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  • I Am Grateful For ...

    Alright Y'all .. Let's get some happy on this board !!

    I think an important part of coping with any sort of "less than ideal" situation is to remember the good in our lives. Let's use this thread to take a minute and list those good things -- no matter how big or small! Then whenever you're having a bad day you can come back here and read your list (as well as everyone else's) and hopefully it'll make your bad day not so bad.

    I am grateful for:

    Waking up beside the man I love;
    Being able to take a hot shower;
    Facebook -- my place to vent;
    My husband's kisses;
    My dogs stinky breath kisses;
    My parents;
    My Papa;
    My little sister;
    My nephew's hugs;
    Coffee Mate Creamy Chocolate creamer;
    The wonderful people on this board;
    My freedom!;
    The opportunity to further my education;
    Christmas music!!

    Now, it's your turn! What are you grateful for?

    Life isn't about waiting for the storm to pass -
    it's about learning to dance in the rain.


    ♥♥♥♥♥

    ♥♥♥♥♥

  • #2
    My list of things for which I am grateful is very long --- here are a few examples:

    My husband
    All of my grown children and grandchildren
    My friends, around me and on the IC Network
    The fact that I have a freezer filled with food
    I don't have anything I MUST do today!
    I have to list our spotted dog, Meggie
    I have a warm, cozy house to live in
    and ..... our Oregon Ducks football team is Number 1 !!!!!!!!

    Donna
    Stay safe


    Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
    Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

    Have you checked the ICN Shop?
    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

    Patient Help: http://www.ic-network.com/patientlinks.html

    Sub-types https://www.ic-network.com/five-pote...markably-well/

    Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

    AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
    [3MG]

    Anyone who says something is foolproof hasn't met a determined fool

    Comment


    • #3
      I am grateful for

      My list is similar to Donna's,

      1. My warm, cozy, heated house
      2. My patient, funny husband
      3. Our children and grand children
      4. Enough food and then some
      5. Our sweet gentle dog, Zachary
      6. Old friends who listen
      7 This forum and all the wonderful people on it
      8. Living in this country
      9. Still being able to take afore mentioned dog for long walks
      10. Being able to do nothing if I want to

      I could go on, but those are the biggies.
      Thanks for starting this, it's a great idea!
      Laurie

      Comment


      • #4
        Funny you mention this. When I first got IC and I was so very sick, I made myself write 5 things I was grateful for every day and I couldn't repeat the previous day's gratitudes. It honestly was one of the things that kept me from complete despair, and it made me conscious of how other people helped me, so that someday I could maybe help others....

        I am grateful for:
        1. My job with students and colleagues I love
        2. Medical insurance & instillation treatments at home
        3. My doctor and his nurses who always try to help
        4. My apartment with no neighbors on 4 sides (like living in a house without having a house payment!)
        5. Two weeks off for Winter Break coming soon.
        6. The public library - Ben Franklin was a genius! (It was his idea, wasn't it?)
        7. My calico cat who quacks like a duck when happy and curls up next to me when I'm sick
        8. My favorite retreat center that lets me bring my own food, has private rooms with bathrooms, and a gentle Franciscan spirituality that always sends me home better than when I came
        9. The understanding my friends have consistently shown me with my IC.
        10. ICN friends - often you guys get it when no one else really can!
        Kadi

        -------------------------------------------------------------
        I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
        ------------------------------------------------------


        New favorite quote: "God gives us only what we can handle. Apparently God thinks I'm a bad-ass" ~Author Unknown
        Source - Pinterest
        "


        Current treatments:
        -IC diet
        -Elavil 50mg at night
        -Continuous use birth control pills (4-5 periods/year)
        -Heparin/Marcaine/Sodium Bicarb home instills at night 3-4x per week, more often if needed
        -Pyridium if needed,
        -Pain medicine at bedtime daily, as needed during the day several times per week
        -Antibiotic when doing an instillation to prevent UTI
        -Colace & SmartFiber to treat chronic constipation from meds, Fleet enema as needed
        -Dye Free Benadryl 50 mg at bedtime
        -"Your Pace Yoga: Relieving Pelvic Pain" dvd, walking, treadmill at gym
        -Managing stress= VERY important!
        -Fur therapy: Hugging the cat!

