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  • Come join us!!!!!

    Have ya'll checked out http://www.whensexhurts yet? Come on in...the water's fine.
    Last edited by SharonA; 02-27-2007, 08:40 AM.
    Sharon

    Shopping??? Did someone mention shopping? I'll get my hat... ;-)

    Where I can be found most days.



    Link to the ICN Patient Handbook:
    http://www.ic-network.com/handbook/

    Link to the IC Diet:
    http://www.ic-network.com/diet/


    IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

  • #2
    I think you meant to put http://www.whensexhurts.com I have checked it out, and it seems to be a great place! I think it was a great idea to create a site for people who have that problem, since it isnt really limited to ICers. I am glad that it is taking off. Thanks for reminding everyone about it! Hugs, Amy

    Comment


    • #3
      Just adding my 2 cents worth. It's really a wonderful, light hearted place where you can feel comfortable talking about sexual issues. Definately come on over and visit!
      *IC-- Summer 2004; PFD--October 2005
      *Fibro--Fall 2000; CFS-- Fall 2000
      *MPS--Fall 2000; Crohn's disease-- 1997*IBS,GERD, *Migraines, hypothyroidism, GYN problems *Degenerative Disc Disease/scoliosis

      Total Abdominal Hysterectomy--adenomyosis--9\08

      04/17/09 Crohn's disease almost killed me with a combo of extreme constipation from pain medications. My bowel ruptured, I almost died from peritonitis and spent several days in the ICU then more in a private room on the floor. If you have any questions about severe constipation from pain meds please don't hesitate to send me a message.

      Comment


      • #4
        Oh yes, there is a discussion for everyone, if something doesn't suit you skip on over it and on the next! Very user-friendly!! It's safe and non-judgemental whatsoever, and as Sandy said - lighthearted, we're all in it together so might as well have fun while trying to figure it all out!
        Hugs,
        Tracey
        How do you eat an elephant? One bite at a time...

        Harry arrived 2/23/09!



        *IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

        IC Diet Cheat Sheet:
        http://www.ic-network.com/diet/2009icdietlist.pdf



        Dx's:
        IC dx'd Nov 2004
        Lymphocytic Colitis dx'd July 2005
        Possible IBS
        Current IC Meds
        Vistaril 25mg in the evening
        Previous IC Meds taken:
        Cystoprotek - 2 caps 2x's a day
        Elmiron, 100mg 3x's a day
        Ditropan, 5 mg 3x's a day
        Others:
        Wellbutrin 150mg 2x's a day for Anxiety/IBS
        Pepcid 40mg a day for GERD
        Zytrec for Nasal Allergies
        Align Probiotic daily for IBS

        Comment


        • #5
          Duh!!!!!! Thanks, Amy. I have made the correction.
          Sharon

          Shopping??? Did someone mention shopping? I'll get my hat... ;-)

          Where I can be found most days.



          Link to the ICN Patient Handbook:
          http://www.ic-network.com/handbook/

          Link to the IC Diet:
          http://www.ic-network.com/diet/


          IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

          Comment


          • #6
            lol yes sex hurts sometimes you silly girl.. I one thought I was the only one that typo'ed like that

            Yes please join us, its a great site.
            'The will of God will never take you where the Grace of God will not protect you.'

            Comment


            • #7
              I signed up, but I still can't get into any of the threads.

              Is it me????

              Comment


              • #8
                Tracey, you have to be approved by Jill first. Just a safety thing. I'm sure you'll get your confirmation within a day, or less.
                *IC-- Summer 2004; PFD--October 2005
                *Fibro--Fall 2000; CFS-- Fall 2000
                *MPS--Fall 2000; Crohn's disease-- 1997*IBS,GERD, *Migraines, hypothyroidism, GYN problems *Degenerative Disc Disease/scoliosis

                Total Abdominal Hysterectomy--adenomyosis--9\08

                04/17/09 Crohn's disease almost killed me with a combo of extreme constipation from pain medications. My bowel ruptured, I almost died from peritonitis and spent several days in the ICU then more in a private room on the floor. If you have any questions about severe constipation from pain meds please don't hesitate to send me a message.

                Comment


                • #9
                  It is a wonderful place..
                  And the Goddesses are a true sport...lol .. There are alot of helpful threads!!!!!!!!!!
                  Hugs
                  Ronda

                  ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!


                  Link to Patient Handbook:
                  http://www.ic-network.com/handbook/

                  Diet Reference Sheet:
                  http://www.ic-network.com/diet/icndi...tsheet0909.pdf

                  Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

                  Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

                  Meds I have Tried:
                  Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
                  Lexapro< Bad reaction to this med!
                  Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

                  Dx With IC in Nov 2006 with Hydro/Cysto
                  Hydro/Cysto Caused Bladder to Rupture.

