I am hoping that I can get some advice on here from people with more experience and knowledge than me. My wife is diagnosed IC. The instillations helped a little then stopped really doing anything so she stopped going. She takes mybetriq (sp?) for spasms and a lot of AZO. She had a lot of UTI's and was on a lot of antibiotics for them, then a maintenance dose for a while but stopped because Dr. didn't want to go too long term. I love my wife very much, we have kids both work and so our lives are very stressed. I try to do what I can to help her, doing housework laundry and whatnot. I don't do this just because she's sick of course, its my house too but I try to always be the one to run to the store if we need something or whatever I can to take as much of the load and stress off of her and to help her relax. I know stress is horrible for everyone but for IC patients the stakes are higher.
My main concern is that I don't know what to do. She won't talk to me about her condition and gets upset if I try to. I have read on here and other places of things to try, or of possible other causes of her pain like PFD (which I know can be an and not an or). I have read of things on here and elsewhere that have helped people ease pain, stop or prevent flares but when I try to bring them up she gets upset and I feel like a nag. She seems to be resigned to just dealing with it and expects me to just accept it as well. Problem is it doesn't just affect her as I'm sure most spouses of IC patients understand. I can't stand to just sit by and watch her suffer but my attempts at helping lead to arguments.
I would welcome any thoughts or advice. I am fully prepared to accept the possibility that I just don't get it and should be more patient, understanding and mind my own business or that I am a selfish nag but I really don't think I am. I hope and pray that I am not, but if that's what people think then please let me know so I can work on me and leave her alone if that's what needs to happen.
My main concern is that I don't know what to do. She won't talk to me about her condition and gets upset if I try to. I have read on here and other places of things to try, or of possible other causes of her pain like PFD (which I know can be an and not an or). I have read of things on here and elsewhere that have helped people ease pain, stop or prevent flares but when I try to bring them up she gets upset and I feel like a nag. She seems to be resigned to just dealing with it and expects me to just accept it as well. Problem is it doesn't just affect her as I'm sure most spouses of IC patients understand. I can't stand to just sit by and watch her suffer but my attempts at helping lead to arguments.
I would welcome any thoughts or advice. I am fully prepared to accept the possibility that I just don't get it and should be more patient, understanding and mind my own business or that I am a selfish nag but I really don't think I am. I hope and pray that I am not, but if that's what people think then please let me know so I can work on me and leave her alone if that's what needs to happen.
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