        Comment


        • #5
          grateful

          Kadi,
          That retreat sounds like heavan. Where is it, if you don't mind my asking.
          Laurie

          Comment


          • #6
            It's San Damiano Retreat Center in Danville, CA.
            Kadi

            -------------------------------------------------------------
            I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
            ------------------------------------------------------


            New favorite quote: "God gives us only what we can handle. Apparently God thinks I'm a bad-ass" ~Author Unknown
            Source - Pinterest
            "


            Current treatments:
            -IC diet
            -Elavil 50mg at night
            -Continuous use birth control pills (4-5 periods/year)
            -Heparin/Marcaine/Sodium Bicarb home instills at night 3-4x per week, more often if needed
            -Pyridium if needed,
            -Pain medicine at bedtime daily, as needed during the day several times per week
            -Antibiotic when doing an instillation to prevent UTI
            -Colace & SmartFiber to treat chronic constipation from meds, Fleet enema as needed
            -Dye Free Benadryl 50 mg at bedtime
            -"Your Pace Yoga: Relieving Pelvic Pain" dvd, walking, treadmill at gym
            -Managing stress= VERY important!
            -Fur therapy: Hugging the cat!

            Comment


            • #7
              grateful

              Originally posted by kadi View Post
              It's San Damiano Retreat Center in Danville, CA.

              Thanks. I don't think I'll make it from Va. but it does sound tempting.

              Comment


              • #8
                A friend of mine was telling me about a really good retreat center, I believe, not too far from Philadelphia Might still be too far, but way better than a cross country flight!
                Kadi

                -------------------------------------------------------------
                I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
                ------------------------------------------------------


                New favorite quote: "God gives us only what we can handle. Apparently God thinks I'm a bad-ass" ~Author Unknown
                Source - Pinterest
                "


                Current treatments:
                -IC diet
                -Elavil 50mg at night
                -Continuous use birth control pills (4-5 periods/year)
                -Heparin/Marcaine/Sodium Bicarb home instills at night 3-4x per week, more often if needed
                -Pyridium if needed,
                -Pain medicine at bedtime daily, as needed during the day several times per week
                -Antibiotic when doing an instillation to prevent UTI
                -Colace & SmartFiber to treat chronic constipation from meds, Fleet enema as needed
                -Dye Free Benadryl 50 mg at bedtime
                -"Your Pace Yoga: Relieving Pelvic Pain" dvd, walking, treadmill at gym
                -Managing stress= VERY important!
                -Fur therapy: Hugging the cat!

                Comment


                • #9
                  grateful

                  Originally posted by kadi View Post
                  A friend of mine was telling me about a really good retreat center, I believe, not too far from Philadelphia Might still be too far, but way better than a cross country flight!

                  Yes, still too far, but thanks for the thought. Right now, around the corner seems far! Maybe down the road...
                  Laurie

                  Comment


                  • #10
                    I'm grateful (again) today for my sweet, supportive and loving husband. He's the only one in this world who has been able to make me laugh thru my tears. But only after he let's me cry. For this, and so many other things, I will be forever grateful for him.
                    Katie-46 yr old female dx'd with IC after 15 years of symptoms off and on long term antibiotic use, GERD,IBS and now IC diet, gallbladder removed, endometrial ablation w/tubes tied
                    Lexapro-20 mg
                    Aciphex
                    Ambien-as needed
                    Percocet-7.5 up to 3 per day as needed
                    Valium-10 mg x2 per day
                    Phenergan-1 at night
                    Prelief w/everything
                    Now recovering from acute pancreatitis

                    Currents treatments that help somewhat:
                    Heating pad
                    Hot baths
                    Ice
                    Being VERY still while lying down with legs elevated

                    Comment


                    • #11
                      Originally posted by KatieB View Post
                      I'm grateful (again) today for my sweet, supportive and loving husband. He's the only one in this world who has been able to make me laugh thru my tears. But only after he let's me cry. For this, and so many other things, I will be forever grateful for him.
                      Can it just be my "Brag on my Husband Day"? I just have to add that since I've been SO messed up with this loooong IC flare the thing I look forward to the most is when he comes home. We don't do ANYTHING except lay on the bed, me on my memory foam pad with my heating pad and sometimes a bottle of ice between my legs (wrapped in one of his old black socks, which is always good for a laugh) and him by my side, watching tv together. It's the best part of my day. Not only am I grateful, I'm blessed.
                      Katie-46 yr old female dx'd with IC after 15 years of symptoms off and on long term antibiotic use, GERD,IBS and now IC diet, gallbladder removed, endometrial ablation w/tubes tied
                      Lexapro-20 mg
                      Aciphex
                      Ambien-as needed
                      Percocet-7.5 up to 3 per day as needed
                      Valium-10 mg x2 per day
                      Phenergan-1 at night
                      Prelief w/everything
                      Now recovering from acute pancreatitis

