra weight gain in her belly, she could never loose weight, facial hair and other main symptoms of it, but was not diagnosed with it till she was about 40, when a Dr. suspected she maybe diabetic.

    This Dr. tested her for PCOS when she tested her for diabetus, she tested positive for both. The Dr. put her on metforum (sp) it treats both conditions, and told her if she didn't want to get preggo to use a contraceptives, she was like it is a little late now.

    Diabetus goes along with PCOS so maybe you should be discussing with your Dr. if you need to be watching your sugar intake too, I know just what you wanted to hear.

    The weird thing is my friend rarely had pelvic pain and when she did she had fibroids and had a hysto she kept her overaries. She has never had an ovarian cyst that she knows of, I have had many, many and I don't have PCOS.

    If your Dr. is thinking maybe endo then maybe ando should be considered too, my Dr. thought I had endo but found none, it turned out I had ando, but at the time I was considered to be too young to have that, it used to be thought that you only got ando after you had had at least 3 babies now they know differently.

    I am not trying to be negative to you, I think it is a good idea to be having the lap next month, it may set you back a bit with your IC and other things but I think worth them having a look to see if they can see anything going on. I think you need to read up on PCOS and write out a list of Questions for your Dr. I think your Dr. is headed in the right direction but you need to do what ever you can do now so you can try to prevent some of the problems that go along with all these conditions. Not to be passive and think the Dr knows best.

    I really feel for your stituation you are so young, but most of us do get better over time and the first step to improving your health is having a diagnoses so you know what the problems are and can make a plan from there to move forward with.

    I know you didn't say but I must say diet is our best tool for IC and diet is the best tool for preventing diabetus, it is a little hard to meld the 2 but worth it.

    Keep us post on how you do and what your blood work showed.

    MG
    My are with you all. May you all find a way to peace and joy in your lives.

    Comment


    • #3
      Originally posted by Mothergoose View Post
      I have a good friend that has PCOS, he'sr started being a problem for her in her 20's when her peroid became irregular and she was TTC and it was not happening.

      Dr.'s pretty much ignored her and she never was able to have her third child, lucky for her she started to have kids at 16. They couldn't even be bothered enough with her concerns to figure out why her periods stopped in her 20's.

      She is now 50 has 2 grown son's, and a granddaughter which she enjoys very much. The thing is she had the extra weight gain in her belly, she could never loose weight, facial hair and other main symptoms of it, but was not diagnosed with it till she was about 40, when a Dr. suspected she maybe diabetic.

      This Dr. tested her for PCOS when she tested her for diabetus, she tested positive for both. The Dr. put her on metforum (sp) it treats both conditions, and told her if she didn't want to get preggo to use a contraceptives, she was like it is a little late now.

      Diabetus goes along with PCOS so maybe you should be discussing with your Dr. if you need to be watching your sugar intake too, I know just what you wanted to hear.

      The weird thing is my friend rarely had pelvic pain and when she did she had fibroids and had a hysto she kept her overaries. She has never had an ovarian cyst that she knows of, I have had many, many and I don't have PCOS.

      If your Dr. is thinking maybe endo then maybe ando should be considered too, my Dr. thought I had endo but found none, it turned out I had ando, but at the time I was considered to be too young to have that, it used to be thought that you only got ando after you had had at least 3 babies now they know differently.

      I am not trying to be negative to you, I think it is a good idea to be having the lap next month, it may set you back a bit with your IC and other things but I think worth them having a look to see if they can see anything going on. I think you need to read up on PCOS and write out a list of Questions for your Dr. I think your Dr. is headed in the right direction but you need to do what ever you can do now so you can try to prevent some of the problems that go along with all these conditions. Not to be passive and think the Dr knows best.

      I really feel for your stituation you are so young, but most of us do get better over time and the first step to improving your health is having a diagnoses so you know what the problems are and can make a plan from there to move forward with.

      I know you didn't say but I must say diet is our best tool for IC and diet is the best tool for preventing diabetus, it is a little hard to meld the 2 but worth it.

      Keep us post on how you do and what your blood work showed.

      MG

      I'm not sure if i mentioned this but I started my period when I was 11. I have NEVER had regular periods at all. Sometimes 2 weeks sometimes 8 weeks between periods. I have always had pelvic pain, cramps, heavy cycle and irregular periods... I actually requested to have a lapro done because it has been so long (since 04) since I had one and that was pre IC. At that time I had no bladder symptoms at all.
      Diagnosis: IC '09, vulvodynia '10, fructose intolerance '06, GERD '06, fibromyalgia '09, IBS '10 and TMJ '09, PCOS '11, genital herpes '12

      Current Meds: Butrans patch, welbutrin, lamictol, geodon, xanax, aldactone, linzess, topimax, trazadone and diflucan as needed.

      Meds tried before: Elmiron, elavil, antibiotics, welbutrin, cymbalta, prozac, nerve blocks, instills, nyastatin, flexerol, percocet, naproxen (which was what I was given for pain for years).

      Comment

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