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iPhone Applications That Help Me With My IC

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  • iPhone Applications That Help Me With My IC

    iPhone Applications That Help Me With My IC
    (I think these were all free)

    Sound alarms & program activates to remind me to take medications & supplements. I click ‘taken’ … it allows me to adjust the incident time if I took a dose a bit late. I do also set the iPhone alarm for medication times (I had it in place for a while before coming across RxmindMe.
    It allows entries for Daily / Hourly / Weekly / Monthly / Specific Dates. It lets you specify powder / capsule / pill etc. It displays a page of all medications you’re taking currently, and a page of all the medications you’re taking (& have taken so far) today. As well as regular medications/supplements, you can add to the ‘As-Needed’ category (maybe naproxen, or perhaps if you take something like Morphine IR for breakthrough pain), and there’s also a One-Off category. It lets you email all prescription info, or all prescription history. It lets you enable a password access code (I went looking for this – don’t want anyone being able to access the opiates info if I happen to forget my phone at a meeting / someone’s house). It lets you archive some meds., if you want to keep a record of what IC treatments you’e tried in the past, or of what opiates did not work for you (do wish they had a ‘notes’ option here, so you could add side effects / why you went off of the medication). You can include a photo of what the pill looks like (if you tend to lose them, or if you love tech features).

    Get BladderFit
    Includes ‘How’s Your Bladder Today?’ ratings (that converts into a weekly rating graph), Tracker Diary, Weekly and daily voiding graphs. Exercise feature has a stop-start button for pelvic floor muscle contractions. Records it in Diary/Log and progress chart. Lets you set a schedule and remind you to do them. Bladder control self-assessent questionnaire. Medication reminder. Quite a bit of OAB & Pelvic Floor info including ‘training’ info about how to make yourself pee less frequently.

    Europe’s largest urology meeting is coming up toward the end of March 2011. This application includes extensive, often quite interesting info about all the new research that is going to be presented here.

    Doctors use the costly version, but the free version is all you need – it includes an Interactions feature. Enter everything you’re taking (meds. & some supplements) & click
    ‘view interactions’. I’ve found this really useful.

    Also includes Interaction Checker. Often comes up with different interactions info than Epocrates, so might be of interest to check both. As with Epocrates, if it comes up with anything that’s of concern, you can follow up with your pharmacist and / or doctor. Also adds you to include lots of specifics about what each pill looks like, in case you’re a bit disorganized & sometimes find meds. out of the bottles.

    Have you developed a UTI on top of your IC? Infection can lead to fever… here’s a convenient way to check if you’re running one. [I think this one has a nominal fee [$1? $2?] -- only one on this list that I haven't actually downloaded].

    This is a social networking app for urologists in Canada. Not patient-specific, I just thought it was pretty interesting & so am including it here!
    'UroApp is a social networking mobile application which will help all urologists to stay connected and be up to with the latest industry information'. (painfully bad humour – and unfortunately they’re Canadian so it reflects on Canadian humour!)

    Keeps track of all the specialists, doctors, labs, pharmacists quickly & easily. Avoid typing everything in to Contacts – this camera application does it for you. Like up the arrows and take photos of their business cards. This converts the info to text and alphabetizes all of them.

    Three free medical news apps - I search within them for IC stories:

    ReachMD Medical Radio

    New England Journal of Medicine

    Medical News
    Text stories & podcasts

    Find iPhone
    Once all this critical info like reminders is within your phone, not losing it becomes extremely important. Downloading an app like Find iPhone might be good for that. Unfortunately (and annoyingly) the app only seems to work if you have – and pay for! – the Apple ‘Me’ service.

    iPhone Utilities
    (‘Utilities’ = part of the phone, didn’t need to be downloaded)

    Clock function (for alarms)
    I like using both this and RxmindMe– one is sound-specific to each medication (RxmindMe has this option, but with only a few sounds, & less gentle ones!), the other allows me to record incident specifics. I find the multiple-sound options in the iPhone clock function so convenent & helpful that I’d like there to be still more sound options!
    Severe IC developed fairly quickly, autumn 2010.
    So severe that I was bed-bound & on 160mg/day morphine to cope with torturous pain levels, and unable to function other than hospital/medical appointments, for seven months. Then, miracle of miracles, something started working. I am steadily lowering the methadone dose level. I have been far out of that desperate nightmare hell zone for several months now and continue to improve.

    - Ranitidine (anti-histamine, H2-inhibitor) 300mg/day
    - Methadone 9 ml/day
    - Instillations:
    - 40ml Kenalog (steroid for inflammation) 2 x per
    week, along with rescue cocktail of heparin,
    lidocaine, sodium bicarbonate
    - 20ml Uracyst, monthly @ $100/per
    - Depo lupron injections for endometriosis, monthly @ $88/per

  • #2
    This is great! I don't have an iPhone yet, but I just graduated from college and started my first 9 to 5 job and even though I can't afford to move out from home, I was thinking of rewarding myself for working by getting myself an iPhone for my birthday in July (because honestly the 100 a month is not going to make the difference between me being able to afford to move out or not). I will keep these in mind!
    24 years old
    Southern California - Ventura County
    Financial Analyst
    Not officially diagnosed - 7 years of symptoms
    Currently trying: Atarax, Physical Therapy (once a week)
    Mild symptoms
    Stretching a lot helps, but it's hard to get myself to do