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has anyone had their IC feel worse when going through peri or menopause?

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  • has anyone had their IC feel worse when going through peri or menopause?


    I am going through or almost at menopause or so I think.. It seems like IC is getting worse during this phase of life.

    Has anyone else felt as though their IC has gotten worse going through this ?

  • #2
    Re: has anyone had their IC feel worse when going through peri or menopause?

    I have seen many posts that hormone fluctuations can bring on IC flares. It's not unusual for someone to actually develop IC symptoms at around age 40.

    I did instant menopause in the operating room when I had a total hysterectomy --- and my IC reared its ugly head during the recovery from that surgery.

    Donna
    Stay safe


    Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
    Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

    Have you checked the ICN Shop?
    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

    Patient Help: http://www.ic-network.com/patientlinks.html

    Sub-types https://www.ic-network.com/five-pote...markably-well/

    Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

    AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
    [3MG]

    Anyone who says something is foolproof hasn't met a determined fool

    Comment


    • #3
      Re: has anyone had their IC feel worse when going through peri or menopause?

      I was just getting on this forum to ask the same thing. My IC is so hormone related. My period has been super irregular the last year, and my symptoms have gotten a little worse. (Weirdly, the flares are very short lived and seemed related to group B strep infections), but this month, I've been having hot flashes like crazy, and my bladder has been acting up. The problem for me is that I don't know WHICH hormone is causing the problem, and I'm terrified to try estrogen or progesterone creams for fear it will make my bladder worse. Would love to hear from anyone else who has this problem too. Did anything in particular help?

      TIA!

      Comment


      • #4
        Re: has anyone had their IC feel worse when going through peri or menopause?

        My IC is so hormonally-driven that I've been able to keep it under control for the past 12 years using no formal treatment but menstrual suppression. I first started with complete menstrual suppression, then gradually added in one period per year to combat painless but obnoxious spotting, then eventually went to four periods per year after my IC had been low-level quiet for many years. I generally have no more than four IC flare-ups per year now, which I'm OK with.

        Please feel free to ask me any questions you may have.

        Chronic conditions: IC, bipolar disorder, Lown-Ganong-Levine syndrome, Raynaud's disease, bile reflux, scoliosis
        Current IC treatments: menstrual suppression
        Daily treatments for other conditions: Neurontin, Zyprexa, Cymbalta, Modafinil
        As-needed treatments for other conditions: Klonopin, Ambien

        Comment


        • #5
          Re: has anyone had their IC feel worse when going through peri or menopause?

          My IC symptoms first started at age 40 (same time my periods started to shorten as well as other peri symptoms). I am now 2 months shy of 46 and I haven't noticed that my IC is necessarily getting worse, but it is definitely hormonally driven. I cannot mess with my hormones or I flare. Ovulation almost always causes some frequency issues. Menstruation is hit or miss. I tried progesterone cream once and after the first day, I started to flare - stopped it after two days and fortunately pulled out of the flare within a week. I have tried VERY small amounts of estrace cream with no problem, but I cannot increase it or I get worsened migraines. Same goes for the pill or I would love to have only 4 periods per month!

          I admit I am a bit afraid of the next 5 years, as I know my hormones will be on a roller coaster ride.
          Jane
          Diagnosed 1/7/14 via cysto/hydro

          Current Treatment:
          10 mg amitriptyline, DH Aloe Vera

          Used During Flares:
          Uribel, extra DH Aloe Vera, Klonopin and Tramadol (as needed)

          Practicing bladder training and stress control (hot baths, pelvic stretching)
          Recently tried PT, do not appear to have PFD

          Things that have not helped in the past:
          Oxybutynin, Vesicare, Pyridium, Myrbetriq, Vagifem

          Also have migraines and IBS

          Comment


          • #6
            Re: has anyone had their IC feel worse when going through peri or menopause?

            The hormonal imbalance can cause hot flashes, meds may have a little effect at this time due to constant changes. It can be minimized to an extent but not always

            Comment


            • #7
              Re: has anyone had their IC feel worse when going through peri or menopause?

              Im starting to go through the change too. I skipped 2 1/2 months, then started my period, which was heavier, but not that painful. It lasted 6 days and was over. THEN 6-7 days later I started again and OH the Burning! Pain was just awful. I wonder if BC pills would help during this time as the hormones aren't all over the place?

