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OK.. Its about here!!! What are you getting yor Sweethearts for Valentines?? I need help...
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Hugs
Ronda
ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!
Link to Patient Handbook:
http://www.ic-network.com/handbook/
Diet Reference Sheet:
http://www.ic-network.com/diet/icndi...tsheet0909.pdf
Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring
Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure
Meds I have Tried:
Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
Lexapro< Bad reaction to this med!
Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..
Dx With IC in Nov 2006 with Hydro/Cysto
Hydro/Cysto Caused Bladder to Rupture.
Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.
ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
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I wish I had some ideas for you Ronda, I'm not getting my hubby anything this year because we're broke and the car isn't working. Honestly though he wouldn't want anything more than some good sex anyway, hahaha. I got the kids some candy when I went to the grocery store on Sunday and asked him if he wanted some too and he said no so I'll probably send him an ecard and that'll be it.Christine
I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
I have tried every oral medication as well as rescue instills and DMSO.
I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)
Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
Also proud mom to the best Bullmastiff on earth, Claus
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I got him a tattoo..but that may not be the thing for your sweetie. I knew he's been planning to get one for some time now.
Lets see...chocolates? An invite to go out to dinner?
Or how about those Valentine Coupon Books? Like it'll have coupons for "A back massage for 20min" or "grant my wish. I want____________" & he gets to fill in hte blank. Stuff like that.
Or what about a cozy dinner at home with a movie HE likes and end it with cupcakes with those silly conversation heart candies on top.
Or go for the practical...a box of hand and toe warmers with a card that says he'll now have warm hands and warm toes to match his warm heart (OK it's, cheesy I know) But they come in handy if he works outside or goes hunting, fishing, goes to a hocky game? Ok so now I'm grasping
Maybe somebody else will come up with some good ideas
Somewhere there's a reason /Why things go like they do /Somewhere there's a reason /Why some things just fall through /We don't always see them /For what they really are /But I know there's a reason /Just can't see it from this far /Maybe I don't like it, /But I have no choice /I know that somewhere, /Someone hears my voice / I thought I knew it all /I thought I had it made /How could it end this way? /I thought I knew Somewhere there's a reason /Why things don't go my way /Somewhere there's a reason /That I cannot explain /Just like the change of season, /Just may not be my turn /But I know there's a reason, /The lesson's mine to learnComment
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I bought mine silk boxers with hearts on them, candy.. wrapped it up set it on his pc so he could open it today.. and it still sits there un touched.... tomorrow it will hit the trash can.'The will of God will never take you where the Grace of God will not protect you.'
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Well my husband and I have been marry for 26 years on Feb. 7th. We usually do something together on the 7 instead on the 14. We went to a nice resturant and spend some time together. It was nice. Instead of trying to buy expense gifts, we try to make plans where we can be together. Just me and my hubby.
TrishannComment
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Happy Belated Anniversary Trishann.......26 years is amazing
You all are very blessed to have that wonderful gift.Miss Bessie
Galatians 6:2 - Carry each other's burdens, and in this way you will fulfill the law of Christ.
Hebrews 13:2 - Do not forget to entertain strangers, for by doing so some people have entertained angels without knowing it.
Proverbs 4:23 - Above all else, guard your heart, for it is the wellspring of lifeComment
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Thank you Octoberfarm for the kind words.
TrishannComment
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happy anniversery.. sorry its late just found out he he he
'The will of God will never take you where the Grace of God will not protect you.'Comment
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Tigger gal, I pretty well kept it to myself. Thank you so much.
TrishannComment
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Well ... I got him something kind of ... naughty. And that I hope will please him even though there is no chance of our engaging in ordinary 'marital relations.'
Then the jerk goes and tells me he has to take a business trip out of town, Wednesday-Thursday. I told him he better make arrangements to take Friday off!
If I asked him what he wanted, he'd probably ask for a new saw, or something, so I don't ask!Je vous souhaite de la joie, de la bonne santée, et tout ce qu'il y a de bon dans la vie.
Wishing you happiness and good health, and all the best out of life.
Peace, Carolyn
___________________________________________________
Laura (11), Susannah (12 1/2) and Maman (that's me!), North Wildwood NJ, September 2007
On the Beach with IC Comment
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I read in the newspaper this weekend about a newly opened chocolate store so the husband and I just 'had' to venture today to check it out--
. I'm a huge fan of chocolate dipped apples and how coinkinkydinkal that this is one of their specialties! So, a chocolate cappucino, coffee, 4 chocolate bars, some mints, a few single chocolate pieces and 2 chocolate covered apples (one with "the works" and one peanut butter chocolate) later our 'fix' will hopefully be satisfied!
Happy V-Day y'all!
Diana(\__/)
(o.O )
(> < ) This is Bunny. He's on his way to world domination.Comment
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I'll make mine a valentine card and probably make him a new shop apron. He really likes it when I make him something.
DonnaStay safe
Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf
Have you checked the ICN Shop?
Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.
Patient Help: http://www.ic-network.com/patientlinks.html
Sub-types https://www.ic-network.com/five-pote...markably-well/
Diet list: https://www.ic-network.com/interstitial-cystitis-diet/
AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/
I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you. [3MG]
Anyone who says something is foolproof hasn't met a determined foolComment
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I'm givin my guy what he always wants...Little ol me.
Sharon
Shopping??? Did someone mention shopping? I'll get my hat... ;-)
Where I can be found most days.
Link to the ICN Patient Handbook:
http://www.ic-network.com/handbook/
Link to the IC Diet:
http://www.ic-network.com/diet/
IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.Comment
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You all have some great ideas...Guess I will be going shopping today
Hugs
Ronda
ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!
Link to Patient Handbook:
http://www.ic-network.com/handbook/
Diet Reference Sheet:
http://www.ic-network.com/diet/icndi...tsheet0909.pdf
Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring
Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure
Meds I have Tried:
Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
Lexapro< Bad reaction to this med!
Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..
Dx With IC in Nov 2006 with Hydro/Cysto
Hydro/Cysto Caused Bladder to Rupture.
Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.
ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
Comment
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Out of the 5 Valentine's Days since we've been together, we've managed to spend 2 with each other, lol. Usually due to work and then for a few of them he still lived 3 hours away and of course it was always in the middle of the week.... This year of course, he's on 2nd shift, so I won't get to see him but for only an hour when I come home for lunch. He won't get home until I'm long asleep, lol.
Sooooooo, all he's been bugging for is what I'd planned on doing anyway, since we too are broke - baking his favorite treats, and I too will probably make him a card as well. I feel bad, I don't have any new "I Love You Because" things to add to his book that I add to every year - hmmm, think I will work on that tonight, in lieu of a card!
Hugs,
Tracey
How do you eat an elephant? One bite at a time...
Harry arrived 2/23/09!
*IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
IC Diet Cheat Sheet:
http://www.ic-network.com/diet/2009icdietlist.pdf
Dx's:
IC dx'd Nov 2004
Lymphocytic Colitis dx'd July 2005
Possible IBS
Current IC Meds
Vistaril 25mg in the evening
Previous IC Meds taken:
Cystoprotek - 2 caps 2x's a day
Elmiron, 100mg 3x's a day
Ditropan, 5 mg 3x's a day
Others:
Wellbutrin 150mg 2x's a day for Anxiety/IBS
Pepcid 40mg a day for GERD
Zytrec for Nasal Allergies
Align Probiotic daily for IBSComment
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