                  Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.



                  ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

                  Comment


                  • #10
                    Hi, I'm dianna_rose and it's good to be here!

                    Hello everyone, I'm so happy to find you all. Now I can continue learning more about what my body is doing to me, and I have so many questions but above all, I no longer feel alone, because I was the only one I knew who has IC. While I'm babbling on, can anyone point me in the direction of an article I can send on to family and friends or that I can print out for them to help them understand what this is? Most of them think the pain is mostly in my head for having nothing more than a bad, recurring UTI. And where do I learn about the IC diet? It looks like I keep triggering my flares from what I eat and what I do. Well, I am thankful for all of you. Can't wait to get to know you all... Sincerestly,
                    dianna_rose...

                    Comment


                    • #11
                      Hi there dianna_rose!! This is a great place for support and information etc, and whensexhurts.com is another great resource! Here's a link to the Patient Handbook here at the ICN, it's the go-to place for all sorts of information - medicines, treatments, tests, diet, etc...

                      http://www.ic-network.com/handbook/


                      And here is a link directly to the IC Diet foods list:

                      http://www.ic-network.com/handbook/diet.html

                      I look forward to getting to know you as well and seeing you around the boards!!!

                      Hugs!!!
                      Hugs,
                      Tracey
                      How do you eat an elephant? One bite at a time...

                      Harry arrived 2/23/09!



                      *IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

                      IC Diet Cheat Sheet:
                      http://www.ic-network.com/diet/2009icdietlist.pdf



                      Dx's:
                      IC dx'd Nov 2004
                      Lymphocytic Colitis dx'd July 2005
                      Possible IBS
                      Current IC Meds
                      Vistaril 25mg in the evening
                      Previous IC Meds taken:
                      Cystoprotek - 2 caps 2x's a day
                      Elmiron, 100mg 3x's a day
                      Ditropan, 5 mg 3x's a day
                      Others:
                      Wellbutrin 150mg 2x's a day for Anxiety/IBS
                      Pepcid 40mg a day for GERD
                      Zytrec for Nasal Allergies
                      Align Probiotic daily for IBS

                      Comment


                      • #12
                        dianna_rose...We are so glad you found us. Use the links that Tracey gave you and you will find a wealth of information.
                        Sharon

                        Shopping??? Did someone mention shopping? I'll get my hat... ;-)

                        Where I can be found most days.



                        Link to the ICN Patient Handbook:
                        http://www.ic-network.com/handbook/

                        Link to the IC Diet:
                        http://www.ic-network.com/diet/


                        IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

                        Comment


                        • #13
                          :welcome Diana Traceanne gave you the link to find everything you need, and you also have the boards to learn more.. You will find a wealth of info with in these pages.
                          'The will of God will never take you where the Grace of God will not protect you.'

                          Comment


                          • #14
                            I'm sorry, Sharon, but there was something about the combination of the Forum being titled "Sex and Romance" and your Thread being titled "Come Join Us!" that just absolutely cracked me up!

                            Like, uh, yeah -- maybe when we get to know each other a little better...
                            Je vous souhaite de la joie, de la bonne santée, et tout ce qu'il y a de bon dans la vie.
                            Wishing you happiness and good health, and all the best out of life.

                            Peace, Carolyn
                            ___________________________________________________

                            Laura (11), Susannah (12 1/2) and Maman (that's me!), North Wildwood NJ, September 2007


                            On the Beach with IC

                            Comment


                            • #15
                              LMAO!! Ok, now I am cracking up!!
                              Hugs,
                              Tracey
                              How do you eat an elephant? One bite at a time...

                              Harry arrived 2/23/09!



                              *IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

                              IC Diet Cheat Sheet:
                              http://www.ic-network.com/diet/2009icdietlist.pdf



                              Dx's:
                              IC dx'd Nov 2004
                              Lymphocytic Colitis dx'd July 2005
                              Possible IBS
                              Current IC Meds
                              Vistaril 25mg in the evening
                              Previous IC Meds taken:
                              Cystoprotek - 2 caps 2x's a day
                              Elmiron, 100mg 3x's a day
                              Ditropan, 5 mg 3x's a day
                              Others:
                              Wellbutrin 150mg 2x's a day for Anxiety/IBS
                              Pepcid 40mg a day for GERD
                              Zytrec for Nasal Allergies
                              Align Probiotic daily for IBS

                              Comment

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