              Comment


              • #8
                Re: has anyone had their IC feel worse when going through peri or menopause?

                I am 51 and have been in peri for about 2 years. My only symptom at the moment is erratic periods and boy are they erratic!!! My last period lasted 7 days and was heavy with clots. Prior to that it was 5 months ago!!!! My IC is pretty much under control now, but I do get a worsening of my IBS symptoms just prior to a period and a feeling of pressure on my bladder for a few days. Once my period is over, it all subsides.
                Elmiron 2 x 100mg daily for IC
                Relpax 40mg as needed for migraine
                Vitamin D - 1 tablet per day
                Vitamin B - 1 tablet per day
                Iron/Vitamin C Tab - As needed, usually during my period.

                Previous Medications:
                Topamax - 2 x 50mg daily (migraine)

                Comment


                • #9
                  Re: has anyone had their IC feel worse when going through peri or menopause?

                  Again, I burn , feel inflamed after periods. I started taking BC pill in hopes it would regulate me during this time, but my loins have been on fire after period this whole time too! I have just started so we will see what next month holds. Worst disease EVER!

                  Comment


                  • #10
                    Yes. I'm 44 and things have gotten worse ever since the hot flashes showed up.
                    Diagnosed with IC in 2005, PFD in 2016. My sister has had IC for 21 years and our mother over 30. 66 years of bladder fun combined!

                    Comment


                    • #11
                      Oh those lovely hot flashes! My favorite are the ones that wake me up sweating in the middle of the night!
                      Jane
                      Diagnosed 1/7/14 via cysto/hydro

                      Current Treatment:
                      10 mg amitriptyline, DH Aloe Vera

                      Used During Flares:
                      Uribel, extra DH Aloe Vera, Klonopin and Tramadol (as needed)

                      Practicing bladder training and stress control (hot baths, pelvic stretching)
                      Recently tried PT, do not appear to have PFD

                      Things that have not helped in the past:
                      Oxybutynin, Vesicare, Pyridium, Myrbetriq, Vagifem

                      Also have migraines and IBS

                      Comment


                      • #12
                        The hormone flares are still really bad. I need to figure out a way to make the insanity stop because I'm getting a divorce and I need to get a full-time job...which is going to be super-interesting with hormones that take me down half the month.
                        Diagnosed with IC in 2005, PFD in 2016. My sister has had IC for 21 years and our mother over 30. 66 years of bladder fun combined!

                        Comment


                        • #13
                          Originally posted by Pillowfight View Post
                          The hormone flares are still really bad. I need to figure out a way to make the insanity stop because I'm getting a divorce and I need to get a full-time job...which is going to be super-interesting with hormones that take me down half the month.
                          I'm so sorry about the divorce --- have you tried hormone therapy to try to help? I don't think long term hormones are usually a good idea, but it can help with the symptoms of menopause.


                          Donna
                          Stay safe


                          Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
                          Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

                          Have you checked the ICN Shop?
                          Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

                          Patient Help: http://www.ic-network.com/patientlinks.html

                          Sub-types https://www.ic-network.com/five-pote...markably-well/

                          Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

                          AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

                          I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
                          [3MG]

                          Anyone who says something is foolproof hasn't met a determined fool

                          Comment


                          • #14
                            hi there everyone,

                            i'm not going through peri-menopause but i do however suffer from severe hormonal imbalance. i have been diagnosed with PMDD (premenstrual dysphoric disorder) and i unfortunately experience all the symptoms of that disorder. the worse symptom being night sweats that wake me up drenching in sweat in the middle of the night multiple times. my night sweats change in severity throughout my cycle every month. i started experiencing frequency of voiding in the night (anywhere from 1- 8 times in the night) about a year and a half ago. i have tried explaining to my specialists that i think my frequency is related to my hormone condition but no one seems to know. anyone else experience something like this ?

                            i have tried hormonal treatment (i.e. progesterone and estrogen) in the past to try and treat my night sweats and other lmdd symptoms but nothing worked unfortunately.

                            i also just had an operative hysteroscopic polypectomy to remove uterine polyps because my periods were so long and heavy

                            Comment

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