Announcement

Collapse
No announcement yet.

everything you want to know and then some

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • #31
    Hello... Where did it go george? where did it go?
    Hugs
    Ronda

    ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!


    Link to Patient Handbook:
    http://www.ic-network.com/handbook/

    Diet Reference Sheet:
    http://www.ic-network.com/diet/icndi...tsheet0909.pdf

    Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

    Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

    Meds I have Tried:
    Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
    Lexapro< Bad reaction to this med!
    Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

    Dx With IC in Nov 2006 with Hydro/Cysto
    Hydro/Cysto Caused Bladder to Rupture.

    Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.



    ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

    Comment


    • #32
      leelee...Begin in the middle and you will find out.
      Sharon

      Shopping??? Did someone mention shopping? I'll get my hat... ;-)

      Where I can be found most days.



      Link to the ICN Patient Handbook:
      http://www.ic-network.com/handbook/

      Link to the IC Diet:
      http://www.ic-network.com/diet/


      IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

      Comment


      • #33
        LOL, now that's an interesting way to direct Sharon! And whew! I am so glad you don't expect me to remember, the pressure is off!! YAHOOOOO!!!
        Hugs,
        Tracey
        How do you eat an elephant? One bite at a time...

        Harry arrived 2/23/09!



        *IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

        IC Diet Cheat Sheet:
        http://www.ic-network.com/diet/2009icdietlist.pdf



        Dx's:
        IC dx'd Nov 2004
        Lymphocytic Colitis dx'd July 2005
        Possible IBS
        Current IC Meds
        Vistaril 25mg in the evening
        Previous IC Meds taken:
        Cystoprotek - 2 caps 2x's a day
        Elmiron, 100mg 3x's a day
        Ditropan, 5 mg 3x's a day
        Others:
        Wellbutrin 150mg 2x's a day for Anxiety/IBS
        Pepcid 40mg a day for GERD
        Zytrec for Nasal Allergies
        Align Probiotic daily for IBS

        Comment


        • #34
          Thanks Sharon .. I got lost..
          Hugs
          Ronda

          ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!


          Link to Patient Handbook:
          http://www.ic-network.com/handbook/

          Diet Reference Sheet:
          http://www.ic-network.com/diet/icndi...tsheet0909.pdf

          Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

          Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

          Meds I have Tried:
          Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
          Lexapro< Bad reaction to this med!
          Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

          Dx With IC in Nov 2006 with Hydro/Cysto
          Hydro/Cysto Caused Bladder to Rupture.

          Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.



          ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

          Comment


          • #35
            Well, I am so glad we found you!!!
            Hugs,
            Tracey
            How do you eat an elephant? One bite at a time...

            Harry arrived 2/23/09!



            *IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

            IC Diet Cheat Sheet:
            http://www.ic-network.com/diet/2009icdietlist.pdf



            Dx's:
            IC dx'd Nov 2004
            Lymphocytic Colitis dx'd July 2005
            Possible IBS
            Current IC Meds
            Vistaril 25mg in the evening
            Previous IC Meds taken:
            Cystoprotek - 2 caps 2x's a day
            Elmiron, 100mg 3x's a day
            Ditropan, 5 mg 3x's a day
            Others:
            Wellbutrin 150mg 2x's a day for Anxiety/IBS
            Pepcid 40mg a day for GERD
            Zytrec for Nasal Allergies
            Align Probiotic daily for IBS

            Comment


            • #36
              lol.. I was just thinking....I know thats a dangerous thing,
              But here we are trying to promote the new web site and it breaks...

              I think tracey did it
              Hugs
              Ronda

              ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!


              Link to Patient Handbook:
              http://www.ic-network.com/handbook/

              Diet Reference Sheet:
              http://www.ic-network.com/diet/icndi...tsheet0909.pdf

              Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

              Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

              Meds I have Tried:
              Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
              Lexapro< Bad reaction to this med!
              Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

              Dx With IC in Nov 2006 with Hydro/Cysto
              Hydro/Cysto Caused Bladder to Rupture.

              Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.



              ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

              Comment


              • #37
                Wasn't me!! *again looking around and whistling and shuffling feet*
                Hugs,
                Tracey
                How do you eat an elephant? One bite at a time...

                Harry arrived 2/23/09!



                *IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

                IC Diet Cheat Sheet:
                http://www.ic-network.com/diet/2009icdietlist.pdf



                Dx's:
                IC dx'd Nov 2004
                Lymphocytic Colitis dx'd July 2005
                Possible IBS
                Current IC Meds
                Vistaril 25mg in the evening
                Previous IC Meds taken:
                Cystoprotek - 2 caps 2x's a day
                Elmiron, 100mg 3x's a day
                Ditropan, 5 mg 3x's a day
                Others:
                Wellbutrin 150mg 2x's a day for Anxiety/IBS
                Pepcid 40mg a day for GERD
                Zytrec for Nasal Allergies
                Align Probiotic daily for IBS

                Comment


                • #38
                  The question is...Which Tracey?
                  Sharon

                  Shopping??? Did someone mention shopping? I'll get my hat... ;-)

                  Where I can be found most days.



