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  • #1

    surgery and class scheduled same day

    YIKES!! I have the termination trial on May 14th, have to go with wires hanging out.. Then on the 16th is my implant day. I also have to start my foster parent classes on the 16th. It is really going to be a very rough week for me all the way around.
    The emotional turmoil we will endure with the trial, next thinking about having the surgery 2 days later, and going to foster care orientation class for 2 and 1/2 hours that evening. I called my uro's office to put a request in to have my stim done first thing in the am so we can do our class the same evening. She said she will ask for me to go first, so I can come home and sleep a few hours.

    Her I am scurrying around, trying to make do with all I have to do in that week and make it work out, and Christina, couldn't take time out to even set forth some effort to accomplish one thing. oh well I guess I just have the mind set to make all things possible..

    going to take a nap.. my head is going a million miles a minute.. taking bets Jake wakes up the second I dose off.. Whos in?
    'The will of God will never take you where the Grace of God will not protect you.'
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  • #2
    Oh my God!
    I am so sorry. The surgery is not a minor one...not to menton this trial has you going right out straight as it would to anyone. I hope that you surgery is easy for you. I hope you also get some good answers at the trial. You are in my thoughts!

    Erika
    IC diagnosed officially via cysto/urodynamics 1/26/07

    Grade II Endometriosis diagnosed via lap 12/11/07

    "Fall down seven times, Stand up eight."

    "Life is a tragedy for those who feel and a comedy for those who think."

    Current Treatments:
    Interstim Since 5/25/07!
    Birth Control

    Comment

    • #3
      Cindy! Are you nuts!?! Somehow I doubt that your uro would think it's a good idea to have surgery and then later on that same day go to a 2 1/2 hour class. I know you have to do both but is there anyway you can move one of them to a different day. You're going to end up killing yourself! Goodluck though if you actually do all of this in one week, you're amazing as always
      Christine



      I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
      1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
      2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
      I have tried every oral medication as well as rescue instills and DMSO.

      I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

      Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
      Also proud mom to the best Bullmastiff on earth, Claus

      Comment

      • #4
        You are one tough cookie.....(((((((((hugs))))))))))))
        Hugs
        Ronda

        ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!


        Link to Patient Handbook:
        http://www.ic-network.com/handbook/

        Diet Reference Sheet:
        http://www.ic-network.com/diet/icndi...tsheet0909.pdf

        Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

        Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

        Meds I have Tried:
        Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
        Lexapro< Bad reaction to this med!
        Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

        Dx With IC in Nov 2006 with Hydro/Cysto
        Hydro/Cysto Caused Bladder to Rupture.

        Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.


        ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

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        • #5
          your amazing I could not do all that in one day! Your tough!

          Lori

          Comment

          • #6
            Tig...I really do not know what to say. I am absolutely speechless. You just keep on amazing me.
            Sharon

            Shopping??? Did someone mention shopping? I'll get my hat... ;-)

            Where I can be found most days.



            Link to the ICN Patient Handbook:
            http://www.ic-network.com/handbook/

            Link to the IC Diet:
            http://www.ic-network.com/diet/


            IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

            Comment

            • #7
              Thinking of you Cindy. I know you will make it. You are a fighter. Jake is so lucky to have you.


              Kara
              Complex Case: Severe IC 1999, Interstim 2001, Endometriosis 2001, End Stage Refractory IC 2002, Bladder Removal (Cystectomy) 2002, Gall Bladder Removal 2005, Infertility 2003, Urethra Removal, Bladder Reconstruction (Urethrectomy/Indiana Pouch) 2006, Celiac Disease 2007, Adhesion Disease 2007, Pudendal Nerve Entrapment, Ovarian Cysts, Vestibulitis, Vulvodynia, Total Vestibulectomy and removal of both Skene's Glands, 2007 and Coccydynia 2007. Fibromyalgia and, Chronic Myofascial Pain Syndrome both in my neck and knees, 2007, PNE Decompression Operation May, 2009.Multiple Chemical Sensitivities, Anesthesia Awareness (to awaken during operations)Pudendal Nerve Decompression Surgery, Revrse Uterine Sling, Sept. 2011

              "One hour at a time, this was NOT my American Dream but it has to work out somehow."

              I also have some journals of my journeys, past and some present at:
              http://karasnewblog2008.blogspot.com/ and http://icnkaralynn.blogspot.com/

              Most of my Journaling now is currently on Facebook. These are old and my ICN Patient story is very old and outdated.

              Comment

              • #8
                I have got to make this all work out . The next class is not for another 90 days after this one ends . It is a 7 week class, every Wednesday from 6 to 9. My mom thinks I am trying to do this all in one day. I can do it, I know I can. It might kick my butt for a few days after, butt I can do it. My mom said I will be their only student laying down
                I called Cathy and told her she would be watching Jake for 7 Wednesdays in a row. She said what are you going to do go to the hospital, and then go to that class yup thats my plan and I am sticking to it

                I think I can, I think I can, I think I can :woohoo:
                'The will of God will never take you where the Grace of God will not protect you.'

                Comment

                • #9
                  Oh Lord girl, are you made of iron, LOL. I hope all goes well with the trial & your "wiring". I know you will pass the class with flying colors!!! Hugs, Kathi
                  One Day At A Time
                  Kathi

                  Comment

                  • #10
                    Thanks Kathi
                    'The will of God will never take you where the Grace of God will not protect you.'

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