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No Sex Life, Not Even Orgasms This Sux!

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  • No Sex Life, Not Even Orgasms This Sux!

    Okay, I have no sex life to speak of anymore, I can't even have and orgasm without pain. My husband has to go weeks sometimes months without it. Sometimes I just have sex anyway cause I feel so guilty about not wanting to because of the pain or fear of pain. This is awful. We used to be a very sexually active couple. I enjoyed sex until I started having pain and now I just dread even talking about it. I have found my self resentful of sexual imagery, whether it be an ad or just a picture of a couple looking sexy. I do still have the urge to have sex but the fear of pain keeps me from acting on it. I Can't even masterbate (maybe TMI). This is for me, the most devestating part of this disease. My husband is usually very understanding, but he does have his moments when He just doesn't get it. It's not his fault I am sick so why should he have to suffer from this disease too? I can't imagine what it is like for women who have husbands who don't understand at all. At least mine tries. I am lucky to have him and don't want to loose him because I can't have sex anymore. I realize that there are a lot of sexless marriages out there. I just don't want to be one of them. The worst thing of all is that SEX seems to be my trigger! Imagine the guilt he feels. He even told me he feels like it's his fault I am in pain cause we had aggressive sex! I told him not his fault but I am sure he still feels responsible. Not to mention how crappy I feel all the time. If I am lucky I can have sex 2 times a month. Right after My period for a couple of days. Anything anyone can tell me that will make things look promising. I try to keep a positive attitude but this one part of this is the hardest for us.
    Mia Sowell
    Fort Worth, TX
    2 Kids
    Ethan (3)
    April (17)
    Husband Eric (Very Supportive)
    Clinically Dxed 04-16-07
    Symptoms Since 2004

    Elmoron 400mg 2x Day
    Atarax 50mg 1x Day
    Xanex .50mg 8 hrs As needed
    Vicodin 5/500mg 4-6 hrs As needed
    Xanaflex 4mg 1x Day
    Urelief Plus 6 hrs as needed for Bladder spasms
    Prelief as directed

  • #2
    Hello There I truly understand..You know there is another website that Jill the founder of the ICN has created just for people like us..Heres the site..There are so many great tips on differant ways to have sex without intercourse.. My husband stays satisfied now...

    Last edited by leelee88; 05-12-2007, 07:02 AM.

    ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!

    Link to Patient Handbook:

    Diet Reference Sheet:

    Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

    Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

    Meds I have Tried:
    Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
    Lexapro< Bad reaction to this med!
    Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

    Dx With IC in Nov 2006 with Hydro/Cysto
    Hydro/Cysto Caused Bladder to Rupture.

    Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.

    ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.