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  • #1

    Tips for airplane travel?

    Hey all,

    I'm about to take a trip to Asia to visit my brother who lives there and it's a 10 hour flight from where I live. Sitting for long periods of time is one of the things that triggers my IC/pelvic pain. Even sitting for a couple of hours can send me into a huge flare. I'm going to try and prep the best I can and bring a cushion to sit on; I've also requested wheelchair access for when I get to the other side in case it's really bad. If there are empty seats on the plane, I will ask if I can move to one with an empty chair beside it so I can have more room to move around/change positions.

    Other than those things (& pain killers), are there any tips that you know of to make airplane travel easier?

    Your thoughts are much appreciated,

    Carolyn
    - Diagnosed Oct 2007
    - Dextroamphetamine has improved my symptoms and given me more energy
    - Prelief allow me to have some bad foods, but I follow the diet as much as possible
    - Physio for pelvic floor dysfunction has helped a little
    - Bladder distention Jan 2008 made me worse
    - Elmiron didn't help after 9 months
    - very slow improvement of symptoms, still in pain every day.
    Tags: None
  • #2
    For anyone wondering the same thing...

    I just googled "flying with chronic pain", "flying with disability", "flying with hidden disability" and tons of great info popped up. I also combed through my airline's site (air canada) for info and there is a specific number to call for registering for special assistance.
    - Diagnosed Oct 2007
    - Dextroamphetamine has improved my symptoms and given me more energy
    - Prelief allow me to have some bad foods, but I follow the diet as much as possible
    - Physio for pelvic floor dysfunction has helped a little
    - Bladder distention Jan 2008 made me worse
    - Elmiron didn't help after 9 months
    - very slow improvement of symptoms, still in pain every day.

    Comment

    • #3
      I always wear heavy duty bladder pads, in case I can't make it to the planes's restroom in time. Sometimes, when the ride is rough, we are not allowed out of our seats. The pads give me some peace of mind.

      Comment

      • #4
        An aisle seat will give you easier restroom access. And let the flight attendant know about restroom need. You can also discuss it when making your travel reservations (be sure to check on what food will be available and ask for special diet if meals are served). And a note from your physician regarding restroom access can be helpful. You can also stand up occasionally and do a little bit of walking --- again it will help if the flight attendant knows.

        The only other things I can think of are to be sure to take along some IC friendly snacks in case there isn't anything available on the plane.

        And finally --- have a great visit with your brother!

        Warm hugs,
        Donna
        Stay safe


        Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
        Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

        Have you checked the ICN Shop?
        Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

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        I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.         [3MG]

        Anyone who says something is foolproof hasn't met a determined fool

        Comment

        • #5
          About 5 years ago, my daughter was on a flight when a a women needed to use the restroom. She informed the flight attendant of her need, but was told to stay in her seat. She did as she was told, until she couldn't wait any longer. Probably afraid that she would wet her pants, she headed for the toilet. The female flight attendant saw her, and screamed loud enough for the whole plane to hear "what part of sit down don't you understand". She returned to her seat with a look a great shame and anxiety on her face. Because of this event, I wear heavy duty bladder pads as a last resort, in case all other reasonable efforts fail. So far, I have been lucky, and haven't needed to use them, but the peace of mind is worth it. Darlene IC since 1969

          Comment

          • #6
            I got my Doc to write a letter to the airline requesitng 2 seats if a spare should become avaialbe. This allowed me to sit in a way which took the pressure off my vulva and tailbone. It was a huge help. I only got it for part of the 24hour flight over to the uk though. for 7 hours I only had one seat as there was no room. I started to cry about 3 hours in. I had to lay down for 2 days when I got there. Heres to hoping I get two seats when we go to New York for our anniversary!

            Claire
            TMJ Dysfunction 2009
            Vulvodynia and/or PFD 2010
            IC, based on symptoms alone 2010.
            PCOS March 2012

            8 month remission following the birth of my beautiful daughter Imogen Rose 25/12/12....currently flaring and hoping to get remission back, life without IC was amazing!

            Currently using: IC Diet...pain meds as needed
            Medications / treatment tried and discounted:
            Fluconazole 150mg 1 per week for 6 months (yeast)
            Endep 25mg - 4months
            Lyrica 75mg - 2 months - FLARE
            Oxytrol patch - I think this caused retention.
            Countless creams, lotions and potions.
            Cystoprotek - no change in symptoms
            PT - for 1 year
            Various herbs and supplements

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