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IC smell?

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    mayray518
    No longer active

  • mayray518
    replied
    Around the same time I got IC I also got bacterial vaginosis which can be the result of change in hormones and a change in the vaginal lining. I got a depository cream from the gyno that cleared it up. It has come back a few times. maybe this is it.

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  • blondee
    Registered User

  • jaxmdunn
    replied
    Thanks Leora,
    Glad to know I am not alone hi

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  • ICyuck
    replied
    P.S. And the smell is there no matter what I eat or drink, no matter what amount of water I drink. It is true that the smell is diluted somewhat by copious amounts of water, but only somewhat - it is still a very distinctive odor.

    Love, Leora

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  • ICyuck
    replied
    Jacqueline, I can always tell how badly I am flaring by the smell of my urine. I do not know how many times I have requested a urine culture because I was just sure I had an infection based on the smell...but nope it was just the IC being a bit worse than usual.

    It's an awful, "sick" smell and like you there are traces of that smell that end up in my underwear, etc. (sorry to be so gross but it's true and I hate the smell.)

    I do not have any vaginal infection at that time (no smell coming from my vagina at all) nor do I test positive for UTI. I DO test positive for nitrites or whatever they are, signalling extensive inflammation.

    I think your doctor must be right, because I can tell you that even if I had no nerve endings and could not feel my bladder, I would still know what was going on with my IC, by the smell.

    Love, ICY

    Leave a comment:

  • rnewman
    Registered User

  • rnewman
    replied
    Are you drinking enough water?
    My urine doesnt smell as much on days when I keep up with my water intake!!

    It could also be medications...they are metabolized and usually excreted through the urinary system, so all the "garbadge" is in your urine, and that can cause an odor.....just like when you drink coffee, your pee smells like coffee.

    Just a thought! Hope this helps,
    Rachel

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  • blondee
    Registered User

  • jaxmdunn
    replied
    Thank you all for your feedback. Actually it was a typo, I meant to say the inflammation of has caused a smell in my urine. I was on morphine for pain so I was a little loopy when I typed. I saw my uro again today and said this is a common side effect from IC. I was just curious if anyone else has it and if so what they do about it. Since my bladder leaks a little it accumulates in under garments and sprays and pads don't help. Kind of gross I know but welcome any feedback!!

    Leave a comment:

  • tigger_gal
    ICN Member

  • tigger_gal
    replied
    Count me in on this one I have never heard of an IC infection Please check with you gyn like JoJO suggested.. Here is something to dose your boyfriend drink alot or any.. I use to have a contius yeast infection with a smell when he drank, havent had one in the 19 months he's been sober. keep us posted and good luck
    Brat

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  • rnewman
    Registered User

  • rnewman
    replied
    My urine sometimes has an odor, But I dont beleive that I do. And I have never had anyone tell me I had an IC "infection" (unles it was a regular old urinary tract infection..)

    I am with Karen, JoJo, and Donna. It could be a bacterial infection in the vagina, or even a yeast infection. I would get a second opinion asap, and I would probably go to a gyno rather than a uro. Im assuming your urologist has at least made sure you dont have a urinary tract infection?? I would go somewhere else if I could!!

    HOpe this helps a little,
    Let us know how you do!
    Rachel

    Leave a comment:

  • ICNDonna
    ICN Staff

  • ICNDonna
    replied
    I also have never heard of an interstitial cystitis infection. And I've never experienced an odor from my IC. I agree that you need to be checked to be sure you don't have something else going on.

    Donna

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  • JOJO
    Registered User

  • JOJO
    replied
    Hi
    I never heard of an IC infection, but have you seen a gyno? Maybe you have a vaginal infection,could be bacterial, they ususally will give an oder. Especially if your boyfriend is noticing it, is it more predominant after sex? Sometimes it means infection. It is usually caused by the PH balance being thrown off in the vaginal area. I have had a few . They give you medicine to put in your vagina. Maybe you might want to see a gyno. Good Luck-JOJO

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  • KarenNielsen
    ICN Member

  • KarenNielsen
    replied
    All I can think of related to this - Are you getting DMSO treatments? They make you smell like garlic or cooked corn for a few hours to a couple of days after each treatment. Otherwise, as far as I know we do not smell due to IC, and I would get a 2nd opinion about what is causing your problem.

    Leave a comment:

  • ICNJess
    Support Volunteers

  • ICNJess
    replied
    Jacqueline--

    I am sorry, but I don't understand that part of "the infection of IC"...? I don't have an answer for you, but maybe someone will be along shortly. Just wondering what your doc meant.

    Good luck!
    Jess

    Leave a comment:

  • blondee
    Registered User

  • blondee
    started a topic IC smell?

    IC smell?

    I am really curious if any one else is/has experienced this... a few months after being diagnosed with IC, I've had a horrible smell. My uro said this is from the "infection" of IC. I have tried everything and finding it is putting a damper on my sex life with my boyfriend. Any feedback welcome eek
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