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    Hi I was just wondering if sex can ever get back to normal again??

  • #2
    I've been able to have sex when it doesn't hurt if that's what you mean by normal but usually I still have some level of pain or discomfort afterwards.

    I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
    1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
    2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
    I have tried every oral medication as well as rescue instills and DMSO.

    I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

    Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
    Also proud mom to the best Bullmastiff on earth, Claus


    • #3
      yes thats what I mean without hurting. I have only been married for less than 2 years, and I dont want my relationship with my husband to deteriorate. Has anyone not had any problems with sex after being on medication??


      • #4
        You should check out this site

        This site was created by Jill, the same wonderful lady who created this site ICN...There is alot of wonder tips and suggestions on there...

        ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!

        Link to Patient Handbook:

        Diet Reference Sheet:

        Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

        Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

        Meds I have Tried:
        Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
        Lexapro< Bad reaction to this med!
        Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

        Dx With IC in Nov 2006 with Hydro/Cysto
        Hydro/Cysto Caused Bladder to Rupture.

        Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.

        ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.


        • #5
          I am praying, too, that sex can return to normal...I miss it!


          "A heart is not judged by how much you love; but by how much you are loved by others."
          ~ The Wizard of Oz

          "If I ever go looking for my heart's desire again, I won't look any further than my own
          back yard. Because if it isn't there, I never really lost it to begin with!" ~ Dorothy


          • #6
            There are many wonderful suggestions on this site for improving your sex life, while living with IC; please check out some of the archived posts.

            Moreover, a great source of information on IC & Intimacy is; check out the following articles, they are written by a fabulous physical therapist that specializes in women's health, PFD, Trigger Points, etc.

            1. Sex, Lies and Dyspar . . . Who
            2. Trigger Trauma
            3. nICE & HEAT
            4. That's so . . . . . Stimulating
            5. To Kegel or Not to Kegel

            I suggest that you consult with your healthcare provider if you believe that the information above may be helpful; your healthcare provider will determine the appropriate treatment regimen for you.

            Only your healthcare provider can determine if the above suggestions are appropriate treatment options for you; these are just some suggestions that you can discuss with him/her.

            The contents in this post are provided for informational purposes only. The contents are not intended in any way to be a substitute for professional medical advice. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your medical condition.

            Best wishes, ICB


            • #7
              I have quite a bit of pain for 2 years during sex, and while the medication has improved my symptoms for urination and such (I take Elmiron) it didn't touch my "pain during intercouse" symptoms. I have been seeing a physical therapist and we have been using pelvic floor exercies, electrode therapy, dialators, and biofeedback, as well as her having me do some ab work and such. I've only been going for about 6 weeks, and already my husband and I can have sex twice a week! Before that, it had beeen months and months, and months. From what I gather, not everyone with IC responds this well to the therapy, but many do, and insurance companies will cover some of the cost (depending on your provider, plan, etc.). You may want to talk to your doctor about a referral and see if this kind of treatment can help improve your symptoms.

              Diagnosed with IC October 2005