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My 12 year old daughter is getting running in PE at school. It seems to make her pain worse, she has called me 2 times this week to see if she can take pyridium at school cause it's so bad, both times after running, has anyone any suggestions what we can do to help.
Saltire
My 12 year old daughter is getting running in PE at school. It seems to make her pain worse, she has called me 2 times this week to see if she can take pyridium at school cause it's so bad, both times after running, has anyone any suggestions what we can do to help.
Saltire
You could try getting a note from the doctor to excuse her from gym (or from the excersizes that bother her). That's what I have been doing for the last 2 years.
Medical "Issues":
IC
GERD
Tachycardia(resting rate is 125-130 ) Medicastions:
Tramadol-as needed (IC)-50mg
Elmiron 200mg twice a day
Levsin .125mg 1-2 pills 4 times a day
I sent two asthmatic sons through the school system by getting notes from their physicians to excuse them from some physical education programs. I think it would be a good idea to do this for your daughter. Running isn't usually a good exercise for an ICer --- it's one of the "jarring" exercises.
Donna
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I can't imagine your daughter having to run and then go back to class to sit there in agony! There are other exercises she can do without jarring her bladder. Get the note of explanation from her MD and he/she, you, your daughter and the PE teacher can find something fun for her to do. She can still get exercise and be involved with her classmates without having to worry about it bringing on pain. Just the thought of running makes me put my legs up in the air (right now!). At my best, I can only be on my feet JUST WALKING for no more than 30 minutes. The gravity is awful and the more one walks, the more the bladder gets pulled and jarred.
I hope she feels better soon...!
Danita
Dani
-Bladder surgery to correct reflux-'68
-Terribly painful periods, beg.@ 13 (most likely due to endometriosis, no dx then)
-4 gyn surgeries since 2003 to remove cysts, ovaries, endometriosis and uterus
-DX'd w/I.C. before 3rd gyn surgery, but sure I've had it since childhood
-Gastrointestinal allergies to nuts and shellfish - {I would like to know if there is some connection of gastro allergies to I.C.?}
PTSD (sexual abuse by teenage boy when I was 4 and s. abuse by adult male who was friend of my Dad's - my parents still don't know)
-DX'd with IBS in 2000
-Rhabdomyolysis in 2001 (has not returned)
-DX'd with Eosinophilic Esophagitis (Asthma of the Esophagus) 3/07
-DX'd with TMJ in 2000-wear splint
-Hydrodistention and Cystoscopy w/ biopsy of tissue in bladder-2003
-DX'd with Epilepsy -2000
-SSS (Selective Sound Sensitivity)-wear earplugs most of the time to screen out certain noises
-DX'd with Fibromyalgia (2006)
Medications:MS Contin-30mg@3xday,Hydrocodone-10/650:up to 4day,Levothyroxine,Soma,Clonazepam,Vesicare,Keppra (anti-seizure),Flovent FHA 220mcg (swallowed for E.E.),Elmiron,Instillations-5+per week for flares,Lidocaine,Cysta-Q,Prelief, Dulcolax,Baby Aspirin(for FM),God blessed me w/2 boys: Devin-14 and Logan-9, Jim, my husband of 18+ years who sort of understands what I.C. is...still working on educating him!, my springer spaniel "Wookie" ('cause he makes sounds like 'Chewbacca' from "Star Wars" when my son plays with him) and the most important 'medicine' of all...PRAYER...because ONLY God knows the answer to why we are all going through this awful I.C.!
I was an avid runner but had to switch to elipical on the advice of my uro due to bladder irratation. Running can also cause hematuria(blood in the urine) and it is quite irratating to the IC bladder. I'm sure your doc will have no issues excusing her from that kind of exercise. Even walking would be better.
Erika
IC diagnosed officially via cysto/urodynamics 1/26/07
Grade II Endometriosis diagnosed via lap 12/11/07
"Fall down seven times, Stand up eight."
"Life is a tragedy for those who feel and a comedy for those who think."
Current Treatments:
Interstim Since 5/25/07!
Birth Control
Thankyou,
I will definately get in touch with her doctor and get an excuse note. The school nurse has been a wonderful help so i will speak to her too.
They have just started the running this week, so thats why we are not aware of any probs til now.
Saltire
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My 12 year old daughter is getting running in PE at school. It seems to make her pain worse, she has called me 2 times this week to see if she can take pyridium at school cause it's so bad, both times after running, has anyone any suggestions what we can do to help. 
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