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  • TRAILSEEKER
    replied
    Carol,
    Glad to read that the yoga helps. Think I will try the video as well.

    Leave a comment:


  • denise richmond
    replied
    I too loved to exercise and did so on a regular basis before IC. I used to do Pilates, EFX walking and yoga. I have not done anything for 3 months now and was getting very frustrated. I did purchase the IC hatha yoga tape and found it very beneficial. It has 3 parts to it and you just progress at your own speed when you feel well enough to do it. I found it took the tension and pressure off the pelvic area and made me feel almost normal again. I have only used it a few days but already I'm feeling better. I have not tried aerobic activity yet, but hopefully soon.

    Leave a comment:


  • rachelm
    replied
    I exercised regulary 4x week at Curves while my symptoms were under control for the past 6 months. I recently have come into another really bad flare and I've not been able to do lower body machines without hurting. I've just started back to occupational therapy and she has me use an excercise ball. I do a lot of stretches and pelvic tilts which has really helped release my lower back and pelvis tension. I went out and bought one for home today. I find that just sitting on it to watch T.V. relieves pressure.

    For now I'll walk when I can and do the upper body machines as well as gentle stretching with my new ball. I'm concerned about continuing to lose weight and inches though because I'm getting married in June. Has anyone tried the I.C. yoga tape? What else have you found that works?

    Leave a comment:


  • TRAILSEEKER
    replied
    GO KIM ! I like your spirit. I have had to make some changes because of IC, but a little creativity goes a long way. I won't use sports drinks anymore, but I find that honey and rock salt with plenty of water is enough to sustain me for endurance exercise. Has anyone eles found ways to manage their IC to continue their lifestyle with exercise?

    Leave a comment:


  • jordan122
    replied
    Since I have been diagnosed, I have started working out more frequently. I have noticed that the IC is not as bad through out the day. I have found that riding has been the best for me. I manage to ride anywhere between 15 & 25 miles in the morning. I am getting ready to try pilates again in the evening. My uro suggested that I should stick strictly to yoga & pilates. That I should stay away from cardio & weight lifting. However on the weeks I have been able to accomplish a little bit of all of it. I feel great. Even during flare ups I will still ride, but I altar my schedule. I won't ride in the morning I will wait until after work and I might only make it 2 miles because I won't push to the extreme BUT I also won't let the IC win anymore!

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  • perbe
    replied
    I have only just started exercising again and I also feel better after I exercise. Over the pst 6months I have just been too sore to do anything. I will see how the excercise goes because I am in pain at the moment and I last exercised two days ago. I don't know if it is from that?

    Peta

    Peta

    Leave a comment:


  • TRAILSEEKER
    replied
    This is my 1st post to the forum. I am so grateful to have found this website. My Dr. offered little information about living with this problem. But he has a great nurse, and the treatment is going well.
    I have a great intrist in excercise in relation to IC. Running is a big part od my life. I do endurance running. I have always been intrigued with the part endorphins play in the body. Infact I can tell you exactly when I can feel my endorphins working., They are triggered after the same amount of time into a run. That is why I know that for myself, the IC pain subsiding is not just from endorphins. My pain goes away after as little as 10 minutes of running, sometimes sooner. My endorphins are released later than this. Both my primary and Uro agree that it is the blood flow to the area that is helping my pain. After a long run, my pain is gone for any where from 1 hour to the rest of the day. There are days when my pain is so bad, that I walk like a duck, but after 10 minutes of running I am feeling good! (I run on soft ground mostly,vineyard,canal banks). For myself, I disagree with the idea that I should only do gentle excercise. I ran 28 miles last weekend, and I am feeling great. I believe that getting my blood flowing, and oxygen to my organs is healing, as well as the endorphins. I can feel my endorphins at 45 minutes of running (have run for years, so I am a bit in tune that way). Of course I realize that the type of excercise isn't done in a gym, nor has everyone participated in endurance type excercise, so I realize that the benefit may not be widely realized, but wanted to throw my experience into the pool of info. Oh and one more thing, when I am flared up, my upper legs even cramp up, but are better after I get moving. I really think that all the swelling and irritation creates the pain, and getting the blood flowing helps so much. As I ran (I run a slow pace) through the discomfort, the pain melted away. I have been pain free all week. I did a run walk today and still no pain.
    I would love to read more from others on this subject.

