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A newly wed and no sex...oouch!

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  • A newly wed and no sex...oouch!

    Hi Everyone, I am a newly wed, i got married Feb 25th last year, the night of my wedding i remember... not having sex with my husband, but sitting on the toilet thinking i had to pee... cuz something wasn't right... i didn't feel right and fell asleep... turns out a few months later i was diagnosed with IC. My husband annd i are newly weds and we have had sex MAYBE 10, 15 times? Praise the Lord he is so understanding but this sucks! Everytime i get enough courage to try, it hurts soooo bad, OR if it doesn't hurt, the next day im peeing blood with an AWFUL infection.. anyone else get that?
    What a nightmare for newly weds huh?

  • #2
    So sorry you're having so many problems as a newly wed. I can relate. I have had pelvic pain issues since around the time I met my hubby and we've been married a little over three years. It is def frustrating when sex hurts so much. I know there are some great threads in this section about things to make sex more comfortable, lubricant being one of them. There is also another website run by our fearless leader Jill you might want to check that out as well. I have also heard from other members that some are on preventative antibiotics that they take everytime they have sex to prevent an infection, you might want to talk to your dr about that. My main complaint is pain, not infection and using lubricant, taking some AZO before and some pain meds after have helped me a lot, still not totally pain free but a lot more comfortable.
    Last edited by GriffsMommy; 03-11-2007, 01:01 PM.

    I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
    1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
    2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
    I have tried every oral medication as well as rescue instills and DMSO.

    I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

    Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
    Also proud mom to the best Bullmastiff on earth, Claus


    • #3
      Thanks for the advice! I am definitly going to check out that website! I think i'll ask my Dr. about having some meds on hand... i didn't know you could do that..
      The Dr.'s around here dont know alot about IC. I am from the Maritimes in Canada.. and no ones seems to know much about it here, which is fusterating. So hopefully i will be able to bring some information from this great website to my Dr and be able to help myself out.
      Thanks again..


      • #4
        Hi Melisa.
        Please come join us at
        When you join, you will have to be approved by the leader. I think you will get a great deal of info and help over there.
        'The will of God will never take you where the Grace of God will not protect you.'


        • #5
          Hi and

          Many of us have problems with sex -- I get pain afterwards (sometimes during as well), but don't have the infection problem so much. However, others here definitely do experience that, and yes, they do take an antibiotic before/after sex just to try to prevent the infection in the first place.

          Have you checked out the "Tips for Great IC Sex" thread here? It's at

          There are a lot of tips listed, and other users have chimed in on what works and what doesn't work for them. There may be something that works for you there.

          *Diagnosed with severe IC in 2004
          *Also diagnosed with PFD, fibromyalgia, chronic myofascial pain, IBS, migraines, allergies/asthma, dermatographism
          *Kept trying a million different treatments for all these things until I found what works, and I am doing okay these days with the help of a cocktail of medications and the InterStim, which was first placed in 2007. [I have had 2 revisions - one in 2010 when my battery died and had to be replaced, and one complete replacement (lead and generator) in 2012 after a fall on my stairs caused my lead to move.]
          *Current meds include Atarax (50mg at night), Lyrica (150mg twice a day), Xanax (0.5mg at night and as needed), Zanaflex (4mg at night), hydrocodone (10/325, every 6 hours as needed), Advair, Nasonex, Singulair (10mg at night), oral contraceptives, home instills containing Elmiron and Marcaine (as often as I need to do them).

          **I am not a medical authority nor do I offer definitive medical advice. I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.


          • #6
            Thank you guys so much for all the great information and support.. sometimes you feel so alone..


            • #7
              I know exactally how you feel. It doen't seem like anyone else understands how bad it hurts. I have suffered from ic for about 20 years. Just daignosed about 2 years ago. I also have a lot of pain with sex. My husband is great. Very supportave. My dr. has perscribed lidocane jell to make sex a little more comfortable. Also, I do home bladder instillations, which numb the bladder, about 30 minutes before. Pain medication also helps. I wish there was more I could tell you to do but this is all I know. I hope it helps.


              • #8
                To try to look at the positive side of the situation is hard, but having a partner in life means leaning on them when you feel ill or weak, or are in pain. This is something that I am still struggling with and I am getting married in 4 months! It's ok if you and your partner can't be together in a physical way...I am sure this is not why they are with you, or married you! Besides, there are other fun things that can be done:woohoo:

                Give it a try, getting creative with your loved one can help bring back some control to the situation, to feel like you are taking care of that person and to ignite that spark that I am sure is there...I should take my own advice! It is hard, though...especially since so many women with IC feel isolated, don't give up!



                • #9
                  You guys are right... it is soo good to have a such a supportive husband..and i am def going to talk to my Dr. about all the different options mentioned. Im glad i can bring some ideas to him instead of just not knowing what to say or do...
                  Thanks again!!!! This site is great!