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Sex not enjoyable

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  • Sex not enjoyable

    I don't have pain during sex but it is very difficult for me to enjoy it because I can't stop worrying if I will get a UTI or if it will cause a flare. I just don't want to have sex anymore, it is not worth it to me.

    I have been in a relationship for 3 years and I don't know how much longer it can last without sex. It is not fair to my boyfriend.

    I was recently diagnosed and this has just totally turned my life upside down. I just can't believe this is happening to me. Has anyone been able to overcome this? How?

  • #2
    There are a lot of us on here that have some sort of problem with not being able to enjoy sex.. There is a great web site that Jill has created, she is the same great woman who created this site.. Heres the addy


    ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!

    Link to Patient Handbook:

    Diet Reference Sheet:

    Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

    Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

    Meds I have Tried:
    Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
    Lexapro< Bad reaction to this med!
    Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

    Dx With IC in Nov 2006 with Hydro/Cysto
    Hydro/Cysto Caused Bladder to Rupture.

    Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.

    ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.


    • #3

      I have had IC for almost a year, and Maybe longer since I had so much problems with sex I wanted to advoid it too. I talked with my obgyn and he said to find a postion that works, and I have, On top is the best with me. Relaxe as much as you can the more you worry the worse it gets. Stress sets this off worse. I also was on Elmoron and that help alot with the pain, and ealier a women suggested I get azo an over the counter product to help with my spasms. Today I was hurting so badly I went to the store to get that I already feel better. Don't let this rule you, research to you homework and find out works best for you. Well all respond differently, but like I said find what works and go for it, stick with that method and let youself go. I find that much easier than worrying about it, it makes everything worse for me. Hang in there. Hope things work out for you, I totally know how you feel in this subject been there, and still there at times, but I refuse to give up!