    Leave a comment:


  • e m broadnax
    replied
    readingmom,

    I found out the hard way that treating the fibro with water exercise exposed the bladder to all the chemicals in the poo l. Then my skin broke out as a result of the chemicals. That ended my great return to the pool. scream jester

    I bought the yoga tape on this site and it seems to work for me.

    Leave a comment:


  • gcjfine
    replied
    Diana-I have tried swimming too. I don't know what it is about the water, but any kind of exercise in it hurts!! Thanks for the info. I am going to try the Curves places. They do weight training along with other things. I haven't been yet, but am looking forward to trying it.
    Christie-readingmom

    Leave a comment:


  • dminton
    replied
    Hi, Readingmom!

    When you say water exercise, what do you mean? If you mean the jumping around kind of water aerobics that doesn't work for you, what about swimming laps? You are not upright so gravity is not pulling on your bladder the same way.

    At our healthclub, there is a machine called an EFX. It works for me (unless I am really in a bad flare and then of course I don't go at all!) because it is NO impact and you can get very aerobic on it.

    Also, weight training is essential to changing that fat-to-muscle ratio. You don't have to be out there pumping iron with the big guys; you can do free weights at home or at a gym when its quiet.

    Hope that helps - Diana.

    Leave a comment:


  • gcjfine
    replied
    Hey there! I'm also new to the message board. I'm glad that I'm not the only one who can't exercise without pain. I feel like my bladder is going to fall out. I've tried walking and doing low impact aerobics. I also have tried going to the ymca and doing water exercise. That really gets me hurting really really bad. Does anyone have any other suggested exercises? I have gained weight since my symptoms started last summer because I just feel so bad a lot of the time and don't feel like moving. The most exercise I get is housework!! I am thinking about going to a Curves for women center. Any suggestions would be appreciated. I feel sooo ugly!! Christie-readingmom

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  • dixiefireball
    replied
    exercise normally sends me into a flare. I have always loved to exercise to relieve stress i'm going to try it again soon. wink

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  • rnewman
    replied
    Welcome to the ICN Rose!! Thanks for your input!!


    The day after my post on how exersize was helping me, I went back to the gym, did my half an hour on the elliptical machine, streached out a bit, and just did biceps and triceps, and COULDNT STOP PEEING ALL NIGHT eek toilet


    I think that Fiji water is bad for me-- even though its spring water, I really couldnt think of anything else that it might be. JulieB suggested that maybe it was all the "junk" coming out of my muscles, because I have not lifted weights in awhile, and I just began working out. I think she is right..... blah at least I hope so.....at least after I flushed with water I was ok. Im gonna keep at ...hopefully that good feeling will return!!

    Happy Turkey!!
    Rachel

    Leave a comment:


  • MsBreeze
    replied
    Hi Everyone,
    I am new to this message board. I have just been diagnosed with IC and find that I also feel much better after my workout. I spend one half hour on the treadmill and one half hour on the weight machines. I am mostly pain free the whole day after my workout. I agree, it is the endorphins and the flexibility that exercise delivers to the pelvic area. I'm so glad that I didn't have to give up my exercies routine when I was diagnosed.
    Thanks
    Rose

    Leave a comment:


  • rnewman
    replied
    Hey!!

    I recently joined the gym....and I think Im noticing the same thing!!

    The other day, on my way to the gym, I had to go.
    Well after my workout when I got home I realized that I hadnt gone-- and I wasnt running to go or in pain either!!

    I agree that it could be the endorphins, but it also could just be that exersize mobilizes some muscles that are either tight, or in spasm. If you cant get to exersize ladies, talk to your Uro's about Physical Therapy.

    YAY! Smiles
    Rachel

    Leave a comment:

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