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exhausted, tired and week all the time. Is it the elmiron?

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  • #1

    exhausted, tired and week all the time. Is it the elmiron?

    (tired and weak)
    I've seen older postings about this but wondered if there was anything new to add, new ideas or info.

    I take Ativan and Atarax at night. Those do make me sleepy but shouldn't last through the next day right?

    Wondering if its the Elmiron.

    Anyone else just feel worn out from a trip to the grocery store? Never mind a full day at work, I go straight to my couch/bed and heating blanket after work.

    Anyone tried vitamin B shots? Do they/ can they hurt your bladder?



    Peaceful warming thoughts,

    Liesel
    Tags: exhausted, low energy, run down, tired, week
  • #2
    Re: exhausted, tired and week all the time. Is it the elmiron?

    I think it's probably more apt to be the Ativan and/or atarax than elmiron --- or if you're painful, that could be it. You might ask your doctor about possibly trying other meds at night --- or maybe take them earlier in the evening.

    Sending gentle hugs,
    Donna
    Stay safe


    Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
    Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

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    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

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    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.     [3MG]

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    • #3
      Re: exhausted, tired and week all the time. Is it the elmiron?

      Donna is right, that used to happen to me too if I took It too late at night. I would try taking it around dinner time. If still feeling so tired def talk with the doctor. The Ativan I eventually stopped for that reason and took on an as needed basis or say every other day. Of course discuss that with your doc! Feel better soon!
      Love is a fruit in season at all times, within reach of every hand. ~ The Blessed Mother Teresa

      Status: Diagnosed October 2006 via cystoscopy with hydrodistention. Max anesthetized bladder capacity only 250 cc's. Mast cells and pinpoint bleeding found.

      Remission for me means less pain for more days than not. Frequency is inevitable with a bladder this tiny! That is ok though. The difference between when I was diagnosed and now, is that I have embraced that fact. Me and the loo, we are one.

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      • #4
        Re: exhausted, tired and week all the time. Is it the elmiron?

        If my IC is highly symptomatic, I get very tired.
        Kadi

        -------------------------------------------------------------
        I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
        ------------------------------------------------------


        New favorite quote: "God gives us only what we can handle. Apparently God thinks I'm a bad-ass" ~Author Unknown
        Source - Pinterest
        "

        Current treatments:
        -IC diet
        -Elavil 50mg at night
        -Continuous use birth control pills (4-5 periods/year)
        -Heparin/Marcaine/Sodium Bicarb home instills at night 3-4x per week, more often if needed
        -Pyridium if needed,
        -Pain medicine at bedtime daily, as needed during the day several times per week
        -Antibiotic when doing an instillation to prevent UTI
        -Colace & SmartFiber to treat chronic constipation from meds, Fleet enema as needed
        -Dye Free Benadryl 50 mg at bedtime
        -"Your Pace Yoga: Relieving Pelvic Pain" dvd, walking, treadmill at gym
        -Managing stress= VERY important!
        -Fur therapy: Hugging the cat!

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