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  • Does your S/O understand??

    Does your signifant other understand what you are going through?? Or do they get frustrated that you are in pain.



    Diagnosed with IC 3-30-2003

    Flare ups 1 time a month lasts for days.

  • #2
    My husband does understand. He is always here for me with a hug and understanding.

    Donna
    Stay safe


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    • #3
      It took my husband a while to completely understand; it took making him accompany me to a Dr's appt and seeing/hearing for himself the discussion between me and Dr.

      Diana
      (\__/)
      (o.O )
      (> < ) This is Bunny. He's on his way to world domination.

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      • #4
        My husband has been there from the beginning he seen what I went through with the hydro/cysto and when my bladder ruptured..He has went to almost every visit and seen pictures of what my bladder looks like..So I will say he understands completely...
        Hugs
        Ronda

        ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!


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        http://www.ic-network.com/diet/icndi...tsheet0909.pdf

        Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

        Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

        Meds I have Tried:
        Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
        Lexapro< Bad reaction to this med!
        Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

        Dx With IC in Nov 2006 with Hydro/Cysto
        Hydro/Cysto Caused Bladder to Rupture.

        Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.



        ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

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        • #5
          My husband understands but I still don't think he "really knows". I mean this causes problems with our sex life together sometimes. And I feel bad. I mean there are times when I can not have anything inside of me cause of the burning and pain. Not the way I am sure he wanted our relationship to go.



          Diagnosed with IC 3-30-2003

          Flare ups 1 time a month lasts for days.

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          • #6
            I think my hubby trys to undestands, but he just don't understand the extent of the pain I am going thru.
            'The will of God will never take you where the Grace of God will not protect you.'

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            • #7
              My hubby also "tries" to understand, but doesn't really get it. I mean it's been 13 years and he will still ask me what's wrong when I'm in pain. Or why can't we do this or that. It's really tough, sometimes I tell him that I just wish he could go one week feeling what I feel, because I know he would go completely out of his mind!

              Kari
              Kari

              I'm 47 years old, married 27 years. I have two wonderful boys and two wonderful grandchildren. I was diagnosed in 1994. Life has certainly thrown me many many surprises, all of which I'm trying to stay positive and hopeful, and I try to think about my blessings not my misfortunes, when possible. Stay Strong!

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              • #8
                I am very fortunate, my hubby is very understanding and compassionate. He is always doing as much as he can to help me to feel better, I mean he will go out of his way and not even ever complian. He is a God send to me. I do as much as I can for him as well, well what I am able to do. He is a teacher and I organize all his grading on the computer system which saves him alot of time. I also do alot of his grading for him. So we are a good team I would say. I could not do it without him.
                Jen

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                • #9
                  I too am fortunate to have a great supportive spouse! Makes things easier and he would do anything in the world for me

                  Comment


                  • #10
                    I wound up losing my spouse after the IC diagnosis and its effect on our sex life. We had other problems too, and he was not ever remotely understanding. I am actually thankful he is gone now so when I do find someone, it is someone who loves me for who I am.

                    Hugs,
                    Barb
                    (Babs passed away in April 2009. We honor her memory and remember her fondly. - Jill O. ICN President & Founder)

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                    "Spirit is an invisible force made visible in all of life"--Maya Angelou
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                    • #11
                      My husband has a good understanding of chronic pain because he has really bad problems with his ears so they ALWAYS hurt. But somehow he has adjusted to the pain where I just can't adjust and live with pain, I want it to go away.

                      The sex part can really suck and he understands why I can't do it sometimes but it is hard for him of course. There are so many days that I wish I was a normal wife
                      Christine



                      I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
                      1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
                      2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
                      I have tried every oral medication as well as rescue instills and DMSO.

                      I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

                      Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
                      Also proud mom to the best Bullmastiff on earth, Claus

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                      • #12
                        My husband does the "trying" thing too. It goes as far as "how are you feeling today" ..."OH--what's for dinner?" After being sick himself recently he has been alot more understanding. In his own way I do see him trying, which makes me feel better. I would think all S/O's get frustrated when you don't get better. It's hard on everyone.

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                        • #13
                          That is how mine is too. Unless I am almost in tears he does not truly truly understand. He is a good man though. I do wish we could have our S/O feel our pain and discomfort and how we live. Just for one day.



                          Diagnosed with IC 3-30-2003

                          Flare ups 1 time a month lasts for days.

                          Comment


                          • #14
                            Ditto Inlove I feel the same way

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                            • #15
                              I've been blessed with a amazing hubby, he now can see the pain in my eye's , and aske's what he can get me for relief.
                              Hugs Sandra
                              "Never Give Up."

                              To view pictures of my creative interests and Maine Coon kittens click here: http://www.flickr.com/photos/[email protected]/

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