                      Currents treatments that help somewhat:
                      Heating pad
                      Hot baths
                      Ice
                      Being VERY still while lying down with legs elevated

                      Comment


                      • #12
                        grateful

                        I am so grateful for :

                        1. My wonderful, caring, husband who always puts me first and has taken such good care of me through all of this. He loves me no matter what and for that I will always be grateful. He is still by my side everyday and only wants for me to get better.

                        2. Thankful for all of my furry children who seem to know when their mommy isn't feeling well.

                        3. Thankful for my job and the people I work with for being understanding.

                        4. Very grateful for all my friends who try so hard to understand.

                        5. Grateful for all of you my IC friends for always having a listening ear.

                        6. I am grateful for my doctor and nurses for being so understanding and helpful.


                        Diagnosed with Interstitial Cystitis, PFD, IBS
                        Had interstim temporary placed 12/13/2010
                        Permanent interstim placed 12/21/10
                        Revision of placement of interstim 6/30/11 (middle of left side of back)

                        Continuous pain but frequency and urgency have improved immensely
                        Medications:

                        Savella 100mg
                        Tizanidine
                        Valium 10 mg
                        Valium Suppositories
                        B&O Suppositories
                        Loratab PRN
                        Allegra
                        Albuterol inhaler
                        Advair
                        Singular
                        Epi Pen


                        Was taking Prosed and Urelle but the coating has corn syrup. (allergies)

                        Allergic to: wheat, corn (corn syrup etc), soy, peanuts, eggs, penicillin, and darvacet.

                        Had numerous bladder instillations, trigger injections, PFD therapy, cystoscopy and hydrodistention, tried acupuncture.

                        Comment


                        • #13
                          Today I am especially grateful for my husband. My patient, loving, amazing husband who loves me even at my worst. I'm telling y'all he's a saint.

                          I am also grateful to finally be feeling a bit of the Christmas spirit. I hate being such a Grinch.

                          I am grateful for my dad's delicious cooking!!

                          And for my mother's kind heart.

                          I'm grateful for a sister who always leans on her family when things are rough for her.

                          I am grateful for a nephew whose kisses make everything better! Whose pure innocence reminds me that life is great!

                          I am grateful for a grandfather so full of life and stories and love to give.

                          I am grateful God gave me a second chance to have the kind of relationship with my family that I've always wanted.

                          I am grateful that God gave me another morning! Another morning in which I got to wake up to my husband's horrible morning breath and my dog whining to go outside .... such small things we take for granted!

                          Life isn't about waiting for the storm to pass -
                          it's about learning to dance in the rain.


                          ♥♥♥♥♥

                          ♥♥♥♥♥

                          Comment


                          • #14
                            Today...

                            On top of the things I'm grateful for everyday (hubby, children, friends old and new), I am especially grateful for:

                            1. My heating pad - the person who invented this magical thing should get a
                            Nobel Peace Price.
                            2. My frozen water bottle (and KarenAnne who gave me such a terrific useful
                            suggestion.)
                            Katie-46 yr old female dx'd with IC after 15 years of symptoms off and on long term antibiotic use, GERD,IBS and now IC diet, gallbladder removed, endometrial ablation w/tubes tied
                            Lexapro-20 mg
                            Aciphex
                            Ambien-as needed
                            Percocet-7.5 up to 3 per day as needed
                            Valium-10 mg x2 per day
                            Phenergan-1 at night
                            Prelief w/everything
                            Now recovering from acute pancreatitis

                            Currents treatments that help somewhat:
                            Heating pad
                            Hot baths
                            Ice
                            Being VERY still while lying down with legs elevated

                            Comment


                            • #15
                              grateful

                              I am grateful for all that was mentioned in the other replys.

                              I would like to also be grateful to be able to talk to God and go to church now.

                              I also am grateful and lucky to have good insurance and a good doctor.
                              <center>
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                              </center>

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