                  Link to the ICN Patient Handbook:
                  http://www.ic-network.com/handbook/

                  Link to the IC Diet:
                  http://www.ic-network.com/diet/


                  IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

                  Comment


                  • #39
                    Oh Yeah!!! There's more than one of us, and I basically gave it away, dang!
                    Hugs,
                    Tracey
                    How do you eat an elephant? One bite at a time...

                    Harry arrived 2/23/09!



                    *IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

                    IC Diet Cheat Sheet:
                    http://www.ic-network.com/diet/2009icdietlist.pdf



                    Dx's:
                    IC dx'd Nov 2004
                    Lymphocytic Colitis dx'd July 2005
                    Possible IBS
                    Current IC Meds
                    Vistaril 25mg in the evening
                    Previous IC Meds taken:
                    Cystoprotek - 2 caps 2x's a day
                    Elmiron, 100mg 3x's a day
                    Ditropan, 5 mg 3x's a day
                    Others:
                    Wellbutrin 150mg 2x's a day for Anxiety/IBS
                    Pepcid 40mg a day for GERD
                    Zytrec for Nasal Allergies
                    Align Probiotic daily for IBS

                    Comment


                    • #40
                      hummmmmm
                      Hugs
                      Ronda

                      ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!


                      Link to Patient Handbook:
                      http://www.ic-network.com/handbook/

                      Diet Reference Sheet:
                      http://www.ic-network.com/diet/icndi...tsheet0909.pdf

                      Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

                      Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

                      Meds I have Tried:
                      Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
                      Lexapro< Bad reaction to this med!
                      Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

                      Dx With IC in Nov 2006 with Hydro/Cysto
                      Hydro/Cysto Caused Bladder to Rupture.

                      Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.



                      ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

                      Comment


                      • #41
                        *Tracey shuts mouth, locks it with invisible key and throws the key away!*
                        Hugs,
                        Tracey
                        How do you eat an elephant? One bite at a time...

                        Harry arrived 2/23/09!



                        *IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

                        IC Diet Cheat Sheet:
                        http://www.ic-network.com/diet/2009icdietlist.pdf



                        Dx's:
                        IC dx'd Nov 2004
                        Lymphocytic Colitis dx'd July 2005
                        Possible IBS
                        Current IC Meds
                        Vistaril 25mg in the evening
                        Previous IC Meds taken:
                        Cystoprotek - 2 caps 2x's a day
                        Elmiron, 100mg 3x's a day
                        Ditropan, 5 mg 3x's a day
                        Others:
                        Wellbutrin 150mg 2x's a day for Anxiety/IBS
                        Pepcid 40mg a day for GERD
                        Zytrec for Nasal Allergies
                        Align Probiotic daily for IBS

                        Comment


                        • #42
                          the sad thing is girls I was in there posting when it broke.. I am sorry guess my activity scared the site to death.

                          I left the noodles hanging by the cage:woohoo: , unless of course one of you naughty girls swiped them before I crashed the site..
                          'The will of God will never take you where the Grace of God will not protect you.'

                          Comment


                          • #43
                            AH HA!!! The culprit has identified herself!!!
                            Hugs,
                            Tracey
                            How do you eat an elephant? One bite at a time...

                            Harry arrived 2/23/09!



                            *IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

                            IC Diet Cheat Sheet:
                            http://www.ic-network.com/diet/2009icdietlist.pdf



                            Dx's:
                            IC dx'd Nov 2004
                            Lymphocytic Colitis dx'd July 2005
                            Possible IBS
                            Current IC Meds
                            Vistaril 25mg in the evening
                            Previous IC Meds taken:
                            Cystoprotek - 2 caps 2x's a day
                            Elmiron, 100mg 3x's a day
                            Ditropan, 5 mg 3x's a day
                            Others:
                            Wellbutrin 150mg 2x's a day for Anxiety/IBS
                            Pepcid 40mg a day for GERD
                            Zytrec for Nasal Allergies
                            Align Probiotic daily for IBS

                            Comment


                            • #44
                              anyone here to back me up, and admit they were there with me????
                              'The will of God will never take you where the Grace of God will not protect you.'

                              Comment


                              • #45
                                oooooooh gosh, I think I was at the laundromat....
                                Hugs,
                                Tracey
                                How do you eat an elephant? One bite at a time...

                                Harry arrived 2/23/09!



                                *IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

                                IC Diet Cheat Sheet:
                                http://www.ic-network.com/diet/2009icdietlist.pdf



                                Dx's:
                                IC dx'd Nov 2004
                                Lymphocytic Colitis dx'd July 2005
                                Possible IBS
                                Current IC Meds
                                Vistaril 25mg in the evening
                                Previous IC Meds taken:
                                Cystoprotek - 2 caps 2x's a day
                                Elmiron, 100mg 3x's a day
                                Ditropan, 5 mg 3x's a day
                                Others:
                                Wellbutrin 150mg 2x's a day for Anxiety/IBS
                                Pepcid 40mg a day for GERD
                                Zytrec for Nasal Allergies
                                Align Probiotic daily for IBS

                                Comment

                                Working...
                                X